Empowering caregivers in the radiotherapy process: the results of a randomized controlled trial

Uysal, Neşe; Bağçıvan, Gülcan; Özkaraman, Ayşe; Eşer, Akile Karaaslan; Çetin, Ferhan; Çalışkan, Behice Belkıs; Elöz, Aygül; Gündoğdu, Emine İnce; Olcay, G.; Kaya, Burak; Soylu, Yeter

doi:10.1007/s00520-020-05743-z

Cited by 11 publications

(44 citation statements)

References 32 publications

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“…Length of individual contacts lasted between 15 min 57 to 2 h 50 . Many of the interventions were delivered via face‐to‐face contact in a hospital, often supplemented with telephone follow‐ups, 35,39,42,44,49,51,54,56,59 websites 38,48 and home visits 53 . Thirteen of the interventions were nurse‐led interventions 34–36,39,40,43,47,50,52–54,59 .…”

Section: Resultsmentioning

confidence: 99%

“…Various caregiver‐reported outcomes were measured across studies such as QoL, depression, anxiety, caregiver burden, caregiving preparedness, supportive care needs and perceived stress. Fourteen studies reported a high Cronbach's alpha as an indicator for internal consistency for various measures for caregiver outcomes 15,35,38,41,42,44,46,48,54,56,57,59,61 . For instance, a Cronbach's alpha of 0.84 and 0.88 was reported for caregiver QoL cancer scale (CQOLC) 38 and Center for Epidemiological Studies‐Depression (CES‐D) 44 respectively.…”

Section: Resultsmentioning

confidence: 99%

“…Thirteen studies reported on the effect of PEI on QoL 35–37,39–41,45,48,51,55,56,58,59 . Pooled analysis was performed for 11 studies that provided relevant statistics (Figure 4A,B).…”

Section: Resultsmentioning

confidence: 99%

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The effectiveness of psychoeducational interventions on caregiver‐oriented outcomes in caregivers of adult cancer patients: A systematic review and meta‐analysis

et al. 2022

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Objective Cancer caregiving can result in increased psychosocial distress and poor health‐related quality of life (QOL). Psychoeducation has been shown to be effective in enhancing caregiving‐oriented outcomes. A systematic assessment of the overall effect of psychoeducational intervention (PEI) and identification of individual intervention characteristics that may contribute to the effectiveness of PEI is needed. Methods For this meta‐analysis, relevant articles were identified through electronic databases using key search terms and their medical subject heading such as “family caregiver,” “cancer,” and “psychoeducational intervention.” Results Twenty‐eight controlled trials with 3876 participants were included. PEIs had beneficial effect on depression (Standardized Mean Difference [SMD] −0.26; 95% CI = −0.50 to −0.01, p < 0.04), anxiety (SMD −0.41; 95% CI = −0.82 to 0.01, p < 0.05), caregiver burden (SMD −0.84; 95% CI = −1.22 to −0.46, p < 0.0001) and QOL (SMD 0.59, 95% CI 0.24–0.93; p < 0.0009) at the immediate post‐intervention period. At longer‐term follow‐up, the effectiveness of PEI was maintained on QOL (SMD 0.39, 95% CI = −0.00 to −0.77, p < 0.05), and anxiety (SMD −0.57; 95% CI = −1.09 to −0.06, p < 0.03). Moderation analysis showed that intervention characteristics such as studies conducted in high‐income countries, group intervention and studies that focused on specific and mixed cancers explain some of the high variations observed among the included studies. Conclusions PEI may benefit caregivers of cancer patients through the significant effects on caregiver burden, QOL, anxiety, and depression. The findings from the moderation analysis may be important for the design of future interventions.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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The effectiveness of psychoeducational interventions on caregiver‐oriented outcomes in caregivers of adult cancer patients: A systematic review and meta‐analysis

et al. 2022

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“…Such care is based on monitoring the patient's daily activities, taking psychosocial measures, taking medications, monitoring side effects, managing symptoms such as pain and shortness of breath, among others 23-24. However, a North American study 23 and a Colombian study 25 indicate that much is discussed about the benefits of psychosocial intervention on the caregiver, addressing, for example, coping, communication and problem solving strategies. But just a little is said about the absence in the literature of strategies that help caregivers in these aspects, or about the lack of training of the health team to act in the face of illness processes that mobilize an entire family nucleus [26][27] , main aspects taken into account in the elaboration of this research.…”

