Encouraging Vietnamese-American women to obtain Pap tests through lay health worker outreach and media education

Lam, Tram Kim; McPhee, Stephen J.; Mock, Jeremiah; Wong, Ching; Doan, Hiep T.; Nguyen, Tuan D.; Lai, KY; Ha-Iaconis, Tuyet; Luong, Thien-Nhien

doi:10.1046/j.1525-1497.2003.21043.x

Cited by 137 publications

(159 citation statements)

References 21 publications

(38 reference statements)

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“…Experience suggests that in some situations, nonacademic partners have limited time, expertise, or interest to contribute to some technical and labor-intensive components of the research process, but they want to shape the research questions, review and approve the research protocol, and participate in the interpretation and uptake of results (16,63,70). To ensure mutual respect and equitable participation, academic researchers should refrain from insisting that nonacademic partners participate when they do not wish to do so.…”

Section: How Should They Participate?mentioning

confidence: 99%

The Value and Challenges of Participatory Research: Strengthening Its Practice

Cargo

Mercer

2008

Annu. Rev. Public Health

927

876

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The increasing use of participatory research (PR) approaches to address pressing public health issues reflects PR's potential for bridging gaps between research and practice, addressing social and environmental justice and enabling people to gain control over determinants of their health. Our critical review of the PR literature culminates in the development of an integrative practice framework that features five essential domains and provides a structured process for developing and maintaining PR partnerships, designing and implementing PR efforts, and evaluating the intermediate and long-term outcomes of descriptive, etiological, and intervention PR studies. We review the empirical and nonempirical literature in the context of this practice framework to distill the key challenges and added value of PR. Advances to the practice of PR over the next decade will require establishing the effectiveness of PR in achieving health outcomes and linking PR practices, processes, and core elements to health outcomes.

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Section: How Should They Participate?mentioning

confidence: 99%

The Value and Challenges of Participatory Research: Strengthening Its Practice

Cargo

Mercer

2008

Annu. Rev. Public Health

927

876

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“…15,16 Even so, participatory research has also been undertaken with highly diverse groups, including the homeless, 17 women prisoners, 18 health care workers working with children receiving palliative care at home, 19 and minority groups, 20 as well as across large geographic areas of practice-based research networks. 21 It has also been used with potentially stigmatizing research topics, including pregnant women abusing drugs, 22 alcohol use, 23 immigrants, and indigenous peoples with tuberculosis.…”

Section: Participatory Research In Different Settings and With Varyinmentioning

confidence: 99%

Promoting Participatory Research by Family Physicians

Macaulay¹

2007

The Annals of Family Medicine

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In the past, researchers have inadvertently caused stigmatization of various populations, fi rst by not involving community members and then through publishing negative fi ndings. In contrast, participatory research, which is based on a partnership between researchers and those affected by the issue being studied, promotes the voice of those being researched. This essay highlights key principles, processes, complexities, and challenges of participatory research and outlines when participatory research is not appropriate. It also refl ects on the training and skills of family physicians that make them especially suited to participatory research. Family physicians have established clinical partnerships with their patients and sometimes entire communities, are trained in patient-centered care-a good basis for community centered research-and are accustomed to working with uncertainty. In addition, they are frequently pragmatic, interested in questions arising from their patients and communities, and likely to respond well to community requests. The main challenges to participatory research are lack of funding, expertise, and time, which may improve as more funding agencies and universities support this approach to research. INTRODUCTION Family physicians work in a wide variety of settings, including communities identifi able by geography or ethnicity, private offi ces, managed care practices, and academic teaching centers. They take care of patients from all walks of life, including those from poor, vulnerable, and minority populations. Some family physicians-both practice-and university-based-are also engaged in primary care research. If they are already engaged in research or thinking of becoming so engaged, I would like to advocate that they consider using participatory research. Participatory research is defi ned as researchers working in partnership with "those affected by the issue under study" 1 and is increasingly recognized as a highly effective method of adding relevance and value to primary health care research.2 The equally important goals of participatory research are to undertake high-quality research, benefi t the community or group where the research is occurring, and develop knowledge applicable to other settings. This essay highlights the key points and challenges of participatory research, shows how this approach to research can be applied in different settings and with different populations, and describes why I believe family physicians are ideally suited to succeed in this type of research. Need for Participatory ResearchCommunities, especially of poor, vulnerable, and minority populations, are often stigmatized by those who conduct research on or in or about communities. Community has been defi ned as "a group of people sharing 1 Communities can be geographic entities, organizations (eg, health care organizations), or groups of individuals. Individuals may not necessarily belong to a community with social interactions, but they can become a community of convenience for a research proje...

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“…Cultural orientation toward preventive services shapes use among immigrants (53,107,109), although lack of access to health care may be a more immediate reason why immigrants in low-income populations are not screened (47,57,123). Clearly, solutions to these barriers, as well as to the high cost of services, are beyond an individual patient's ability to solve.…”

Section: Patient Factorsmentioning

confidence: 99%

TOWARD A SYSTEM OF CANCER SCREENING IN THE UNITED STATES: Trends and Opportunities

Breen

Meissner

2005

Annu. Rev. Public Health

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■ Abstract The hard work of public health officials, physicians, and disease advocacy groups to educate Americans about the importance of early detection has resulted in uptake of screening tests at levels equivalent to or higher than in countries with organized cancer screening programs. However, the societal costs of high screening rates are larger in the United States than in other countries, including higher prices for screening, more unnecessary testing, and inefficiencies in delivery, especially in small practices. Further, screening rates are not evenly distributed across population groups, and the national expenditure on clinical and community research to promote cancer screening among individuals has not been matched by research efforts that focus on policy or clinical systems to increase screening widely throughout the population. We identify opportunities for organizational change that improve access to use, improve quality, and promote cost effectiveness in cancer screening delivery.

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Encouraging Vietnamese-American women to obtain Pap tests through lay health worker outreach and media education

Cited by 137 publications

References 21 publications

The Value and Challenges of Participatory Research: Strengthening Its Practice

The Value and Challenges of Participatory Research: Strengthening Its Practice

Promoting Participatory Research by Family Physicians

TOWARD A SYSTEM OF CANCER SCREENING IN THE UNITED STATES: Trends and Opportunities

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