Encountering anorexia: challenging stigma with recovery stories

Sheens, Emma; Rhodes, Paul; Dawson, Lisa

doi:10.1080/21662630.2016.1217495

Cited by 14 publications

(18 citation statements)

References 21 publications

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“…The effect of a narrative's modality on outcomes have minimally been explored where prior research has predominately examined the impact of recovery narratives using one modality (for example the presentation of text-based narratives only) [37,38]. Our findings indicate that the modality in which a narrative is presented may moderate the effects on connection.…”

Section: Relationship To Prior Researchmentioning

confidence: 82%

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The mechanisms and processes of connection: developing a causal chain model capturing impacts of receiving recorded mental health recovery narratives

Charles

Pollock

et al. 2019

BMC Psychiatry

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Background: Mental health recovery narratives are a core component of recovery-oriented interventions such as peer support and anti-stigma campaigns. A substantial number of recorded recovery narratives are now publicly available online in different modalities and in published books. Whilst the benefits of telling one's story have been investigated, much less is known about how recorded narratives of differing modalities impact on recipients. A previous qualitative study identified connection to the narrator and/or to events in the narrative to be a core mechanism of change. The factors that influence how individuals connect with a recorded narrative are unknown. The aim of the current study was to characterise the immediate effects of receiving recovery narratives presented in a range of modalities (text, video and audio), by establishing the mechanisms of connection and the processes by which connection leads to outcomes. Method: A study involving 40 mental health service users in England was conducted. Participants were presented with up to 10 randomly-selected recovery narratives and were interviewed on the immediate impact of each narrative. Thematic analysis was used to identify the mechanisms of connection and how connection leads to outcome. Results: Receiving a recovery narrative led participants to reflect upon their own experiences or those of others, which then led to connection through three mechanisms: comparing oneself with the narrative and narrator; learning about other's experiences; and experiencing empathy. These mechanisms led to outcomes through three processes: the identification of change (through attending to narrative structure); the interpretation of change (through attending to narrative content); and the internalisation of interpretations. Conclusions: This is the first study to identify mechanisms and processes of connection with recorded recovery narratives. The empirically-based causal chain model developed in this study describes the immediate effects on recipients. This model can inform selection of narratives for use in interventions, and be used to support peer support workers in recounting their own recovery narratives in ways which are maximally beneficial to others.

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Section: Relationship To Prior Researchmentioning

confidence: 82%

“…Recorded mental health recovery narratives are known to elicit emotional responses in recipients [28,37]. However, minimal descriptions of empathy arising from receiving recorded recovery narratives are available.…”

Section: Relationship To Prior Researchmentioning

confidence: 99%

The mechanisms and processes of connection: developing a causal chain model capturing impacts of receiving recorded mental health recovery narratives

Charles

Pollock

et al. 2019

BMC Psychiatry

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“…These sub-types complement processes described as solidifying existing knowledge , and learning new approaches to try , documented in [38]. A role for recovery narratives in helping recipients learning about alternative conceptualisations of anorexia nervosa has been identified in [40]. However, experience of anorexia nervosa was not an inclusion criteria for participants, and impact was assessed on the same day as a recovery narrative was received, which means that the impact of this on the longer-term personal recovery of participants could not be examined.…”

Section: Discussionmentioning

confidence: 99%

“…Four included studies were specific to particular diagnoses [38–41]. Three studies used methods in which researchers provided recovery narratives [38, 40, 41]. Three featured a time of impact assessment which was three months or less [38, 40, 41].…”

Section: Introductionmentioning

confidence: 99%

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The impact of mental health recovery narratives on recipients experiencing mental health problems: Qualitative analysis and change model

et al. 2019

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BackgroundMental health recovery narratives are stories of recovery from mental health problems. Narratives may impact in helpful and harmful ways on those who receive them. The objective of this paper is to develop a change model identifying the range of possible impacts and how they occur.MethodSemi-structured interviews were conducted with adults with experience of mental health problems and recovery (n = 77). Participants were asked to share a mental health recovery narrative and to describe the impact of other people’s recovery narratives on their own recovery. A change model was generated through iterative thematic analysis of transcripts.ResultsChange is initiated when a recipient develops a connection to a narrator or to the events descripted in their narrative. Change is mediated by the recipient recognising experiences shared with the narrator, noticing the achievements or difficulties of the narrator, learning how recovery happens, or experiencing emotional release. Helpful outcomes of receiving recovery narratives are connectedness, validation, hope, empowerment, appreciation, reference shift and stigma reduction. Harmful outcomes are a sense of inadequacy, disconnection, pessimism and burden. Impact is positively moderated by the perceived authenticity of the narrative, and can be reduced if the recipient is experiencing a crisis.ConclusionsInterventions that incorporate the use of recovery narratives, such as peer support, anti-stigma campaigns and bibliotherapy, can use the change model to maximise benefit and minimise harms from narratives. Interventions should incorporate a diverse range of narratives available through different mediums to enable a range of recipients to connect with and benefit from this material. Service providers using recovery narratives should preserve authenticity so as to maximise impact, for example by avoiding excessive editing.

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Barriers and facilitators affecting treatment uptake behaviours for patients with eating disorders: A systematic review synthesising patient, caregiver and clinician perspectives

Daugelat

Pruccoli

Schag

et al. 2023

Euro Eating Disorders Rev

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ObjectiveA significant treatment gap exists between persons affected by eating disorders (ED), and those engaging with treatment services. This systematic review aims to provide a thorough understanding of the barriers and facilitators affecting eating disorder treatment engagement, including a synthesis of the perspectives of patients, caregivers and healthcare professionals.MethodThis systematic review was conducted according to the Preferred Reporting Items for Systematic Reviews and Meta‐Analyses guidelines. Studies were retrieved from three databases (PubMed, PsycInfo, Web of Science) and were screened and assessed independently by two raters. A thematic analysis was completed to determine the key barriers and facilitators reported by the included studies.ResultsA total of 73 studies were included. From these studies, 12 barriers and 13 facilitators were identified. Patients reported stigma, shame and guilt as the most prominent barrier affecting their engagement with treatment services. Meanwhile, caregivers and healthcare professionals reported a lack of eating disorder knowledge of clinicians as the most important barrier. Positive social support was cited as the most prominent facilitator to promote help‐seeking.DiscussionPatients, caregivers and healthcare professionals experience a variety of barriers and facilitators to treatment uptake for ED. Interventions addressing barriers and facilitators could increase treatment engagement, including anti‐stigma campaigns and positive peer‐support interventions.

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Encountering anorexia: challenging stigma with recovery stories

Cited by 14 publications

References 21 publications

The mechanisms and processes of connection: developing a causal chain model capturing impacts of receiving recorded mental health recovery narratives

The mechanisms and processes of connection: developing a causal chain model capturing impacts of receiving recorded mental health recovery narratives

The impact of mental health recovery narratives on recipients experiencing mental health problems: Qualitative analysis and change model

Barriers and facilitators affecting treatment uptake behaviours for patients with eating disorders: A systematic review synthesising patient, caregiver and clinician perspectives

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