Empowering caregivers: Impact analysis of FamilyLink Education Programme           (FLEP) in Hong Kong, Taipei and Bangkok

Chiu, Min‐Sen; Wei, Grace; Lee, Paul; Choovanichvong, Somrak; Wong, F. H. T.

doi:10.1177/0020764011423171

Cited by 33 publications

(41 citation statements)

References 52 publications

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“…In people with chronic illnesses, increased knowledge can reduce the negative psychological impact on the patients or caregivers, such as anxiety and depression, and can enhance care efficiency [9]–[11]. Another study demonstrated that education reduces subjective burdens, worry, and displeasure and improves intra-psychic strain, depression and all empowerment measures [32].…”

Section: Discussionmentioning

confidence: 99%

Differences in COPD Patient Care by Primary Family Caregivers: An Age-Based Study

et al. 2014

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BackgroundBecause Taiwan has the fastest aging rate among developed countries, care for the elderly is becoming more prominent in the country. Primary family caregivers play an important role in patient health and health promotion behavior. Chronic obstructive pulmonary disease (COPD), an age-related disease, is a major public health problem with high morbidity and mortality and can be a long-term burden for family members; however, little attention has been given to the differences in COPD care between elder caregivers and other caregivers. This study aimed to investigate the differences between elder family caregivers and non-elder family caregivers caring for COPD patients in Taiwan, including caring behavior, caregiver response, and caring knowledge.MethodsThis cross-sectional study was conducted between March 2007 and January 2008; 406 primary family caregivers of COPD patients from the thoracic outpatient departments of 6 hospitals in north-central Taiwan were recruited to answer questionnaires measuring COPD characteristics, care behavior, caregiver response, and COPD knowledge. All questionnaires, which addressed caregiver knowledge, care behaviors, and care reactions, were shown to have acceptable validity and reliability, and the data were analyzed using univariate and generalized linear model techniques.ResultsThe elder caregivers group had 79 participants, and the non-elder caregivers comprised 327 participants. The COPD-related knowledge scale results were positively correlated with the family caregiver caring behavior scale, suggesting that better COPD-related knowledge among family caregivers may result in improved caring behavior. After adjusting for all possible confounding factors, the elder caregivers had significantly lower COPD-related knowledge than the non-elder caregivers (P<0.001). However, there were no significant differences in the family caregiver caring behavior scale or the caregiver reaction assessment scale between the two groups.ConclusionsElder family caregivers require increased education regarding medications and preventive care in COPD patient care.

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Section: Discussionmentioning

confidence: 99%

Differences in COPD Patient Care by Primary Family Caregivers: An Age-Based Study

et al. 2014

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“…Furthermore, competing roles of the caregivers and physical distance could also be barriers to the attendance of the program. A self-management approach in providing psychoeducation to caregivers at the pace and intensity of their choice has been suggested recently (Lobban et al, 2013a) and its feasibility and effectiveness has been studied in caregivers of patients with long term illness (Chiu et al, 2013) and FEP (Lobban et al, 2013a; Chien et al, 2016). This approach has also been recognized as an empowering process to bring about better personal adaptation and improvement of self-efficacy.…”

Section: Family Intervention Of Psychosis: An Overview and Experiencementioning

confidence: 99%

Web-Based Psychoeducation Program for Caregivers of First-Episode of Psychosis: An Experience of Chinese Population in Hong Kong

Tse

Sit²,

Hui

et al. 2016

Front. Psychol.

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Caregivers of patients with first-episode psychosis are often with little knowledge about the illness and experience more burden of care. Psychoeducation to caregivers has shown to be effective in improving outcomes of patients and possibly reduce stress of the caregivers. This has been recommended as one of the key psychosocial interventions for specific early intervention for psychosis service. However, the accessibility of the service, high case load of the health care professionals and self-stigma of caregivers are often the barriers of implementation of these programs in the real world. Incorporating the convenience of information access via internet and the concept of self-management approach, an interactive internet-based self-help psychoeducation program (iPEP) (www.ipep.hk) for the caregivers of patients with psychosis was established targeting the caregivers of patients with psychosis at early stage in Hong Kong. It provides a comprehensive online resource center in both written and video format on knowledge about psychosis, skills of care, and information of local resources. It also has a forum facilitate information exchange between healthcare professionals and the caregivers, allowing for self-management. Over 800 caregivers have joined the program as members. The evaluation of the subset of the members/users of the iPEP suggested that the iPEP program has been well received and appreciated by the caregivers of patients with first episode psychosis locally. It can potentially serve as a platform for future development of specific manual-based psychoeducation program for caregivers targeting at the needs of different groups.

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“…These include managing significant child behavioral or emotional problems, advocating for their child, organizing medical, behavioral and other therapies, coping with stigma and isolation, and oftentimes, continuing their direct care giving role with adult children. Just one intervention study of parents of children with psychiatric illness was conducted in Eastern Asia [24 ■ ]. Positive effects of empowering parents and rejecting stigma were found but tempered somewhat by cultural views and expectations.…”

Section: Gaps In the 2012–2014 Intellectual Or Developmental Disabilimentioning

confidence: 99%

Family adjustment and interventions in neurodevelopmental disorders

Dykens

2015

Current Opinion in Psychiatry

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Purpose of review Developmental disabilities are increasingly recognized, and remarkable progress is being made on the genetic and neurobiological underpinnings of many disorders. Yet, only a tiny percentage of the disability literature addresses families of children with disabilities. A review of recently published family studies reveals salient trends and gaps. Recent findings Consistent with previous work, high levels of parent stress, illness, anxiety, and depression are apparent. Studies in the USA focused on parents of children with autism; in contrast, studies on parents of children with intellectual disabilities were almost always conduced abroad. Compared to other disabilities, families of children with psychiatric disorders and genetic syndromes are understudied. The majority of family studies are descriptive, with very few trials or interventions aimed at reducing parental stress. Of these, mindfulness practices and a peer-mentor model of treatment delivery hold much promise for effective stress reduction. Psychoeducational programs and respite care are differentially beneficial. Summary A new era of family intervention research is in order. This work can take advantage of many advances in telemedicine, peer-mentor models, smart technology, and biomarkers as indices of change. Benefit could also stem from group interventions with parents who share similar concerns, regardless of their child’s diagnostic label.

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Empowering caregivers: Impact analysis of FamilyLink Education Programme (FLEP) in Hong Kong, Taipei and Bangkok

Cited by 33 publications

References 52 publications

Differences in COPD Patient Care by Primary Family Caregivers: An Age-Based Study

Differences in COPD Patient Care by Primary Family Caregivers: An Age-Based Study

Web-Based Psychoeducation Program for Caregivers of First-Episode of Psychosis: An Experience of Chinese Population in Hong Kong

Family adjustment and interventions in neurodevelopmental disorders

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