Emotional Support for Diabetes Management

Kowitt, Sarah D.; Urlaub, Diana M.; Guzman-Corrales, Laura; Mayer, Melissa; Ballesteros, Juana; Graffy, Jonathan; Simmons, David; Cummings, Doyle M.; Fisher, Edwin B.

doi:10.1177/0145721715574729

Cited by 29 publications

(16 citation statements)

References 41 publications

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“…This appeared to be important for all participants, particularly those who experienced persistent negative emotions after diagnosis. Open communication and genuine support are considered critical for building relationships with patients with T2DM, and the way this is displayed is influenced by a health professional's own personality and the emotions they are experiencing (Kowitt et al, 2015). Similar factors that influence patients' experiences of health care have been identified in other Australian population groups, such as new mothers, where their perceptions of their health care quality were reduced when they felt unsupported and hurried in consultations (Corr et al, 2015).…”

Section: Discussionmentioning

confidence: 86%

Understanding the nutrition care needs of patients newly diagnosed with type 2 diabetes: a need for open communication and patient-focussed consultations

Ball

Davmor

Leveritt

et al. 2016

Aust. J. Prim. Health

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Patients who are newly diagnosed with type 2 diabetes mellitus (T2DM) commonly attempt to modify their dietary intake after receiving nutrition care from primary health professionals. Yet, adherence to dietary recommendations is rarely sustained and factors influencing adherence are poorly understood. This study explored T2DM patients' experiences of dietary change and their views on how primary health professionals can best support long-term maintenance of dietary change. A purposive sample of 10 individuals recently diagnosed with T2DM participated in three individual semi-structured qualitative telephone interviews: at baseline, then at 3 and 6 months after recruitment. Interview questions were modified from the initial interview in order to investigate emerging findings. A two-step data analysis process occurred through content analysis of individual interviews and meta-synthesis of findings over time. Participants initially made wide-ranging attempts to improve dietary behaviours, but most experienced negative emotions from the restraint required to maintain a healthy diet. Participants felt confused by the conflicting advice received from health professionals and other sources such as friends, family, internet and diabetes organisations. Participants frequently reported feeling rushed and not heard in consultations, resulting in limited ongoing engagement with primary healthcare services. These findings suggest that there is opportunity for primary health professionals to enhance the dietary support provided to patients by: acknowledging the challenges of sustained improvements in dietary intake; open communication; and investing in patient relationships through more patient-focussed consultations.

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Section: Discussionmentioning

confidence: 86%

Understanding the nutrition care needs of patients newly diagnosed with type 2 diabetes: a need for open communication and patient-focussed consultations

Ball

Davmor

Leveritt

et al. 2016

Aust. J. Prim. Health

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“…The distress surrounding pain and symptom management and death and dying are significant issues that impact both cancer patients and their families [51]. Hence, the potential contribution of PS for those with advanced cancer and their families or friends would seem to be substantial, especially given observations of the central contribution of emotional support from PS even when it is not an emphasized part of protocols [25,52]. Opportunities for PS in palliative and end-of-life care could include a) attention to end-of-life issues that otherwise may be avoided until loss is imminent, b) support for family members coming to terms with loved ones’ worsening health, and c) PS for establishing relationships with palliative care providers soon after diagnosis that continue throughout the course of disease.…”

Section: Discussionmentioning

confidence: 99%

Peer support opportunities across the cancer care continuum: a systematic scoping review of recent peer-reviewed literature

Kowitt

Ellis

Carlisle

et al. 2018

Support Care Cancer

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Objective: Evidence suggests peer support (PS) is as an effective strategy for enhancing prevention and control of chronic and infectious diseases, including cancer. This systematic scoping review examines the range and variety of interventions on the use of PS across the cancer care continuum. Method: We used a broad definition of PS to capture a wide-range of interventions and characterize the current status of the field. Literature searches were conducted using PubMed, SCOPUS, and CINAHL to identify relevant articles published from January 2011 – June 2016. We screened the title and abstracts of 2087 articles, followed by full-text screening of 420 articles, resulting in a final sample of 242 articles of which the most recent 100 articles were reviewed (published June 2014 – May 2016). Results: A number of the recent intervention studies focused on breast cancer (32%, breast cancer only) or multiple cancer sites (23%). Although the interventions spanned all phases of the cancer care continuum, only 2% targeted end-of-life care. Seventy-six percent focused on clinical outcomes (e.g., screening, treatment adherence) and 72% on reducing health disparities. Interventions were primarily phone-based (44%) or delivered in a clinic setting (44%). Only a few studies (22%) described the impact of providing PS on peer supporters. Conclusion: PS appears to be a widely used approach to address needs across the cancer care continuum, with many opportunities to expand its reach.

