Abstract:The concept of the "whole community" involves including everyone in the community in preparing for emergencies, including members of often-overlooked groups. Deaf people who sign are one example of this type of group. An innovative model based on the whole community approach, Emergency Preparedness with People Who Sign (EPPS), is introduced in this article. This model focuses on members of the deaf community directly training first responders using a variety of techniques for effective communication and cultur… Show more
“…This is consistent with the "whole community" approach to emergency preparedness, the existing literature about the role of these professionals in emergency preparedness, and the need for interconnectedness between their elds. [24][25][26] Building on growing awareness of emergency preparedness and increased connection between providers and public safety, education and training could take place across these groups, for providers about how to discuss emergency preparedness with their clients, and for public safety professionals about interacting with and the emergency preparedness needs of children with disabilities and chronically health conditions and their families. Finally, interviews with providers, public safety professionals, and advocacy organization leaders highlighted how institutional support of family-centered emergency preparedness is necessary to provide the time, resources, and framework for interprofessional collaborative emergency preparedness discussions.…”
Section: Discussionmentioning
confidence: 99%
“…24 Speci cally, the whole community approach means understanding the needs of oftenoverlooked community members such as children with disabilities and their families, as well as considering all community members' strengths in terms of how they can help build community resilience to emergencies. 25,26 The whole community approach also advocates for formal networking, including collaboration between government agencies, members of non-pro t organizations, health care providers, public safety, and other relevant professionals. 24 Previous studies have examined the role of occupational therapists, 27 social workers 28 nurses, 29,30 public health and safety professionals, 12,31 and non-pro t advocacy groups 24,32 in emergency preparedness.…”
BACKGROUND
Children with disabilities and their families are at higher risk during emergencies and disasters, which is often attributed to the lack of disability inclusion in emergency response as well as disparities in preparedness. This disparity speaks to a need for emergency preparedness that centers children with disabilities and their families. The goal of this study was to provide recommendations for practice and policy to better support family-centered emergency preparedness inclusive of children who have disabilities, with the ultimate objective of improving safety outcomes for children with disabilities and their families in emergency situations.
METHODS
This study consisted of 46 qualitative interviews with nurses, occupational therapists, social workers, public safety professionals, and advocacy organization representatives about their role in emergency preparedness for families of children with disabilities. Qualitative content analysis was used to identify themes from participants’ responses.
RESULTS
Participants expressed interest in family-centered emergency preparedness, and stated that greater awareness, more education and training, increased networking between professions, and institutional support would enable their involvement.
CONCLUSIONS
These findings have implications for the importance of interprofessional collaboration in supporting family-centered emergency preparedness for families of children with disabilities. Stronger interprofessional networks would help overcome many of the barriers identified by participants, and advocacy groups appear to be well-positioned to bridge the gap between these professionals and their areas of expertise.
“…This is consistent with the "whole community" approach to emergency preparedness, the existing literature about the role of these professionals in emergency preparedness, and the need for interconnectedness between their elds. [24][25][26] Building on growing awareness of emergency preparedness and increased connection between providers and public safety, education and training could take place across these groups, for providers about how to discuss emergency preparedness with their clients, and for public safety professionals about interacting with and the emergency preparedness needs of children with disabilities and chronically health conditions and their families. Finally, interviews with providers, public safety professionals, and advocacy organization leaders highlighted how institutional support of family-centered emergency preparedness is necessary to provide the time, resources, and framework for interprofessional collaborative emergency preparedness discussions.…”
Section: Discussionmentioning
confidence: 99%
“…24 Speci cally, the whole community approach means understanding the needs of oftenoverlooked community members such as children with disabilities and their families, as well as considering all community members' strengths in terms of how they can help build community resilience to emergencies. 25,26 The whole community approach also advocates for formal networking, including collaboration between government agencies, members of non-pro t organizations, health care providers, public safety, and other relevant professionals. 24 Previous studies have examined the role of occupational therapists, 27 social workers 28 nurses, 29,30 public health and safety professionals, 12,31 and non-pro t advocacy groups 24,32 in emergency preparedness.…”
BACKGROUND
Children with disabilities and their families are at higher risk during emergencies and disasters, which is often attributed to the lack of disability inclusion in emergency response as well as disparities in preparedness. This disparity speaks to a need for emergency preparedness that centers children with disabilities and their families. The goal of this study was to provide recommendations for practice and policy to better support family-centered emergency preparedness inclusive of children who have disabilities, with the ultimate objective of improving safety outcomes for children with disabilities and their families in emergency situations.
