End-of-Life Care Alcohol and Other Drugs

Galvani, Sarah; Yarwood, Gemma

doi:10.4324/9780429465666-21

Cited by 1 publication

(2 citation statements)

References 4 publications

(4 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Since patients with SUD+ thus seem to differ in their EOL-preferences, healthcare behaviour and coping, it is not unimaginable that HCPs who are unfamiliar with this patient-group might experience difficulties in understanding and discomfort in caring for this patient-group. A comparable study indicates the same practice implication and points at the importance of a non-judgmental attitude [59]. Stigma on SUD is a major issue in caring for this patient-group and education or bed-side teaching could be helpful [60].…”

Section: Discussionmentioning

confidence: 89%

See 1 more Smart Citation

Palliative care for people with substance use disorder and multiple problems: a qualitative study on experiences of patients and proxies

et al. 2019

View full text Add to dashboard Cite

Background Systematic research into palliative care (PC) for people with substance use disorder (SUD) and multiple problems is scarce. The existing literature shows problems in the organizational structure of this care, e.g., lack of clear care pathways. Furthermore, negative attitudes of healthcare professionals (HCPs) and stigmatization surrounding SUD, and patients’ care-avoidance and non-disclosure of substance use are hindering factors in providing timely and person-centered PC. Furthermore, the experiences and needs of patients and proxies themselves are unknown. Therefore, this study aims to explore which problems and needs patients with SUD and multiple problems, and their proxies, experience in a PC phase. Methods Data-collection of this qualitative study consisted of semi-structured interviews with patients with SUD and multiple problems in a PC phase, and their proxies, about their experiences in PC and their well-being. Interviews were inductively analyzed. Results Nine patients and three proxies were included. Six patients suffered from COPD, one patient from cirrhosis of the liver and two patients from both. Seven patients stayed in a nursing home and two had a room in either a social care service (hostel) or an assisted living home where medical care was provided. Five themes were identified: 1) healthcare delivery (including HCPs behaviour and values); 2) end-of-life (EOL) preferences (mostly concerning only the individual patient and the ‘here-and-the-now’); 3) multidimensional problems; 4) coping (active and passive) and; 5) closed communication. Proxies’ experiences with healthcare differed. Emotionally, they were all burdened by their histories with the patients. Conclusions This study shows that talking about and anticipating on PC with this patient-group appears hard due to patients’ closed and avoiding communication. Furthermore, some of patients’ EOL-preferences and needs, and coping-strategies, seem to differ from the more generally-accepted ideas and practices. Therefore, educating HCPs in communicating with this patient-group, is needed. Electronic supplementary material The online version of this article (10.1186/s12904-019-0443-4) contains supplementary material, which is available to authorized users.

show abstract

Section: Discussionmentioning

confidence: 89%

“…If advance care planning is to be adopted for this patient-group, HCPs thus need to create trust and have alert and enduring attitudes. Repeating as well as clear conversations about EOL preferences are important [59]. A dedicated nurse supervisor may be an option.…”

Section: Discussionmentioning

confidence: 99%