Eight Years of Building Community Partnerships and Trust: The UCLA Family Medicine Community-Based Participatory Research Experience

Moreno, Gerardo; Rodríguez, Michael; Lopez, Glenn A.; Bholat, Michelle A.; Dowling, Patrick T.

doi:10.1097/acm.0b013e3181b6c16a

Cited by 50 publications

(49 citation statements)

References 17 publications

(16 reference statements)

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“…Researchers that participated in the analysis have training in Medicine, Sociology, 28 community research, 29 Public Health, Geriatrics, Gerontology, and Health Services. ATLAS.ti software was used to organize the data.…”

Section: Methodsmentioning

confidence: 99%

Perceptions from Latino and African American Older Adults about Biological Markers in Research

Moreno

Mangione²,

Meza

et al. 2015

Ethn Dis

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Although older adult minorities face disparities in health and health care, they continue to be underrepresented in health research. Studies with biological makers of health often lack representation of older minority adults. The purpose of this study was to describe perceptions of biomarkers among ethnic minority seniors that might participate in studies of biological markers of health and to document barriers and facilitators to acceptance of biomarkers. Six focus groups (3 of Spanish-speaking Latinos and 3 of African-Americans) were conducted in three community senior service organizations (2 senior centers and one church). Ten semi-structured interviews were conducted to support and augment focus group data. Seventy-two community-dwelling minority older adults 62 years and older and 10 community stakeholders participated. A community-based partnered research approach was used and 2 community partners participated in the analysis and interpretation of results. Standard qualitative content-analysis methods were used to identify and organize themes in domains. Focus group participants were 49% Latino and 51% African-American. Results included the following barriers: 1) mistrust, 2) fear of specimen collection/storage, 3) perceived harms, 4) competing demands, and 5) costs. Older Latinos cited issues of language as barriers to awareness and acceptance of biomarkers. African-Americans had concerns over perceived harms of biomarkers. Facilitators to acceptance of biomarkers were community engagement through church and community leaders. Older Latino and African-Americans identified many barriers and facilitators to the collection and storage of biomarkers. Participants identified community-partnered recommendations to overcome barriers to the acceptance, collection, and storage of biomarkers.

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Section: Methodsmentioning

confidence: 99%

Perceptions from Latino and African American Older Adults about Biological Markers in Research

Moreno

Mangione²,

Meza

et al. 2015

Ethn Dis

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show abstract

“…[34][35][36] However, our findings suggest that the trust established through traditional approaches will be tenuous at best if both parties are ignoring the primary challenge of survival that each faces. Accordingly, we have adopted an approach called promoting empathy through transparency, in which we address survival challenges at the beginning and throughout the partnership.…”

Section: Current and Future Workmentioning

confidence: 56%

Capacity Needs in Community-Based Organizations for Enhancing Translational Research in Puerto Rico

Martínez¹,

Sardiñas²,

Acosta‐Pérez³

et al. 2014

cpr

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“…34-36 However, our findings suggest that the trust established through traditional approaches will be tenuous at best if both parties are ignoring the primary challenge of survival that each faces. Accordingly, we have adopted an approach called promoting empathy through transparency , in which we address survival challenges at the beginning and throughout the partnership.…”

Section: Current and Future Workmentioning

confidence: 84%

Capacity Needs in Community-Based Organizations for Enhancing Translational Research in Puerto Rico

Martínez¹,

Sardiñas²,

Acosta‐Pérez³

et al. 2014

cpr

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Background In an effort to form and sustain community–academic partnerships (CAPs) to enhance clinical and translational research, an assessment of needs for selecting and implementing evidence-based programs (EBPs) was conducted among a group of community-based organizations (CBOs) throughout Puerto Rico. Methods The survey was based on an instrument developed by the Cancer Prevention and Control Research Network. It assessed specific service information, program selection/implementation processes, knowledge and perception of EBPs, funding venues, evaluation processes, and capacity and training needs. Recruitment consisted of contacting 100 nonprofit organizations in Puerto Rico that work or address specific health areas, namely, cancer, neurological disorders, HIV, and cardiovascular health. Results The survey revealed wide variability in understanding what constitutes an EBP. Training needs for building a productive translational research process also were identified. Prominent among these were securing funding for ongoing operations, utilizing data for decision making, developing collaborations, managing information, conducting community needs assessments, and program evaluation. Conclusions These findings point to important implications for promoting community–campus partnerships for advancing clinical and translational research.

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Eight Years of Building Community Partnerships and Trust: The UCLA Family Medicine Community-Based Participatory Research Experience

Cited by 50 publications

References 17 publications

Perceptions from Latino and African American Older Adults about Biological Markers in Research

Perceptions from Latino and African American Older Adults about Biological Markers in Research

Capacity Needs in Community-Based Organizations for Enhancing Translational Research in Puerto Rico

Capacity Needs in Community-Based Organizations for Enhancing Translational Research in Puerto Rico

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