Effects of web-based education and counselling for patients with systemic lupus erythematosus: self-efficacy, fatigue and assessment of care

Abstract

Objective The aim of this study was to determine the effect of web-based education and counselling for patients with systemic lupus erythematosus on self-efficacy, fatigue and assessment of care. Methods The study was conducted as a randomized controlled trial. The study sample consisted of 80 patients divided into two groups: the experimental group ( n = 40) and a control group ( n = 40). Randomization was performed by simple random sampling. At the beginning of the study (month 0), data-collection forms were administered to both groups. Web-based education was carried out for the first three months, and counselling and information updates were given for the next three months for the experimental group. In the intervention process, the control group just received standard care. After six months, data-collection forms were administered to both groups again. Results The mean age of the participants in the experimental and control groups was 35.58 ± 8.40 years and 39.00 ± 12.71 years, respectively. In both groups, 95% of patients were women. Wilcoxon’s test was used for within-group comparisons before and after the study. The Mann–Whitney U-test was used to evaluate the difference between the two groups before the intervention and between the two groups after the intervention. We found that there was a significant improvement in fatigue, self-efficacy and assessment of chronic illness care in the experimental group at the end of the study ( p < 0.05). Conclusions The intervention had a positive effect on self-efficacy, fatigue and satisfaction with chronic illness. In accordance with the results, similar studies should be conducted for different patient groups in order to strengthen the results.

Effect of Self- Care management on Health Outcomes and Symptoms for Females with Systemic Lupus Erythematosus

“…Concerning studied females fatigue the current study showed that, there were statistically significant differences in fatigue between pre and one month after self-care management with significant reduction in the level of fatigue in the studied females was observed post self-care management which supported hypothesis two which stated that studied females will exhibit improvement in fatigue and pain post implementation of self-care management. This result is in accordance with Kankaya and Karadakovan (2020) (7) , who studied "effects of web-based education and counseling for patients with systemic lupus erythematosus: self-efficacy, fatigue and assessment of care" and reported a significant reduction in the level of fatigue in the experimental group that had been observed in measurements after the intervention. Vol.…”

“…2 (Suppl) , May 2022 supported by Elsayed and Mesbah (2018) (33) who studied "effect of health education based intervention on selfcare among systemic lupus erythematosus clients" and revealed that three quarters of patients didn't have other chronic diseases. On the contrary, Kankaya and Karadakovan (2020) (7) who studied "effects of webbased education and counseling for patients with systemic lupus erythematosus: self-efficacy, fatigue and assessment of care" found that more than half of study sample had other comorbidities. Regarding risk factors that increase symptoms, the present study results clarified that, three quarter, more than two thirds and more than half of studied females had physical, emotional and hormonal risk factors for SLE respectively.…”

“…Fatigue is the most common and disabling symptom in SLE that may impair female patients' physical and mental health and reduce quality of life by impacting upon their emotions, work, and daily life activities (6) . Non-pharmacological interventions and lifestyle arrangements are very important in disease management, these include female education, protection from sunlight, rest and the reduction of fatigue, use of medication, infection control, vaccination, a diet low in salt, fat and cholesterol, avoidance of stress, pregnancy and contraception and reduction of psychosocial effects (7) . Disease management has an importance in SLE than treatment for increased female survival and for the prevention and managing chronic complications.…”

The Effect of Sexual Counseling Based on EX‑PLISSIT Model on Improving the Sexual Function of Married Women with Systemic Lupus Erythematosus: A Randomized Controlled Trial

“…Due to the COVID-19 pandemic, all counseling sessions except the first session were held via Skype and WhatsApp. A previous study has shown that virtual education and counseling have a positive effect on self-efficacy and other variables in SLE patients [ 26 ]. Sessions were held on a weekly basis.…”

The Barriers of Systemic Lupus Erythematosus that Affect Self-Efficacy for Physical Activity

“…It is essential to recognize how significant counseling and education are for people diagnosed with Lupus. In a randomized controlled trial conducted by Kankaya et al (2020), the researchers wanted to determine the effectiveness of web-based counseling and education for patients with Lupus on self-efficacy, fatigue, and assessment of care. Participants were put into an educational intervention program where they were taught about everything Lupus-related.…”