Emotional distress in family caregivers of adolescents with bronchial asthma: analysis of its predictors

Valero‐Moreno, Selene; Pérez-Marín, Marián; Montoya‐Castilla, Inmaculada; Castillo‐Corullón, Silvia; Ramírez-Aguilar, Alvar; Escribano-Montaner, Amparo

doi:10.5546/aap.2018.eng.e234

Cited by 9 publications

(11 citation statements)

References 4 publications

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“…On the other hand, certain pediatric diseases are shown to be associated with severe anxiety and even depression in parents. For example, parents of adolescents with bronchial asthma developed anxiety symptoms in 35% of the families, and an anxiety disorder was found in 14% by using HADS (Valero-Moreno et al, 2018). Moreover, the probability of depression was reported to be approximately 4% in the same group of parents.…”

Section: Discussionmentioning

confidence: 99%

Pediatric and Maternal Anxiety at First Visit to a Turkish Gastroenterology Clinic Compared to Anxiety Prior to Pediatric Endoscopy Procedure

Cam¹

2021

Gastroenterology Nursing

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Pediatric gastroenterology as a separate subspecialty began to emerge in the 1960s in Europe, and children are usually referred to an outpatient pediatric gastroenterology clinic by their family pediatricians when necessary. Pediatric gastroenterology deals with the diagnosis and treatment of diseases of the digestive tract and/or liver of children from newborn until 18 years of age. Gastrointestinal problems in children are quite different from those of adults not only in presentation but also in types of diseases. These subspecialists almost routinely see patients who are referred by their own pediatricians or family physicians.admission to a subspecialist may provoke some sort of anxiety for both children and their parents. There are no data on the assessment of anxiety at pediatric gastroenterology admission. However, it was clearly shown in the literature that endoscopy in the pediatric population causes significant anxiety in both children and parents. a comparison of the anxiety of children and parents at first visit to a pediatric gastroenterology clinic with anxiety before endoscopic investigations would be interesting. Consequently, the ones with higher anxiety may require additional preparation by the stuff including both the physician and the nurse to overcome anxiety. On the other hand, pediatric endoscopy has become an almost routine invasive procedure for pediatric gastroenterologists (Gilger, 2001). Currently, endoscopic investigations constitute a major workload for these physicians (Friedt & Welsch, 2013).

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Section: Discussionmentioning

confidence: 99%

Pediatric and Maternal Anxiety at First Visit to a Turkish Gastroenterology Clinic Compared to Anxiety Prior to Pediatric Endoscopy Procedure

Cam¹

2021

Gastroenterology Nursing

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“…Se creó una entrevista semiestructurada de 55 preguntas, para llevar a cabo la presente investigación. La entrevista fue elaborada teniendo en cuenta las diferentes dimensiones propuestas en la literatura alrededor del cuidado informal y la perspectiva de género, a saber: perfil de las personas cuidadoras, impacto de los cuidados en la vida familiar, la estructura de género como proveedora de ayuda y apoyo en los cuidados, el rol tradicional de la mujer cuidadora, tareas domésticas y de cuidados ejercidas por mujeres, el trabajo de atención como un trabajo de género, aprendizaje de los cuidados, la voluntad de cuidar bien, compromiso, idoneidad del cuidado, las dificultades del cuidado, salud física y emocional de las cuidadoras, sobrecarga, estrés, impacto laboral del cuidado aislamiento social (Bremer et al, 2011;Casademont, 2018;Casaña-Granell et al, 2018;Cheix et al, 2015;Estrada et al, 2018;Fernández, 2018;LuÈdecke et al, 2018;Moral-Fernández et al, 2017;Peterson, 2015;Ransmayr et al, 2018;Tomás et al, 2019;Unson, Flynn, Haymes, Sancho, y Glendon, 2016;Valero-Moreno et al, 2018). Por lo tanto, las dimensiones de la entrevista y su contenido se pueden consultar en la Tabla 1.…”

