Emotions related to participation restrictions as experienced by patients with early rheumatoid arthritis: a qualitative interview study (the Swedish TIRA project)

Östlund, Gunnel; Björk, Mathilda; Thyberg, Ingrid; Thyberg, Mikael; Valtersson, Eva; Stenström, B; Sverker, Annette

doi:10.1007/s10067-014-2667-2

Cited by 23 publications

(25 citation statements)

References 46 publications

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“…Those patients still able to work nonetheless experience participation restrictions in daily life , often as a result of their desire to work (Stamm et al, 2010), the struggle to find a good activity balance, fatigue (Feldthusen et al, 2013) or pain (Ahlstrand et al, 2011), all of which can cause patients to avoid certain activities. Socioeconomic and psychosocial problems, such as negative feelings, shame or guilt, might also be factors causing men to avoid disclosing RA-related difficulties, as found in earlier studies (Sokka et al, 2009;Gåfvels et al, 2012;Lack et al, 2011;Östlund et al, 2014).…”

Section: Discussionmentioning

confidence: 65%

“…Nowadays, patients’ experiences are recognized as important and are solicited in order to guide health professionals in further developing rehabilitative interventions to reduce disability and support self‐management (Stamm et al, ). A more open communication between staff and patients on the impact of RA on patients' health strategies has been highlighted as a mechanism to facilitate multi‐disciplinary interventions that provide care more closely matched to the actual difficulties experienced by individual patients (Östlund et al ). Earlier studies have indicated the need for further research investigating the possibility that men and women have different clinical needs (Flurey et al, ; Lack et al, ).…”

Section: Introductionmentioning

confidence: 99%

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The Use of Avoidance, Adjustment, Interaction and Acceptance Strategies to Handle Participation Restrictions Among Swedish Men with Early Rheumatoid Arthritis

Östlund

Thyberg

Valtersson

et al. 2016

Musculoskeletal Care

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According to men's lived experiences, a combination of strategies was used to deal with RA, depending on the situation and the experienced restriction. The results provided an understanding of how men with RA manage their disease, to reduce physical, social and emotional challenges. This knowledge may be used further to develop multi-professional interventions and patient education tailored to men with RA.

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Section: Discussionmentioning

confidence: 65%

Section: Introductionmentioning

confidence: 99%

The Use of Avoidance, Adjustment, Interaction and Acceptance Strategies to Handle Participation Restrictions Among Swedish Men with Early Rheumatoid Arthritis

Östlund

Thyberg

Valtersson

et al. 2016

Musculoskeletal Care

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“…Some patients were afraid of taking exercise in public places such as swimming pools because they thought that having RA made them more susceptible to infections [22,23].…”

Section: Fearsmentioning

confidence: 99%

Fears and beliefs of people living with rheumatoid arthritis: a systematic literature review

et al. 2018

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Objective: To assess the main fears and beliefs of people with rheumatoid arthritis (RA) and their effect on treatment outcomes; Methods: A systematic literature review was conducted in Pubmed/Medline; original articles published up to May 2017, reporting fears and/or beliefs of adult patients with RA were analyzed. Fears and beliefs were collected by two independent researchers and grouped into categories. Results: Among 474 references identified, 84 were analyzed, corresponding to 24,336 RA patients. Fears were reported in 38.4% of the articles (N = 32/84): most studies described fears related to pharmacological therapy (50.0%, N = 16/32) and fear of disability (28.1%, N = 9/32). Beliefs were reported in 88.0% of articles (N = 74/84) and were found to moderate the patient-perceived impact of RA in 44.6% (N = 33/74), mainly the emotional impact (18.9%, N = 14/74); measures of function, quality of life, fatigue and pain were also found to be affected by patients' beliefs in 8.1% (N = 6/74), 6.8% (N = 5/74), 2.7% (N = 2/74) and 2.7% (N = 2/74) of the articles, respectively. Beliefs about therapy were linked to adherence in 17.6% of articles (N = 13/74) and beliefs about cause of RA predicted coping patterns in 12

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“…The typical age of onset is 30-50 years (2,3), and the incidence rate is 2 to 3 times higher in women than in men (4). Coping with RA is extremely challenging, due to its physical, emotional, and socioeconomic impacts (5)(6)(7)(8)(9)(10)(11). Coping is defined as "cognitive and behavioral efforts to manage specific external and/or internal demands appraised as taxing or exceeding the resources of the individual" (12).…”

Section: Introductionmentioning

confidence: 99%

Development of Resilience Among Rheumatoid Arthritis Patients: A Qualitative Study

Shaw

Bradley²,

Zhang³

et al. 2020

Arthritis Care & Research

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Objective Resilience, the ability to recover from and adapt successfully to stressful situations, is a valuable resource for patients who live with chronic conditions. This qualitative study examines the development of resilience among rheumatoid arthritis (RA) patients. We aimed to describe the resilience development process and to describe strategies used by patients to cultivate resilience. Methods Our approach combined ethnographic data collection and narrative analysis methods. Semistructured interviews were conducted with adult RA patients in the US. Interviewees were asked to discuss their experiences with diagnosis, living with RA, coping with challenges, treatment, and health care providers. The interviews were audiorecorded, transcribed, and analyzed to describe the stages of resilience development and to identify patients’ strategies for building/maintaining resilience. Results Eighteen patients were interviewed, ages 27–80 years and with RA duration of 5–41 years. Patient responses to challenging situations were grouped into 3 stages: 1) lacking capacity to handle the situation, 2) struggling but growing in capacity to handle the situation, and 3) attaining mastery. Patients used 10 strategies to cultivate resilience: perseverance, exchanging social support, pursuing valued activities, flexibility, positive reframing, acceptance, humor, avoiding threatening thoughts, equanimity, and maintaining a sense of control. Conclusion RA patients acquire resilience in a dynamic process of learning in response to new challenges. Patients use a combination of behavioral and emotion management strategies to cultivate resilience. Awareness of these strategies may benefit patients, health care providers, and researchers developing behavioral interventions and social support programs in the context of RA and other chronic diseases.

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Emotions related to participation restrictions as experienced by patients with early rheumatoid arthritis: a qualitative interview study (the Swedish TIRA project)

Abstract: Background: Psychological distress is a well-known complication in rheumatoid arthritis (RA), but knowledge regarding emotions, and their relationship to participation restrictions, is scarce.

Cited by 23 publications

References 46 publications

The Use of Avoidance, Adjustment, Interaction and Acceptance Strategies to Handle Participation Restrictions Among Swedish Men with Early Rheumatoid Arthritis

The Use of Avoidance, Adjustment, Interaction and Acceptance Strategies to Handle Participation Restrictions Among Swedish Men with Early Rheumatoid Arthritis

Fears and beliefs of people living with rheumatoid arthritis: a systematic literature review

Development of Resilience Among Rheumatoid Arthritis Patients: A Qualitative Study

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