Employment and multiple sclerosis: A meta-analytic review of psychological correlates

Dorstyn, Diana; Roberts, Rachel; Murphy, Gregory C.; Haub, Rebecca

doi:10.1177/1359105317691587

Cited by 59 publications

(66 citation statements)

References 93 publications

(96 reference statements)

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“…HRQoL is an important end-point indicator of healthcare, being a multidimensional concept covering physical health, level of independence, psychological health, spirituality, social relationships, and environmental features (10,11). MS patients suffer from psychosocial losses such as losing the ability to work and a narrowing of their social network, which lead to alterations in their self-concept and a reduction in HRQoL in addition to the negative physical and neurological effects of the disease (12,13). Previous studies underscored the role of psychosocial factors including low self-efficacy, low self-esteem, low social support, and maladaptive coping in diminished HRQoL in MS (13)(14)(15)(16)(17).…”

Section: Introductionmentioning

confidence: 99%

Health-related quality of life in multiple sclerosis: Links to mental health, self-esteem, and selfcompassion

Gedik¹

2020

Dusunen Adam

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Objective: To examine the association of health-related quality of life (HRQoL) with mental health, self-esteem, and selfcompassion in multiple sclerosis (MS) patients. Method: For this descriptive and cross-sectional study, a total of 89 volunteer Turkish MS patients completed the patient information form, Rosenberg Self-Esteem Scale, Self-Compassion Scale, Hospital Anxiety and Depression Scale, and MS International Quality of Life Questionnaire. Depressed patients were compared with nondepressed patients regarding HRQoL, self-esteem, and self-compassion. Bivariate correlations between HRQoL, self-esteem, self-compassion, and mental health indices were calculated followed by hierarchical regression analyses. Results: Depressed MS patients had significantly lower HRQoL, self-esteem, and self-compassion compared to their nondepressed counterparts. Hierarchical multiple regression analysis showed that physical HRQoL was significantly predicted by disability status and self-compassion, explaining 48% of the total variance. Anxiety and self-esteem explained 52% of the total variance of psychological HRQoL. Social HRQoL was significantly predicted by depression and self-esteem, which explained 21% of the total variance. Conclusion: The effects of MS and disability may not be avoidable, but self-related traits including self-esteem and selfcompassion can be modified through psychosocial interventions to improve HRQoL. The findings of the current study provided insights into which psychosocial factors to address in improving different domains of HRQoL in MS patients. Cultivating selfcompassion may increase HRQoL in the physical domain, while working with self-esteem and self-worth may improve the psychosocial domain.

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Section: Introductionmentioning

confidence: 99%

Health-related quality of life in multiple sclerosis: Links to mental health, self-esteem, and selfcompassion

Gedik¹

2020

Dusunen Adam

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“…Multiple sclerosis (MS) is a chronic neurological condition, often diagnosed in a critical stage of life when people are building their careers. Employment rates are affected almost a decade before formal diagnosis of MS and keep declining thereafter [1] with on average 44% but up to 75% of people with MS (PwMS) reported to be unemployed or retired early [2][3][4][5].…”

Section: Introductionmentioning

confidence: 99%

“…Most countries have specialised employment services to support people with disability and chronic conditions to find and retain work and so it is important to understand which populations are most at risk of employment loss to target these services to those who need it most [19]. A recent meta-analyses of 33 cross-sectional studies reported a clear association between better mental health and QOL and full or part time employment in PwMS, however, few prospective studies currently exist [2].…”

Section: Introductionmentioning

confidence: 99%

Predictors of Change in Employment Status and Associations with Quality of Life: A Prospective International Study of People with Multiple Sclerosis

et al. 2019

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Purpose This prospective international study aimed to assess the changes in employment, and predictors thereof, and associated change in mental health quality of life in people with multiple sclerosis (MS). Methods People with MS were recruited online through social media, forums and newsletters to complete an online English-language survey in 2012 and again in 2015, to assess changes in employment and clinical characteristics. Results 1276 people with MS of working age were included of whom 35.9% were employed full time, 25.6% part-time, 3.1% were unemployed and seeking employment, 19.7% were retired due to disability and 15.7% were not in the labour force. Part/full time employment decreased from 61.4 to 57.1% of the sample 2.5 years later, and 25.5% experienced some change in employment status. Lower level of education and higher level of disability at baseline predicted loss of employment at follow-up. 62.0% of the sample indicated that MS impacted on employment over their lifetime, associated with a lower level of education and progressive MS at time of diagnosis. Retiring due to disability was predictive of a decreased mental health related QOL score. Conclusion Employment status was negatively impacted by MS for most participants. We showed for the first time that employment loss was prospectively associated with poorer mental health related quality of life. Employment support including vocational services, reasonable flexibility in the workplace, and legal protection against discrimination should be widely available to assist people with MS, especially for those with progressive onset MS, higher disability and lower levels of education who are at higher risk of employment loss.

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“…In our study, 61.2% were unemployed. In a meta-analysis published by Dorstyn et al [20], 33 cross-sectional studies were reviewed with employment participation ranged from 12% to 74%…”

Section: Discussionmentioning

confidence: 99%

“…Familism is a term used to describe the development of a feeling of duty among the members of the family group and the orientation towards the welfare of one's own family. It refers to the core values of a family type with emphasis on the well-being of the family group against the interest of each one of its members [20]. This was reflected in our study since most of the caregivers were immediate family members, including a spouse (33.9%), a sibling (22%), a parent (21.6%), a son/daughter (14.7%), and a second-degree relative (7.8%).…”

Section: Discussionmentioning

confidence: 99%

Assessment of the Burden of Multiple Sclerosis Patients' Caregivers in Saudi Arabia

Algahtani

Shirah

Bayazeed

et al. 2020

Cureus

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Introduction Multiple sclerosis (MS) is a disease that constitutes a high burden on both patients and caregivers. Although many studies have assessed the burden of MS caregivers worldwide, no such studies have been conducted in Saudi Arabia. In this study, we aim to assess the burden of MS patients' caregivers in Saudi Arabia. Methods This cross-sectional study included caregivers of MS patients (for >1 year) who visited the neurology clinic at King Abdulaziz Medical City, Jeddah, Saudi Arabia, between July 2017 and December 2018. The study utilized the Zarit Burden Interview (ZBI) to assess the burden on MS patients' caregivers. In addition, the caregivers' demographic profile and certain information regarding the patient were also collected through an oral interview. Results There were a total of 219 respondents, of which 117 (53.4%) male caregivers. For ZBI, the majority of caregivers reported little or no burden (57.1%), followed by a mild to moderate burden (30.1%), then a moderate to severe burden (10.5%), and only five (2.3%) reported a severe burden. Conclusion Our results showed a limited burden of MS on the life caregivers of MS patients. We stress the importance of assessing the burden in MS patients and caregivers as routine practice with the other important measures such as quality of life and medication compliance. The finding of this study will help in encouraging medical centers to establish more specialized MS clinics that put into consideration the psychological factors, burden of the disease, multidisciplinary approach, and support groups, which are currently few in number.

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Employment and multiple sclerosis: A meta-analytic review of psychological correlates

Cited by 59 publications

References 93 publications

Health-related quality of life in multiple sclerosis: Links to mental health, self-esteem, and selfcompassion

Health-related quality of life in multiple sclerosis: Links to mental health, self-esteem, and selfcompassion

Predictors of Change in Employment Status and Associations with Quality of Life: A Prospective International Study of People with Multiple Sclerosis

Assessment of the Burden of Multiple Sclerosis Patients' Caregivers in Saudi Arabia

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