METHODS
This study consisted of 46 qualitative interviews with nurses, occupational therapists, social workers, public safety professionals, and advocacy organization representatives about their role in emergency preparedness for families of children with disabilities. Qualitative content analysis was used to identify themes from participants’ responses.
RESULTS
Participants expressed interest in family-centered emergency preparedness, and stated that greater awareness, more education and training, increased networking between professions, and institutional support would enable their involvement.
CONCLUSIONS
These findings have implications for the importance of interprofessional collaboration in supporting family-centered emergency preparedness for families of children with disabilities. Stronger interprofessional networks would help overcome many of the barriers identified by participants, and advocacy groups appear to be well-positioned to bridge the gap between these professionals and their areas of expertise.
“…Deaf and hard of hearing populations also have poorer health literacy [11] due to limited learning opportunities and inaccessible health-related materials. Many diverse groups are disadvantaged because of assumptions around health literacy that may relate to English not being a first language, ability to read and write, which in turn impacts on a person’s ability to understand healthcare and pharmacy directions and information [12]. Knowledge of Signed language or the use of telecommunication equipment, such as Sign language relay services is not prevalent in health providers [13].…”
Deaf awareness aims to promote understanding about Deaf and hard of hearing people, with the goal of reducing barriers between Deaf and hearing populations; and is particularly pertinent for health professional students as they need to learn to communicate effectively with a range of population groups. This scoping review aims to provide an overview of literature examining Deaf awareness programs provided to health professional students during their initial training. We searched four medical and public health databases and registers using terms related to Deaf awareness. We used the PRISMA-ScR reporting standards checklist for scoping reviews. We identified 10,198 citations, with 15 studies included in the final review. Searches were performed during August to September 2022, and April 2023. Studies were included provided they examined Deaf awareness content or programs within health professional education. Data were extracted by two independent reviewers who screened all abstracts using Rayyan software, followed by discussion to achieve knowledge synthesis and agreement. In all, a total of 15 articles from six countries were identified across health professional student disciplines including pharmacy, nursing, audiology, inter-professional and medical programs. The review found sparse evidence of research into Deaf awareness programs delivered to health professional students, with delivery often solely to small groups of students, indicating why so few students can access information about how to communicate effectively with Deaf and hard of hearing patients during their initial training programs. This scoping reviewed showed evidence of promising benefits for health professional students undertaking Deaf and hard of hearing awareness programs during their undergraduate education. The importance of communicating with Deaf and hard of hearing patients and attaining Deaf cultural competencies for health professional students should be investigated in future research.
“…Cultural humility of the Deaf has also been assessed among internists, 25,26 genetic counselors, 27 other samples of medical students, 28,29 and other professions, such as police officers. [30][31][32] However, these have yet to be assessed among those most directly involved in hearing care-otolaryngologists and audiologists.…”
Objective: The Deaf community is an ethnolinguistic minority group. Low sensitivity to Deaf culture contributes to health disparities among Deaf patients. This study determines the level of sensitivity to Deaf culture among otolaryngology-head and neck surgery (OHNS) and audiology trainees. Methods: Cross-sectional survey study of OHNS and audiology trainees from 10 large US institutions. Trainees were queried on their exposure to and comfort with Deaf patients and their education on, attitude toward, and awareness and knowledge of Deaf culture. Sensitivity to Deaf culture was operationalized as awareness and knowledge of Deaf culture. These were assessed using a 35-item instrument that was previously developed using a d/Deaf community-based participatory approach to research. We used T-tests to compare the sample to previous samples of medical students with training in Deaf culture (MS-TDCs) and general practitioners (GPs). Results: There were 91 completed surveys (response rate 44.5%). Almost all were aware of Deaf culture (97.8%). The mean knowledge score was 55.0% (standard deviation (SD) 13.4%), which was significantly higher than that for GPs at 43.0% (SD 15.0%) (95% confidence interval 8.1%, 15.8%, P < .0001) but significantly lower than that for MS-TDCs at 69.0% (SD 13.0%)(CI −20.3%, −7.6%, P < .0001). Knowledge scores were comparable for OHNS and audiology trainees ( P = .09). Conclusion: This sample of OHNS and audiology trainees was more sensitive to Deaf culture than GPs but less sensitive than MS-TDCs. Developing specialty-specific education may be warranted. Level of evidence: 4.
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