Enabling the neighbourhood: a case for rethinking dementia-friendly communities

Ward, Richard; Rummery, Kirstein; Odzakovic, Elzana; Manji, Kainde; Kullberg, Agneta; Keady, John; Clark, AJ; Campbell, Sarah

doi:10.46692/9781447349013.007

Cited by 4 publications

(5 citation statements)

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“…Synchrony of shared time was thus integral to opportunities for sociability (Clark et al, 2020). We also saw the value to a sense of belonging from entrainment to the broader collective rhythms of the neighbourhood (Ward et al, 2021a).…”

Section: The Lived Experience Of Time With Dementiamentioning

confidence: 94%

Taking time: The temporal politics of dementia, care and support in the neighbourhood

Ward

Rummery

Odzakovic

et al. 2022

Sociology Health & Illness

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Dementia is a global health challenge and currently the focus of a coordinated international response articulated through the notion of ‘dementia‐friendly communities and initiatives’ (DFCIs). Yet, while increasing research attention has been paid to the social and spatial dimensions to life with dementia in a neighbourhood setting, the temporalities of dementia have been largely overlooked. This article sets out different aspects of the lived experience of time for people with dementia and unpaid carers, before exploring the temporal politics of formal dementia care and support. The authors show that time is a site for material struggle and a marker of unequal relations of power. People with dementia and unpaid carers are disempowered through access to formal care, and this is illustrated in their loss of (temporal) autonomy and limited options for changing the conditions of the care received. The authors advocate for a time‐space configured understanding of the relationship with neighbourhood and foreground a tempo‐material understanding of dementia. Set against the backdrop of austerity policy in the UK, the findings reveal that ongoing budgetary restrictions have diminished the capacity for social care to mediate in questions of social justice and inequality, at times even compounding inequity.

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Section: The Lived Experience Of Time With Dementiamentioning

confidence: 94%

Taking time: The temporal politics of dementia, care and support in the neighbourhood

Ward

Rummery

Odzakovic

et al. 2022

Sociology Health & Illness

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“…Research concerned with the social health of people living with dementia draws attention to the ways in which (a diagnosis of) dementia creates challenges for social inclusion in everyday life (Biggs et al., 2019; Dröes et al., 2017; Odzakovic et al., 2021; Vernooj‐Dassen & Jeon, 2016; Walsh et al., 2020). For example, worlds that seem to become ‘smaller’ is a common narrative of life with dementia (Ward et al., 2021). Alongside this narrative are accounts of people living with dementia having less access to the outdoors, community spaces and public events; such exclusions often extend to family members and contribute to a sense of isolation (Greenwood et al., 2018; Natural England, 2016).…”

Section: Introductionmentioning

confidence: 99%

“…That is, those relations that can be altered in order to create contained, tailored spaces within which people living with dementia can be accommodated with little recognition of the other spaces and relations that make‐up everyday life. These narrowed understandings of sociality and social inclusion for people living with dementia indicate that more robust theorisation is needed to inform social health research and solutions (Pinkert et al., 2019; Ward et al., 2021).…”

Section: Introductionmentioning

confidence: 99%

‘Sand in the works?’ Infrastructural affordances and life with dementia in the community

Symonds-Brown

Ceci

Judge

2022

Sociology Health & Illness

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The social health of people living with dementia is a more recent addition to the dementia research agenda; to date conceptions of the problem and solutions have relied on underdeveloped theorisations of sociality and social inclusion. In this article, using a material‐semiotic approach to care practices and infrastructure, we use an ethnographic case study of one family of a person living with dementia using a day programme and home care supports over a period of 9 months, to examine how infrastructural arrangements provide particular affordances for social relatedness for people living with dementia in the community. The aim of the analysis is to consider how the infrastructural affordances created by the organisation of care may create spatially bounded lives and limit the subject positions available for people living with dementia and their families. It is these narrowed positions of dwelling that we argue may be the necessary starting place for thinking about the social health of people living with dementia and the solutions that might be helpful for them.

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“…In the near future, the proportion of older people (65 years and older) in Western European countries will grow substantially, with predictions of growth from 20.3% in 2019 to over 30% in 2070 (European Commission, 2020; Giannakouris, 2008). Whereas the responsibility for care used to lie primarily on professionals and informal caregivers, a paradigm shift is occurring in which a responsibility for the support of older individuals' ageing also lies at the level of municipalities (Greenfield et al, 2012; Ward et al, 2021). In some cases, this is the result of national policies that determine top‐down that municipalities need to take a more active and responsible role in this regard (Jongen et al, 2015; Kroneman et al, 2012; Maarse & Jeurissen, 2016).…”

Section: Introductionmentioning

confidence: 99%

“…In some cases, this is the result of national policies that determine top‐down that municipalities need to take a more active and responsible role in this regard (Jongen et al, 2015; Kroneman et al, 2012; Maarse & Jeurissen, 2016). For this reason, many municipalities are trying to support ageing in place and healthy ageing (Ward et al, 2021). Ageing in place means ageing in one's own home for as long as possible without having to move elsewhere to receive long‐term care (Pani‐Harreman et al, 2021).…”

Section: Introductionmentioning

confidence: 99%

Towards age‐friendly municipalities: What are municipalities doing to support their ageing population with mental health problems?

Schichel

Veenstra

Kempen

et al. 2022

World Med & Health Policy

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Municipalities in Western Europe have increasingly gained a responsibility to support their populations' healthy ageing, but are they ready to do so? In this case study, we are looking into the awareness, attitudes, capacities and mandates of 33 neighboring Belgian, Dutch, and German municipalities to support ageing people, and especially people with dementia, people with late‐life depression and informal caregivers. As part of the Senior Friendly Communities Interreg project, we conducted semi‐structured interviews with municipal policymakers and relevant stakeholders from May 2017 to January 2018. The results show that dementia was a more salient theme in municipality policies than depression; that informal caregivers were considered important but difficult for municipalities to identify; that there was a difference between how embedded these health themes were in policies versus in practice; and lastly, that conducting this assessment turned out to act as an intervention itself. We discuss the similarities and differences between the regions, and the context that needs to be taken into account for municipalities when becoming more age‐friendly. These results do not only provide an insight into the status quo of the participating municipalities with regard to becoming more age‐friendly but can provide a starting point for further development of policies in this area.

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Enabling the neighbourhood: a case for rethinking dementia-friendly communities

Cited by 4 publications

References 0 publications

Taking time: The temporal politics of dementia, care and support in the neighbourhood

Taking time: The temporal politics of dementia, care and support in the neighbourhood

‘Sand in the works?’ Infrastructural affordances and life with dementia in the community

Towards age‐friendly municipalities: What are municipalities doing to support their ageing population with mental health problems?

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