Empathy and journey mapping the healthcare experience: a community-based participatory approach to exploring women’s access to primary health services within Melbourne’s Arabic-speaking refugee communities

Bartlett, Rebeccah; Robinson, Tracy; Anand, Jennifer; Negussie, Fekir; Smith, Jessica; Boyle, Jacqueline

doi:10.1080/13557858.2020.1734780

Cited by 10 publications

(12 citation statements)

References 26 publications

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“…Such approaches may facilitate ameliorating some systemic barriers in accessing SRH services such as time, cost and travel, by enabling women to access information at time and place that best suits them. While scoping studies suggest that interventions such as digital storytelling for young people (Botfield et al 2017) and the use of mobile health (mHealth) (Bartlett et al 2020) may be efficacious in promoting SRH, there is an absence of literature that speaks to development and evaluation of such interventions among migrant and refugee communities in Australia or Canada. Working with migrant and refugee women to co-design and evaluate the effectiveness of communicating information through multimedia should thus be a priority area for future research (Hughson et al 2018).…”

Section: Discussionmentioning

confidence: 99%

What do women want? Migrant and refugee women’s preferences for the delivery of sexual and reproductive healthcare and information

2021

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Objective: Migrant and refugee women experience inequities in sexual and reproductive health (SRH) care, reflected in the low uptake of SRH services. It is essential for healthcare providers and educators to be aware of women's preferences for SRH information and service delivery, to provide culturally responsive care. Identifying migrant and refugee women's preferences for SRH information and service delivery is the objective of this study. Design: This study investigated this issue, in communities of migrant and refugee women living in Australia and Canada. Eighty-four individual interviews and 16 focus groups comprising 85 participants were conducted (total n = 169), with migrant and refugee women aged 18 years and over from Afghanistan, India

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Section: Discussionmentioning

confidence: 99%

What do women want? Migrant and refugee women’s preferences for the delivery of sexual and reproductive healthcare and information

2021

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“…Most of the participants had migrated from Latin America to the United States (Chavez-Baray et al, 2022;D'Alonzo & Sharma, 2010;Evans-Agnew et al, 2018;Gómez & Castañeda, 2019;McMorrow & Saksena, 2017;Njeru et al, 2015;Postma et al, 2015;Rhodes et al, 2015;Schwartz et al, 2007;Vaughn et al, 2016), and there was a great variation in how long the participants had been in the host country. In seven of the articles, the participants were described as women (Bartlett et al, 2022;Busza & To what degree is there participation on Arnstein's Ladder of Citizen Participation?…”

Section: Resultsmentioning

confidence: 99%

Qualitative Systematic Literature Review: Participatory Visual Methods in Community Health Interventions With Migrants

Blohm,

Jacobsen,

Villadsen

et al. 2023

Qual Health Res

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This systematic review investigates how participatory visual methods (PVMs) (1) are applied in community health interventions (CHIs) with adult migrant populations and (2) identify potentials for participation. The search was performed in PubMed in 2021 and 2023. Eighteen articles fulfilled inclusion criteria as they investigated a CHI targeting migrants and used a visual method. We excluded articles that used quantitative methods, articles written in languages other than English, Danish, Swedish, or Norwegian, and the formats reviews, protocols, and theoretical articles. As a framework to graduate the degree of participation, we applied Arnstein’s ‘A Ladder of Citizen Participation’. Most of the studies took place in the United States, and the most frequent method used was photovoice. We categorize an equal number of articles as ‘degrees of citizen power’ or ‘degrees of tokenism’. We identify the capacity to accommodate the needs of specific target groups to be a strength in PVMs, which has potential to engage migrants in several parts of the research process. Additionally, PVMs can be used to support a change in the participants’ lives by facilitating a reflexive process concerning their life situation. However, utilization of PVMs also include a risk of tensions, they can be resource-demanding and potentially exclude certain groups.

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“…While few other studies have been published on the outcomes or effectiveness of journey mapping, there is some evidence that one of the main expected benefits increased empathy for the person whose journey has been mapped, so BHC's experience is not unique in this finding. 32,33 For city leadership, the journeys provide a more engaging way to understand the human impact of sometimes unattractive service issues, as well as direct feedback on their performance (which they may or may not appreciate). While there are other citizen reporting systems in both cities, these journeys highlighted issues that citizens were not reporting through traditional channels, possibly due to the lack of governmental response in previous years.…”

Section: Discussionmentioning

confidence: 99%

Engaging Citizens Via Journey Maps to Address Urban Health Issues

Pomeroy–Stevens¹,

Afdhal

Mishra³

et al. 2020

Environ�Health�Insights

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Effectively addressing urban health challenges requires engagement of citizens. However, citizens often face barriers providing feedback, and city officials likewise face difficulties incorporating feedback in a meaningful and systematic way. This paper shares one innovative approach to capturing citizens’ stories about urban health concerns, developed by the Building Healthy Cities (BHC) project in 2 Asian cities (Indore, India, and Makassar, Indonesia). Using ethnographic methods, BHC developed “journey maps” as a monitoring tool to follow key service issues over time. Several urban health-related issues were identified in each city. For this paper, we focus on wastewater management, which was a serious health issue in both cities. Qualitative data were collected from citizens in one neighborhood and city officials quarterly starting in early 2018; these data were supplemented by city spending data, usage statistics, photos and news articles. In both cities, the journey maps captured notable changes during the first 2 years of the project. At the start of the journeys (2018), informal settlement citizens in Indore reported poor drainage which was compounded by trash, narrow roads blocking vehicular removal of waste, and unsafe infrastructure leading to waterborne diseases and injuries (including several child deaths). Likewise in Makassar, dirty water overflowed from open drains due to frequent flooding and garbage. Citizens reported exposure to diarrhea, dengue and skin symptoms due to the drains, which was confirmed by the local health post. By the end of Year 2 (2019), these journeys captured increasing dialogue between citizens and the city, which resulted in several improvements. In Indore, changes included garbage vans built for narrow streets and construction of a safer bridge. In Makassar, while they still suffer from seasonal flooding, the city has increased garbage pickup, included drainage activities in the village-level budgeting process, and a slum improvement project has pledged funding to improve drainage and street issues in 41 neighborhoods. Journey maps work on the premise that capturing a community’s experience and relaying it to government officials can bring about positive change. They also provide crucial grassroots level evidence to support more traditional research findings, which can lead to effective urban health solutions. As this work continues, BHC is training citizens to collect and share their own journeys.

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Empathy and journey mapping the healthcare experience: a community-based participatory approach to exploring women’s access to primary health services within Melbourne’s Arabic-speaking refugee communities

Cited by 10 publications

References 26 publications

What do women want? Migrant and refugee women’s preferences for the delivery of sexual and reproductive healthcare and information

What do women want? Migrant and refugee women’s preferences for the delivery of sexual and reproductive healthcare and information

Qualitative Systematic Literature Review: Participatory Visual Methods in Community Health Interventions With Migrants

Engaging Citizens Via Journey Maps to Address Urban Health Issues

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