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“…The perceived degree of empathy felt during a consultation is critical for building relationships with patients. 36 , 37 Empathy is complex and can be described as a caregiver understanding the private world of the client to gain insight into their situation without judgment. 38 The way it is displayed can be influenced by an individual’s personality and his or her own experienced emotions.…”

Section: Discussionmentioning

confidence: 99%

“I wish they could be in my shoes”: patients’ insights into tertiary health care for type 2 diabetes mellitus

Cotugno¹,

Ferguson²,

Harden³

et al. 2015

PPA

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BackgroundInsightful accounts of patient experience within a health care system can be valuable for facilitating improvements in service delivery.ObjectiveThe aim of this study was to explore patients’ perceptions and experiences regarding a tertiary hospital Diabetes and Endocrinology outpatient service for the management of type 2 diabetes mellitus (T2DM).MethodNine patients participated in discovery interviews with an independent trained facilitator. Patients’ stories were synthesized thematically using a constant comparative approach.ResultsThree major themes were identified from the patients’ stories: 1) understanding T2DM and diabetes management with subthemes highlighting that specialist care is highly valued by patients who experience a significant burden of diabetes on daily life and who may have low health literacy and low self confidence; 2) relationships with practitioners were viewed critical and perceived lack of empathy impacted the effectiveness of care; and 3) impact of health care systems on service delivery with lack of continuity of care relating to the tertiary hospital model and limitations with appointment bookings negatively impacting on patient experience.DiscussionThe patients’ stories suggest that the expectation of establishing a productive, ongoing relationship with practitioners is highly valued. Tertiary clinics for T2DM are well placed to incorporate novel technological approaches for monitoring and follow-up, which may overcome many of the perceived barriers of traditional service delivery.ConclusionInvesting in strategies that promote patient–practitioner relationships may enhance effectiveness of treatment for T2DM by meeting patient expectations of personalized care. Future changes in service delivery would benefit from incorporating patients as key stakeholders in service evaluation.

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Emotional Support for Diabetes Management

Abstract: Across different settings and populations, emotional support for diabetes management evolved over time, was often integrated with informational support, and emerged through both implicit and explicit strategies that addressed varied context-specific stressors.

Cited by 29 publications

References 41 publications

Understanding the nutrition care needs of patients newly diagnosed with type 2 diabetes: a need for open communication and patient-focussed consultations

Understanding the nutrition care needs of patients newly diagnosed with type 2 diabetes: a need for open communication and patient-focussed consultations

Peer support opportunities across the cancer care continuum: a systematic scoping review of recent peer-reviewed literature

“I wish they could be in my shoes”: patients’ insights into tertiary health care for type 2 diabetes mellitus

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Emotional Support for Diabetes Management

Abstract: Across different settings and populations, emotional support for diabetes management evolved over time, was often integrated with informational support, and emerged through both implicit and explicit strategies that addressed varied context-specific stressors.

Cited by 29 publications

References 41 publications

Understanding the nutrition care needs of patients newly diagnosed with type 2 diabetes: a need for open communication and patient-focussed consultations

Understanding the nutrition care needs of patients newly diagnosed with type 2 diabetes: a need for open communication and patient-focussed consultations

Peer support opportunities across the cancer care continuum: a systematic scoping review of recent peer-reviewed literature

&ldquo;I wish they could be in my shoes&rdquo;: patients&rsquo; insights into tertiary health care for type 2 diabetes mellitus

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“I wish they could be in my shoes”: patients’ insights into tertiary health care for type 2 diabetes mellitus