Background: Follow-up for heterogeneous intensive care patients presents challenges for rehabilitation interventions and outcome measurements. The aim was to describe and explore characteristics and determinants for visiting/not visiting a nurse-led clinic (NLC) at different time-points, and to describe physical and mental health (HRQoL) over time.
Methods:Patients with a length of stay (LOS) of ≥72 hours, discharged from a general intensive care unit 2004-2014, who participated in a 6-month follow-up programme offering visits to NLC at 2 and 6 months were included. The register study includes information regarding patients' participation in NLC, clinical and demographic data from the Patient Administrative System within Intensive care, and data on 2-, 6-and 12-month HRQoL by using SF-36 from the Swedish Intensive Care Registry.Results: Of 656 patients, 57% visited the NLC on some occasion. These patients were younger (P = .000), had lower Simplified Acute Physiology scores (P = .001) and higher SF-36 physical health domain scores at 2 months (P < .05) compared to those not visiting at all. Visitors at 2 months only were younger, had shorter LOS and higher physical and mental domain scores than patients visiting at 6 months only. Patients visiting the NLC scored significantly higher in all domains from 2 to 12 months, whereas nonvisiting-patients' did this in four out of eight domains during the same time frame.
Conclusion:Individual patient's characteristics and current health conditions seem to influence visits to NLC or not. The findings may contribute to the development of existing routines to match the diversity of patients' needs and life situations.
| INTRODUC TI ONPost intensive care unit (ICU) follow-up contributes to increased knowledge about patients' needs and recovery after an ICU stay.Patients often report having remaining difficulties caused by the critical illness, treatment and care 1 and may suffer from new or worsening physical, cognitive or mental health problems, collectively named Post Intensive Care Syndrome (PICS). 2 Follow-up clinics may provide opportunities to help patients manage difficulties at different levels of care and at different time points. 3,4 A follow-up service and ICU diary have shown positive effects on posttraumatic stress disorder. 5,6 Patients visiting a nurse-led clinic (NLC) expressed, to a significantly greater extent, that they received advice and information, gained knowledge and re-evaluated memories and experiences from the ICU stay, compared to patients not attending the clinic. 7 However no convincing positive improvements were found regarding Health-Related Quality of Life (HRQoL) in 1 year follow-ups compared to standard care 8,9 or in a recovery programme also measuring sense of coherence and psychological health. 10 Also, systematic reviews have not been able to detect that follow-ups promote recovery. [11][12][13] How to cite this article: Glimelius Petersson C, Jakobsson L, Westergren A, Bergbom I. Factors and health-related quality of life associated wi...