Empowerment from patient’s and caregiver’s perspective in cancer care

Marzorati, Chiara; Bailo, Luca; Mazzocco, Ketti; Pravettoni, Gabriella

doi:10.1177/2055102918815318

Cited by 19 publications

(21 citation statements)

References 35 publications

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“…In order to investigate the elements that allow patients to efficiently manage their condition, we focused on three dimensions that are highly relevant in several framings of empowerment: the patients’ perception of the quality of care, the control they may exert over the care process and their relationship with healthcare providers and informal caregivers [54]. The perceived quality of care is one of the areas that patients value as responsible for their empowerment.…”

Section: The Cancer Patient Perspectivementioning

confidence: 99%

The patient perspective: investigating patient empowerment enablers and barriers within the oncological care process

Bailo

Guiddi

Vergani

et al. 2019

ecancer

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Patient empowerment is a multi-factorial concept and its relevance has led to a growing body of literature; despite this attention, there is still no agreement regarding the elements that define its expression. While several studies have already investigated the positive effect of empowerment interventions on the care process outcome, the aim of this study is to investigate which factors can foster an empowered management of the cancer condition from the patient's perspective. To examine patients' perception of empowerment enablers, we asked for participants' input on the role of three factors frequently cited as positively affected by empowerment: care quality, perception of direct control and relationships within the care context, during the care process. Three focus groups were conducted with 34 cancer patients. The results highlight the perception of direct control on their treatment as the least valued element (2.87, SD 0.566) when compared with care quality (3.75, SD 0.649) and relational support in the care context (3.91, SD 0.274).Unlike traditional approaches to empowerment, patient's expression of empowerment does not mainly reside in the direct control of their condition as much as in an active role within the relationship with caretakers, such as the ability to choose the doctor, the care team or the health organisation in charge of their healthcare. Emerging aspects from this analysis of patient's perspective are central in order to adequately consider empowerment in the care process and to provide more effective care strategies.

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Section: The Cancer Patient Perspectivementioning

confidence: 99%

The patient perspective: investigating patient empowerment enablers and barriers within the oncological care process

Bailo

Guiddi

Vergani

et al. 2019

ecancer

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“…In the current health ecosystem, patient empowerment goes beyond the health professional-patient relationship, involving resources from friends and family (Danaher & Gallan, 2016). This means that patient empowerment has a social dimension and affects all the people included in the "patient's inner circle" (Marzorati et al, 2018). Companions are an active part of the care process, providing support inside and outside of the hospital setting to healthcare providers (Bailo et al, 2019).…”

Section: Health Empowermentmentioning

confidence: 99%

Communicating with Companions. The Impact of Companion Empowerment and Companion Literacy on the Well-being of Elderly Patients

Vázquez

Álvarez

Lanza

2020

Health Communication

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“…For this reason, evidence-based interventions cannot be rigidly applied in all contexts and it is fundamental to integrate the best research evidence, clinical expertise and values of patient13 to evaluate the benefit-risk trade-off of all alternatives. In a broader interpretation, contributions to the decision should originate from all individuals involved in the care process (eg patients, clinicians, caregivers, nurses) since they are a crucial element that allows to evaluate which alternative is the “best” for each specific patient 14…”

Section: Choosing Without a “Best” Alternativementioning

confidence: 99%

<p>Patient Preferences as Guidance for Information Framing in a Medical Shared Decision-Making Approach: The Bridge Between Nudging and Patient Preferences</p>

Bailo¹,

Vergani²,

Pravettoni³

2019

PPA

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Guidelines and policies support the decision process to make sure that patients can benefit from the best treatment for their condition. The implementation of guidelines and policies is evolving, allowing decision makers to be able to choose between alternatives while considering the effect of biases and fallacies that may hinder their choice. Patient preferences play a precious role in those decisions in which is not possible to recognize an objective “best” alternative and it’s not possible to nudge them toward one alternative based on scientific evidence and clinical experience. Having patient input as part of the decision process itself would allow the recognition of the attributes related to what is relevant for patients, which can be considered as important as clinical data. The authors advocate that the integration of preference-sensitive attributes with decision policies could provide a benefit against fallacies in the decision process when there is not a “best” alternative, and a shared decision-making paradigm allows both patient and clinician to recognize and pursue the option that best fits the individual case.

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Empowerment from patient’s and caregiver’s perspective in cancer care

Cited by 19 publications

References 35 publications

The patient perspective: investigating patient empowerment enablers and barriers within the oncological care process

The patient perspective: investigating patient empowerment enablers and barriers within the oncological care process

Communicating with Companions. The Impact of Companion Empowerment and Companion Literacy on the Well-being of Elderly Patients

<p>Patient Preferences as Guidance for Information Framing in a Medical Shared Decision-Making Approach: The Bridge Between Nudging and Patient Preferences</p>

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