Emotional and behavioural adjustment in siblings of children with intellectual disability with and without autism

Petalas, Michael A.; Hastings, Richard P.; Nash, Susan M.; Lloyd, Tracey; Dowey, Alan

doi:10.1177/1362361309335721

Cited by 90 publications

(72 citation statements)

References 38 publications

(71 reference statements)

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“…That is, ASD siblings scored higher on the emotional problems scale of the CDI-2; scores on the functional problems scale, while higher in siblings of children with ASD, approached, but failed to reach statistical significance. These findings are commensurate with several recent studies, in which depression and other psychological markers such as emotional problems and internalising behaviours were found to be higher in the context of having a brother/sister with ASD (Lobato et al, 2011;Petalas et al, 2009). These findings also resonate with those from a recent meta analysis, in which siblings of children with DD, including ASD, reported higher levels of depressive symptoms compared to a control group (Vermaes et al, 2012).…”

Section: Discussionsupporting

confidence: 80%

“…Relative to normative controls, siblings of children with a DD such as ASD have been found to report higher levels of separation anxiety (Lobato et al, 2011), emotional problems (Petalas, Hastings, Nash, Lloyd, & Dowey, 2009) and internalising behaviours (Fisman, Wolf, Ellison, & Freeman, 2000). Findings from a review paper (Barlow & Ellard, 2006) and recent meta analysis (Vermaes, van Susante, & van Bakel, 2012) also suggested that siblings of children with a DD might be at greater risk for psychological adjustment difficulties, with internalising behaviours and depressive symptoms found to be higher when compared with a control group.…”

Section: Introductionmentioning

confidence: 92%

“…For example, family characteristics such as socioeconomic status (Macks & Reeve, 2007;Petalas et al, 2009), family size (Kaminsky & Dewey, 2002;Labay & Walco, 2004) and parental stress (Giallo & Gavidia-Payne, 2006) have been shown to predict emotional and internalising problems in siblings of children with a DD. In addition, research has shown that siblings' psychological well being is, at least in part, affected by characteristics of their disabled brother/sister, especially their behavioural problems.…”

Section: Introductionmentioning

confidence: 99%

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The psychophysiological impact of childhood autism spectrum disorder on siblings

Lovell

Wetherell

2016

Research in Developmental Disabilities

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Objective: The negative impact of caring for a child with autism spectrum disorder (ASD) on parents' psychophysiological functioning has been widely evidenced. However, siblings, who also face emotional, social and physical challenges associated with having a brother/sister with ASD, have been less widely studied. This study examined the psychophysiological impact of childhood ASD on Siblings of children with ASD experience greater emotional problems and overall depressive symptoms compared with a control group. Interventions that enhance social support, as well as helping siblings better understand the behaviour problems of their brother/sister with ASD, might be effective for alleviating depressive symptoms.

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Section: Discussionsupporting

confidence: 80%

Section: Introductionmentioning

confidence: 92%

Section: Introductionmentioning

confidence: 99%

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The psychophysiological impact of childhood autism spectrum disorder on siblings

Lovell

Wetherell

2016

Research in Developmental Disabilities

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“…This is supported by reports that siblings of individuals with intellectual disability without ASD were emotionally and behaviourally better adjusted than those siblings of individuals with intellectual disability and comorbid ASD [29]. This supports the notion that autism contributes to environmental stress that a sibling needs to adapt to, that it produces a unique set of circumstances for the sibling to navigate, and that autism specific studies, in the midst of such mixed results, need to become more prevalent in addition to disability studies.…”

Section: Discussionmentioning

confidence: 53%

The Well-Being of Siblings of Individuals with Autism

Green

2013

ISRN Neurology

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Objective. The purpose of this review of the literature was to summarise studies regarding the psychosocial impact of growing up with a sibling with autism and to identify gaps in the related literature. Methods. Electronic databases were reviewed in order to critically appraise the 14 articles relevant to the topic. The search included a combination of the following key words: autism∗, quality of life, well-being, sibling∗, ASD, ASD sibling∗, family, adjust∗, psychological functioning. Results. The majority of studies involved mixed children and adolescent samples, leading to confounding results and an inability to draw accurate conclusions about these distinct life stages. Autism appears to contribute to unique environmental stressors for the typically developing sibling. When experienced in the context of additional demographic risk factors, these stressors can result in difficulties adjusting to the demands of a special-needs child. Despite some vulnerability to behavioural and emotional dysfunction in at-risk children, siblings have the potential to not only adjust but to thrive in the face of disability adversity. Conclusion. Growing up with a sibling with autism appears to manifest in both positive and negative outcomes for siblings, depending upon important demographical, family, and individual variables.

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“…Some find no such differences in levels of problems [13], and indeed, some studies suggest that siblings of children with autism are better adjusted than comparison groups of children [14]. Second, even when there are suggestions of negative impact on siblings, the numbers of siblings with concerning levels of behavioural and emotional problems are often very small [15]. Thus, negative impact on siblings’ own adjustment is not universal.…”

Section: ‘Outcomes’ For Siblings Of Children With Autism—what Do We Kmentioning

confidence: 99%

Siblings of Children with Autism: the Siblings Embedded Systems Framework

Kovshoff

Cebula

Tsai

et al. 2017

Curr Dev Disord Rep

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Purpose of ReviewA range of interacting factors/mechanisms at the individual, family, and wider systems levels influences siblings living in families where one sibling has autism. We introduce the Sibling Embedded Systems Framework which aims to contextualise siblings’ experience and characterise the multiple and interacting factors influencing family and, in particular, sibling outcomes.Recent FindingsFindings from studies that have reported outcomes for siblings of children with autism are equivocal, ranging from negative impact, no difference, to positive experience. This is likely due to the complex nature of understanding the sibling experience. We focus on particular elements of the framework and review recent novel literature to help guide future directions for research and practice including the influence of culture, methodological considerations, and wider participatory methods.SummaryThe Siblings Embedded System Framework can be used to understand interactive factors that affect sibling adjustment and to develop clinically, educationally and empirically based work that aims to enhance and support sibling adjustment, relationships, and well-being in families of children with autism.

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Emotional and behavioural adjustment in siblings of children with intellectual disability with and without autism

Cited by 90 publications

References 38 publications

The psychophysiological impact of childhood autism spectrum disorder on siblings

The psychophysiological impact of childhood autism spectrum disorder on siblings

The Well-Being of Siblings of Individuals with Autism

Siblings of Children with Autism: the Siblings Embedded Systems Framework

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