Section: Discussionmentioning

confidence: 99%

Estratégias de apoio ao cuidador de pessoas com câncer: revisão integrativa

Ramos

Mendonça

Pedretti

et al. 2022

Rev. Med. (São Paulo)

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Objetivo: realizar uma revisão integrativa da literatura acerca de quais estratégias de cuidado e apoio são ofertadas ao cuidador de pessoas com câncer, no âmbito hospitalar, ambulatorial e/ou domiciliar. Método: revisão integrativa da literatura nas bases de dados BDENF, LILACS, MEDLINE, Portal CAPES, PubMed e SciELO, por meio dos descritores “Terapia Familiar”, “Enfermagem Familiar”, “Cuidadores”, “Neoplasias”, “Atenção Integral à Saúde” nos idiomas português, inglês e espanhol. Utilizou-se para o cruzamento dos descritores os operadores booleanos “OR” e “AND”. Resultados: após análise criteriosa, 7 artigos atenderam aos critérios de inclusão. Estratégias como a capacitação para cuidados físicos e manejo de sintomas, estímulo ao desenvolvimento de habilidades de auto eficácia, coping e autocuidado por meio do fornecimento de informações e intervenções psicoeducacionais, atividades físicas, uso de práticas integrativas complementares e também o estreitamento dos laços familiares, foram citadas como promotoras da diminuição da sobrecarga e sentimento de incapacidade. Conclusão: os estudos enfatizaram diversas estratégias de apoio como promotoras da diminuição da sobrecarga e sentimento de incapacidade. São necessários mais estudos para validar alguns dos resultados que não obtiveram comprovação de impacto significativo na qualidade de vida dos cuidadores.

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“…Today, cancer care has shifted more to outpatient and home care, and family caregivers (FCs) have become the leading provider of support for patients with cancer (2). Family caregivers often take various actions such as caring for the patient, managing symptoms, assisting with daily activities, and providing emotional support at home (3). They are often entrusted with the role of patient care without proper preparation and support, to the point where they do not even seek help for their own needs (4); leading them to undergo a significant burden of caring for the patient (5).…”

Section: Introductionmentioning

confidence: 99%

Challenges of Help-Seeking in Iranian Family Caregivers of Patients with Cancer: A Qualitative Study

et al. 2022

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Background: The nature of cancer is such that it causes several problems for patients and caregivers. As a vital source of support for patients with cancer, family caregivers must seek assistance and make use of available resources to overcome these issues and offer better care for the patient. Objectives: This study aimed at exploring the challenges of seeking help in Iranian family caregivers of patients with cancer from supportive sources. Methods: This qualitative study was conducted from 2019 to 2021 on 15 family caregivers with a wide variety of caring experiences and 13 health professionals (i.e. nurse, physician, social worker, clergyman, and family counselor who were engaged with services for the patient and caregiver) via purposive sampling and semi-structured in-depth interviews in a central cancer care hospital in Isfahan. Graneheim and Lundman's conventional qualitative content analysis approach was used to analyze the data. To assess data trustworthiness, Lincoln and Guba's criteria were used. Data management was performed using MAXQDA (v. 10) software. Results: Four main categories were identified consisted of (1) being strained by social desirability; (2) stigmatizing attitudes toward help-seeking; (3) reactive self-forgetfulness; and (4) resistance to change. Conclusions: The need to develop and implement interventions geared to enhance family caregivers' preferred attitudes and personal skills in order to overcome socio-cultural obstacles to help-seeking behaviors was underlined in this research. Both health care professionals and the community should be prepared to make support services more accessible and usable for family caregivers.

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Empowering caregivers in the radiotherapy process: the results of a randomized controlled trial

Cited by 11 publications

References 32 publications

The effectiveness of psychoeducational interventions on caregiver‐oriented outcomes in caregivers of adult cancer patients: A systematic review and meta‐analysis

The effectiveness of psychoeducational interventions on caregiver‐oriented outcomes in caregivers of adult cancer patients: A systematic review and meta‐analysis

Estratégias de apoio ao cuidador de pessoas com câncer: revisão integrativa

Challenges of Help-Seeking in Iranian Family Caregivers of Patients with Cancer: A Qualitative Study

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