eHealth literacy, Internet and eHealth service usage: a survey among cancer patients and their relatives

Halwas, Nikolaus; Griebel, Lena; Huebner, Jutta

doi:10.1007/s00432-017-2475-6

Cited by 54 publications

(76 citation statements)

References 31 publications

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“…Finally, it is worth highlighting that even though the world of apps is evolving considerably, they do not actually cover all our patients' needs [14,15]. Obtaining information about a disease or its treatment would interest 50% of our patients (which is more than the 28.1% reported by Soler et al [17]); but, however, less than 20% used apps for this purpose.…”

Section: Discussionmentioning

confidence: 99%

Oncology Patient Interest in the Use of New Technologies to Manage Their Disease: Cross-Sectional Survey (Preprint)

Collado-Borrell¹,

Escudero‐Vilaplana²,

Calles³

et al. 2018

Preprint

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Background: Information and communication technologies (ICTs) in oncology can revolutionize the medical care of cancer patients. ICTs can promote patient's empowerment and real-time disease monitoring. There is limited information about the impact of ICTs in cancer patients of ICTs in this patient group or indeed their level of interest in using these tools for greater management of their condition.Objective: We aimed to understand the ICT usage profile in hematology-oncology patients, to identify their needs, and to determine their level of interest in these technologies as a means of managing their disease. Methods:A 28-item questionnaire was drawn up by a multidisciplinary team including pharmacists and oncologists. The questions were organized into three blocks. A: socio-demographic characteristics; B: use of ICTs when searching for health-related information; and C: usage preferences for health apps. Hematology-oncology patients receiving treatment between May and July 2017 were included. A paper copy of the questionnaire was handed to patients in the Day Hospital or the Pharmaceutical Care Consultancy in Pharmacy Services.Results: A total of 650 questionnaires were handed out, with a participation of 94% (611/650).Patient socio-demographic characteristics: Mean age was 57.8 years-old . Of participants, 61.9% (378/611) were women, 40.7% (249/611) had a university education, and 45.1% (276/611) of patients reported their overall state of health to be good. Use of ICTs when searching for health-related information:87.1% (532/611) of subjects were interested in being informed about health-related matters. Of all subjects, 75.5% (532/611) sought information from health professionals and 61.3% (375/611) on the Internet. Of these, 71.2% (436/611) searched through Google and 21.9% (134/611) by means of social networks. Before going to their doctor's appointment, 21.8% (133/611) of patients looked up information about their disease and/or treatment on the Internet. This access to the internet rose to 51% after their first medical appointment with their oncologist, up to 50.9% (311/611) of participants referred to the Internet.Usage preferences for health apps: 82.7% (505/611) had a smartphone, while 20.3% (124/611) had a health app installed. Some 81.5% (498/611) would use an app if their health professional recommended it to them, but 39.6% (242/611) were not willed to pay for it. Conclusions:The hematology-oncology patients showed a great deal of interest in searching for healthrelated information by means of ICTs, especially using smartphones and apps. The issues that drew the most interest in terms of apps were appointment management, advice on disease management, and communication with health professionals. Free access to these features and the recommendation by a health professional are important factors when it comes to their use. Therefore, the health care provider is a key element in the recommendation of ICTs, providing their knowledge and experience concerning their correct usage.

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Section: Discussionmentioning

confidence: 99%

Oncology Patient Interest in the Use of New Technologies to Manage Their Disease: Cross-Sectional Survey (Preprint)

Collado-Borrell¹,

Escudero‐Vilaplana²,

Calles³

et al. 2018

Preprint

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“…HPs will answer a brief assessment based on the work of Vanhoof et al () and Halwas et al (). Their 33‐item questionnaire measures acceptance of web‐based technology (e.g.…”

Section: The Studymentioning

confidence: 99%

“…Therefore, we will assess patients' technology-related experience and skills using 37 items from a questionnaire developed for use in organ transplantation by Vanhoof et al (2017). We also incorporated 19 items from an eHealth literacy and service survey aimed at people with cancer (Halwas, Griebel, & Huebner, 2017). In total, the questionnaire contains 66 items.…”

Section: -Item Chronic Illness Management Implementation-buildingmentioning

confidence: 99%

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Developing a rare disease chronic care model: Management of systemic sclerosis (MANOSS) study protocol

Kocher

Simon

Dwyer

et al. 2019

Journal of Advanced Nursing

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Aim The aim of the management of systemic sclerosis (MANOSS) study described in this protocol is to develop a chronic care model, based on a contextual analysis and stakeholder involvement, for patients living with the rare disease systemic sclerosis (SSc) in Switzerland. Design Applying an implementation science approach, this study starts with an explanatory sequential mixed method study for contextual analysis, followed by broad stakeholder involvement for model development and a Delphi study to reach consensus. Methods First, a quantitative cross‐sectional survey with patients and healthcare professionals (HPs) will be conducted to identify current practice patterns of chronic illness management and technology readiness. Second, qualitative interviews with patients, family members and HPs will be performed to gain a deeper understanding of care needs identified in the quantitative survey. Third, a model of care will be co‐created with input from patients, HPs and other experts. The eHealth enhanced Chronic Care Model will serve as a guiding framework. The new model and corresponding outcome parameters will be refined using a Delphi‐study approach to reach consensus on a testable model of care for persons living with SSc. The protocol has received research ethics committee approval in September 2018 by the Swiss Ethics Committee. Discussion The MANOSS study's participatory approach is essential for contextual fit of the model for patients with SSc in this setting. Subsequent feasibility testing and implementation are planned to evaluate the model's value in relation to health disparities faced by this patient population. Impact Patients living with this rare disease lack access to coordinated, specialized care and self‐management support from qualified HPs. Reengineering of current care, with consideration for technological opportunities, is warranted to meet patients’ and families’ needs.

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“…The participants were sorted into four strata by gender and age because both characteristics 109 relate to eHealth literacy (Halwas, Griebel & Huebner, 2017;Mitsutake et al, 2012). The 110 participants were assigned to their groups by an automated system using Stata do-file mechanism, 111 and, therefore, the investigator was not aware of, and did not personally participate in the group 112 assignments.…”

mentioning

confidence: 99%

Peer Review #1 of "Effects of two-week e-learning on eHealth literacy: a randomized controlled trial of Japanese Internet users (v0.2)"

Takegami¹

2018

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eHealth literacy, Internet and eHealth service usage: a survey among cancer patients and their relatives

Abstract: In a modern health care system, emphasis should be on skills contributing to eHealth literacy among patients to improve their ability to profit from eHealth offers and improve health care.

Cited by 54 publications

References 31 publications

Oncology Patient Interest in the Use of New Technologies to Manage Their Disease: Cross-Sectional Survey (Preprint)

Oncology Patient Interest in the Use of New Technologies to Manage Their Disease: Cross-Sectional Survey (Preprint)

Developing a rare disease chronic care model: Management of systemic sclerosis (MANOSS) study protocol

Peer Review #1 of "Effects of two-week e-learning on eHealth literacy: a randomized controlled trial of Japanese Internet users (v0.2)"

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