Emotion work in the palliative nursing care of children and young people

Abstract

The nurse's role in supporting and caring for children and young people with life-limiting illness/conditions and their families requires specialist expertise. This domain can be one of the most emotionally challenging areas of practice. The concept of time, and how long practitioners are involved with individual children and their families may sometimes be underestimated. Emotion work is defined as the work involved in managing feelings in both self and others (Hochschild, 1983). The sense of community within the clinical setting can facilitate the nurse to care and maintain professional boundaries.

The provision of end-of-life care by medical-surgical nurses working in acute care: A literature review

“…Emotional labor is defined “as a “deep acting,” where a personal exchange takes place and the healthcare professional connects with the patient to feel the emotion that they wish to display” (Sorensen & Iedema, 2009, p. 7). It also involves “managing feelings in both self and others” (Maunder, 2006, p. 28) and is known to exert considerable demands on nurses (Davenport & Hall, 2011; Stayt, 2009; Summer & Townsend-Rocchiccioli, 2003).…”

An Australian investigation of emotional work, emotional well‐being and professional practice: an emancipatory inquiry

“…1998, Wilkes & Beale 2001). Maunder (2006, p. 30) believed ‘the expertise required in managing symptoms and providing a family‐centred approach to care is considerable, but often underestimated’.…”

Reporting of pediatric palliative care: A systematic review and quantitative analysis of research publications in palliative care journals

“…Individually, AJHPC had 16 articles,[20–35] BMCPC had 0 article, COSPC had 0 article, IJPC had 3 articles,[36–38] IJPN had 12 articles,[39–50] JHPN had 1 article,[51] JPC had 11 articles,[52–62] JPM had 35 articles,[63–97] JPPCP had 1 article,[98] JSWELPC had 5 articles,[99–103] PM had 9 articles,[104–112] and PSC had 4 articles[113–116] on “pediatric palliative care.” Also refer to Table 1 for respective reporting rates for journals and Figure 3 for the comparison of number of “pediatric” articles and “nonpediatric” articles between the journals.…”

“…Of the total 97 articles on pediatric palliative care, there were 55 articles on clinicalpractice,[2022293335–404244–5052535557596063–6870747577808183–869295–100103106–110,112113] 8 articles on education,[30697376878890114] 7 articles on research,[2428435661104105] and 27 articles on administration. [212325–273132344151545862717278798289919394101102111115116] The relative reporting prevalence for the four categories is provided in Figure 5.…”