Effects of patient and personal demographic, clinical and psychosocial characteristics on the burden of family members caring for patients with advanced cancer in Greece

Govina, Ourania; Kotronoulas, Grigorios; Mystakidou, Kyriaki; Katsaragakis, Stylianos; Vlachou, Eugenia; Patiraki, Elisabeth

doi:10.1016/j.ejon.2014.06.009

Cited by 57 publications

(63 citation statements)

References 55 publications

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“…More specifically, we found that family resilience decreased caregiver burden, which was consistent with a previous study (Chiou, Chang, Chen, & Wang, ). This study's results further supported those of a study (Govina et al, ), which found that caregiver burden was related to patients' physical and psychological status; in our study, it was related to survivors’ QOL.…”

Section: Discussionsupporting

confidence: 92%

“…Moreover, caregiver burden has been linked to patients' physical and psychological status. For example, researchers found that caregiver burden was related to patients' past surgeries or chemotherapy treatments, depression, and the effects of cancer-related symptoms (Govina et al, 2015), and patients' positive and negative symptoms (Roick, Heider, Toumi, & Angermeyer, 2006). However, to our knowledge, there are no published studies on the relationship between PTG among survivors of breast cancer and caregiver burden.…”

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confidence: 99%

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Family resilience and psychological well-being among Chinese breast cancer survivors and their caregivers

et al. 2019

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Walsh's family resilience theory indicated that families could foster resilient outcomes among their members when they are facing changes or crises. However, little is known about family resilience and psychological well‐being among Chinese breast cancer survivors and their caregivers. Therefore, this study aimed to examine the direct and indirect relationships between family resilience, breast cancer survivors' post‐traumatic growth (PTG), quality of life (QOL), and their principal caregivers' caregiver burden. A total of 108 breast cancer survivors/principal caregivers pairs completed a cross‐sectional questionnaire survey in a comprehensive cancer of a public hospital in Shandong Province, China. The structural equation modelling (SEM) results showed that family resilience had direct and indirect effects on QOL and caregiver burden, and it was positively related to the PTG of the survivors. The survivors' PTG was positively related to their QOL, and their QOL was negatively associated with caregiver burden. Therefore, a better understanding of how family resilience contributes to PTG and QOL of the survivors and caregiver burden could help clinicians tailor interventions to enhance interventions aimed at improving both survivors' and caregivers' well‐being.

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Section: Discussionsupporting

confidence: 92%

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confidence: 99%

Family resilience and psychological well-being among Chinese breast cancer survivors and their caregivers

et al. 2019

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“…A time-consuming maintenance burden becomes a major problem that occurs in many caregivers (Govina et al, 2014). Farewell during the treatment and treatment process contributes to the burden during side-by-side treatment (Govina et al, 2015) in addition to gender, family status, education, previous caring experience, occupational status, the difficulty of care, anxiety, and depression. So that caregivers end up adjusting job options or stopping working to care for sick family members.…”

Section: "Last Night I Couldn't Sleep So I Did Not Sleep At All" (R1)mentioning

confidence: 99%

Family Process with Breast Cancer Patient in Indonesia

Wulandari¹,

Hermayanti²,

Yamin³

et al. 2017

J. Ners

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Introduction: Breast cancer occupies the first position in Asia's women cancer cases in recent years. Signs and symptoms experienced by the patient affect the stress condition of the patient as well as the family as a caregiver. The condition changes to deal with problems during patient assistance as a major problem in an outpatient setting. The demands of adaptation to through the needs during the period of assistance by the family is more complex. The study aimed to determine the experience of stress and adaptation of breast cancer patient's family. Methods: The qualitative method used with in-depth interviews on seven respondents who were the family caregiver of breast cancer patients. Setting carried out at the shelter house in Bandung. The analysis process used thematic analysis based on Braun & Clarke. Results: The results found five main themes are: 1) Stressor on breast cancer patients, 2) Crisis fulfillment of companion needs, 3) Crisis accompaniment, 4) Coping mechanisms of caregiver, and 5) Ability in adaptation. Conclusions: Family experience in assisting breast cancer patients who undergo outpatient also impact families tension who traversed with a subjective effort optimally to adapt in accompanying patients and the needs of other resource support system. Suggestions for future step are early recognition of stress by health workers especially nurses to be able to provide targeted interventions to develop positive adaptation to clients. The development through research is needed in applying family center care both the outpatient and inpatient care in an integrated manner.

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“…Perhaps the main limitation to this recommendation as observed from various studies would be due to limited funds in running these programs, care givers are mostly few or usually stop because of none payments but also limited medical supplies like drugs, gloves and disinfectants. Most researchers studying this subject have commonly used qualitative methods [2,12,13] and focus group discussions for data collection while sampling methods have been a mixture of random sampling [11,15] and non-probability sampling [2,16,12]. Data analysis has ranged from descriptive statistics, regression analysis and Chi square analysis (16,11).…”

Section: *Correspondence Evaracia Mbalementioning

confidence: 99%

“…Most researchers studying this subject have commonly used qualitative methods [2,12,13] and focus group discussions for data collection while sampling methods have been a mixture of random sampling [11,15] and non-probability sampling [2,16,12]. Data analysis has ranged from descriptive statistics, regression analysis and Chi square analysis (16,11). This study employed Quantitative methods with non probability sampling methods (convenience sampling methods).…”

Section: *Correspondence Evaracia Mbalementioning

confidence: 99%

Challenges experienced by home based caregivers of HIV/AIDS patients in chifubukawama community, Ndola, Zambia

Mbale¹,

Chileshe-Chibangula

2017

APJHS

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Introduction: Home based care is an answered prayer in this era of HIV/AIDS, allowing the chronically ill people to spend their last days in familiar surroundings. Home based care was birthed for a noble cause such as this. As caregivers care for these patients, they experience challenges in terms of stress, burnout, stigma and discrimination among others, which could be due to social and psychosocial factors. The purpose of the study was to determine the challenges of home based caregivers for people living with HIV/AIDS in Chifubu-Kawama Community, concentrating on volunteer care givers. Methods: It was a quantitative study using convenient sampling methods. A questionnaire was used to collect data and the Statistical Package for Social Science (SPSS) version 20.0 aided in the analysis. Results: Of the 30 care givers, 66.7% were female and 33.3% were males. The common age range was between 40 and 49 years. 86.7% reported long distance walking as challenging while lack of food by the patients was at 83.3% .The major challenges were lack of food by the patients, limited support from the health institution both in logistics and counseling services. Other challenges included scanty supply of healthy kits and need for more training. Conclusion:The importance of home based care cannot be overemphasized in this era of the HIV/AIDS pandemic. Constant training and some stipends would motivate the care givers. Providing them with some staff support for monitoring and counseling would be idea, as everyone needs some encouragement from time to time.

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Effects of patient and personal demographic, clinical and psychosocial characteristics on the burden of family members caring for patients with advanced cancer in Greece

Cited by 57 publications

References 55 publications

Family resilience and psychological well-being among Chinese breast cancer survivors and their caregivers

Family resilience and psychological well-being among Chinese breast cancer survivors and their caregivers

Family Process with Breast Cancer Patient in Indonesia

Challenges experienced by home based caregivers of HIV/AIDS patients in chifubukawama community, Ndola, Zambia

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