Effects of social constraints and web-based psychoeducation on cancer-related psychological adjustment early-after breast cancer diagnosis

Lally, Robin M.; Kupzyk, Kevin; Mills, Adam C.; Gallo, Steven M.; Meneses, Karen

doi:10.1080/07347332.2018.1546787

Cited by 15 publications

(40 citation statements)

References 44 publications

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“…No significant differences were found between participants who did and did not complete the study on baseline psychological measures ( p > 0.20). No significant differences occurred between CaringGuidance and control participants on dropout rate, number of time points completed, or last time point completed …”

Section: Resultsmentioning

confidence: 93%

“…Randomization was determined prior to study initiation using a random number generator to allocate a sequence in blocks of four. Consented participants were randomized to usual care plus access to CaringGuidance for 3 months or to usual care alone . All monthly survey data were self‐report, returned by mail.…”

Section: Methodsmentioning

confidence: 99%

“…During the 12 study weeks, participants recorded medical appointments, symptoms, and source and type of support received in study‐provided logbooks to document “usual care.” All participants received scripted phone calls from one research assistant (RA) at 28 ± 5 working day intervals during which log entries and adverse events were assessed . Intervention participants were also asked to identify desired program content (Table S2).…”

Section: Methodsmentioning

confidence: 99%

“…A one‐time brief verbal or email orientation to logging in and a pictorial study‐specific guide basic log in and website use were provided at enrollment. All other instructions were contained within CaringGuidance …”

Section: Methodsmentioning

confidence: 99%

“…Therefore, the primary aims of this pilot study were to evaluate (1) the feasibility of recruiting and retaining women newly diagnosed with breast cancer to a 3‐month study of CaringGuidance and (2) acceptability of the CaringGuidance program. The secondary aims were to evaluate the intervention's preliminary efficacy on distress, depressive symptoms, and social constraints (published elsewhere) …”

Section: Introductionmentioning

confidence: 99%

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Feasibility and acceptance of the CaringGuidance web‐based, distress self‐management, psychoeducational program initiated within 12 weeks of breast cancer diagnosis

et al. 2019

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Objective Limited clinical resources create barriers to quality management of cancer‐related distress. CaringGuidance After Breast Cancer Diagnosis is a web‐based, patient‐controlled, psychoeducational program of cognitive‐behavioral, coping and problem‐solving strategies aimed at early post‐diagnosis distress reduction without clinical resources. This study evaluated the feasibility of recruiting and retaining newly diagnosed women to 12 weeks of CaringGuidance and program acceptance. Methods Women with stage 0 to II breast cancer diagnosed within the prior 3 months were recruited from clinics and communities in four states, from 2013 to 2015 and randomized to 12 weeks of CaringGuidance plus usual care (n = 57) or usual care alone (n = 43). Recruitment, retention, and program use were tracked. Using standard and study‐derived measures, demographic and psychological variables were assessed at baseline and monthly and program satisfaction at 12 weeks. Results Of 139 women screened, 100 enrolled, five withdrew, and 12 were lost to follow‐up (83% retention rate). Total program engagement was positively associated with greater baseline intrusive/avoidant thoughts. Intervention participants (92%) believed CaringGuidance would benefit future women and was easy to use. Sixty‐six percent believed CaringGuidance helped them cope. Women used program content to change thoughts (49%) or behaviors (40%). Stress in the previous year was positively associated with reports that CaringGuidance was reassuring and helpful. Conclusions Feasibility and acceptance of CaringGuidance was demonstrated pointing to the program's potential as a cancer‐distress self‐management intervention. Future research will explore program feasibility and acceptability in other regions of the United States, leading to clinical implementation trials.

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Section: Resultsmentioning

confidence: 93%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Feasibility and acceptance of the CaringGuidance web‐based, distress self‐management, psychoeducational program initiated within 12 weeks of breast cancer diagnosis

et al. 2019

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CaringGuidance™ after breast cancer diagnosis eHealth psychoeducational intervention to reduce early post-diagnosis distress

Lally

Kupzyk

Bellavia

et al. 2019

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Purpose Significant cancer-related distress affects 30-60% of women diagnosed with breast cancer. Fewer than 30% of distressed patients receive psychosocial care. Unaddressed distress is associated with poor treatment adherence, reduced quality of life, and increased healthcare costs. This study aimed to evaluate the preliminary efficacy of a new web-based, psychoeducational distress self-management program, CaringGuidance™ After Breast Cancer Diagnosis, on newly diagnosed women's reported distress.Methods One-hundred women, in five states, diagnosed with breast cancer within the prior 3 months, were randomized to 12 weeks of independent use of CaringGuidance™ plus usual care or usual care alone. The primary multidimensional outcome, distress, was measured with the Distress Thermometer (DT), the Center for Epidemiologic Studies Depression Scale (CES-D), and the Impact of Events Scale (IES) at baseline and months 1, 2, and 3. Intervention usage was continually monitored by the data analytic system imbedded within CaringGuidance™. Results Although multilevel models showed no significant overall effects, post hoc analysis showed significant group differences in slopes occurring between study months 2 and 3 on distress (F(1,70) = 4.91, p = .03, η 2 = .065) measured by the DT, and depressive symptoms (F(1, 76) = 4.25, p = .043, η 2 = .053) favoring the intervention. Conclusions Results provide preliminary support for the potential efficacy of CaringGuidance™ plus usual care over usual care alone on distress in women newly diagnosed with breast cancer. This analysis supports and informs future study of this selfmanagement program aimed at filling gaps in clinical distress management.

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Construction of a cutoff and fusion model of breast cancer patients in family: a grounded theory study

Tang

Zhang

et al. 2023

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Effects of social constraints and web-based psychoeducation on cancer-related psychological adjustment early-after breast cancer diagnosis

Cited by 15 publications

References 44 publications

Feasibility and acceptance of the CaringGuidance web‐based, distress self‐management, psychoeducational program initiated within 12 weeks of breast cancer diagnosis

Feasibility and acceptance of the CaringGuidance web‐based, distress self‐management, psychoeducational program initiated within 12 weeks of breast cancer diagnosis

CaringGuidance™ after breast cancer diagnosis eHealth psychoeducational intervention to reduce early post-diagnosis distress

Construction of a cutoff and fusion model of breast cancer patients in family: a grounded theory study

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