Section: Medicionesunclassified

“…Por lo que respecta al impacto físico y emocional reconocido, nuestras cuidadoras aseguran sentirse preocupadas, estresadas y sobrecargadas física y emocionalmente. Además, la mayoría no siente el apoyo informal y formal necesario por parte de otros, teniendo graves conflictos familiares y disminuyendo sus interacciones positivas con la familia y amigos (Bremer et al, 2011;Casademont, 2018;Casaña-Granell et al, 2018;Cheix et al, 2015;Estrada et al, 2018;Fernández, 2018;LuÈdecke et al, 2018;Moral-Fernández et al, 2017;Peterson, 2015;Ransmayr et al, 2018;Tomás et al, 2019;Unson et al, 2016;Valero-Moreno et al, 2018). Este aspecto es de notable importancia, puesto que la literatura ha señalado que la disminución del apoyo social se asocia estrechamente con una mayor tasa de enfermedades físicas y mentales, y con ello, con una mayor mortalidad (Lacomba-Trejo, Valero-Moreno, Mateu-Mollá, Sanz-Cruces y García-Cuenca, 2016;Mateu-Mollá, Lacomba-Trejo, y Valero-Moreno, 2015).…”

Section: Conclusionesunclassified

Levantando la voz: las cuidadoras en el hogar de personas en situación de dependencia. [Speakin out loud: women as caretakers of dependent people at home]

Cortés Martínez,

Lacomba-Trejo,

Pérez-Marín

2029

Trabajo Social Hoy

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Resumen: El cuidado de personas en situación de dependencia ha recaído habitualmente en las mujeres, siendo este factor muy relevante en la pérdida de salud física y emocional, en la afectación de las relaciones sociales y familiares, y en la disminución de las posibilidades de mantener un trabajo remunerado y con ello, de los ingresos. El objetivo de nuestro estudio es entrevistar a cuidadoras de personas con dependencia para conocer el impacto del cuidado en sus vidas. Nuestros datos muestran una gran afectación personal, económica y social de estas cuidadoras, así como la necesidad de atenderlas socialmente.Palabras clave: Cuidadoras, Personas con dependencia, Impacto socioeconómico, Salud mental, Salud física.Abstract: Women are usually responsable for the care of dependent, being this factor very relevant in the loss of physical and emotional health, in the affectation of the social and family relations, and in the decrease of the possibilities of maintaining a remunerated work and therefore of the income. The aim of our study is to interview caretakers of dependent people to find out about the impact of care in their lives. Our data show a great personal, economic and social affectation of these caretakers, as well as the need to attend them socially.

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“…IGHD and ISS are not life-threatening diagnoses for children but can still lead to an impaired health-related quality of life (HRQOL) and effect the well-being of the short-statured children, their caregivers, and even the whole family (4,(10)(11)(12).…”

Section: Introductionmentioning

confidence: 99%

Caregiving burden and special needs of parents in the care of their short-statured children – a qualitative approach

Lackner

Quitmann²,

Witt³

2023

Front. Endocrinol.

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PurposeTo explore caregiving burden, health-related quality of life (HRQOL), stress, and individual resources of parents in the care of children with isolated growth hormone deficiency (IGHD) or idiopathic short stature (ISS).MethodsFocused interview analysis of previously, within the Quality of Life in Short Stature Youth (QoLISSY) project, conducted structured focus group discussions (n=7) with parents (n=33) of children with IGHD/ISS aged 4 to 18 years were performed.Results26 out of the 33 parents reported mental stress due to their child’s growth disorder. Social pressure and stigmatization were also mentioned as being demanding. Some parents reported having trouble with human growth hormone (hGH) treatment. Several parents wished for parent support groups with other like-minded parents of short-statured children.ConclusionFor physicians, it is essential to understand the parents’ caregiving burden, stress, and individual resources in caring for IGHD/ISS children. If an impaired HRQOL is detected, psychological intervention for these parents may be scheduled, and coping mechanisms may be discussed. Furthermore, it seems essential for parents to be educated by their healthcare provider about the possible side effects of hGH treatment or to know where to find evidence-based information about it.

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Emotional distress in family caregivers of adolescents with bronchial asthma: analysis of its predictors

Cited by 9 publications

References 4 publications

Pediatric and Maternal Anxiety at First Visit to a Turkish Gastroenterology Clinic Compared to Anxiety Prior to Pediatric Endoscopy Procedure

Pediatric and Maternal Anxiety at First Visit to a Turkish Gastroenterology Clinic Compared to Anxiety Prior to Pediatric Endoscopy Procedure

Levantando la voz: las cuidadoras en el hogar de personas en situación de dependencia. [Speakin out loud: women as caretakers of dependent people at home]

Caregiving burden and special needs of parents in the care of their short-statured children – a qualitative approach

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