Effects of botulinum toxin type a on quality of life assessed with the WHOQOL-BREF in hemifacial spasm and blepharospasm

Gürsoy, Azize Esra; Uğurad, Işıl; Babacan-Yildiz, Gülsen; Kolukisa, Mehmet; Çelebi, Arif

doi:10.1016/j.npbr.2012.08.001

Cited by 3 publications

(3 citation statements)

References 41 publications

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“…Although no differences have been found between the two populations for generic quality of life outcomes [2], patients with BEB have been found to have poorer vision-related quality of life [3].…”

Section: Introductionmentioning

confidence: 89%

The Illness and Treatment Beliefs of Adults with Blepharospasm and Hemifacial Spasm Receiving Botulinum Toxin Injections: A Cross-Sectional Study

Lawes-Wickwar¹,

McBain

Hirani

et al. 2020

Preprint

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Background/ Aims: Benign essential blepharospasm (BEB) and hemifacial spasm (HFS) cause eyelid and/or facial spasms. Treatment with botulinum toxin leads to a cyclical pattern of relief followed by symptoms returning. Limited evidence suggests a link between patients’ beliefs about their symptoms and perceived efficacy of treatment but further research is needed to establish the specific beliefs held by BEB and HFS about their condition and its treatment. Methods: A cross-sectional study of 130 patients with BEB or HFS was conducted at Moorfields Eye Hospital, London. Beliefs about the conditions and treatments were assessed using the Illness Perceptions Questionnaire (IPQ-R) and Treatment Representations Inventory (TRI). Patients also completed the Blepharospasm Disability Index (BSDI) and Craniocervical Dystonia Questionnaire (CDQ-24). Severity and frequency of spasms were recorded using the Jankovic Rating Scale (JRS). Relationships between the outcomes were identified using Pearson’s product-moment correlation. Results: A range of beliefs about the conditions and botulinum toxin were identified: participants associated BEB and HFS with a chronic timeline and believed their condition was not caused by psychological factors, risks, or their personality or lifestyle. Participants also demonstrated decision satisfaction related to treatment but had some treatment concerns. There was notable uncertainty in a number of patients’ beliefs. Conclusions: Participants believed their condition to be chronic and generally understood what caused BEB or HFS. Strong relationships between patients’ beliefs about their condition and treatment, and aspects of quality of life, were identified. This study highlights the uncertainty patients face in managing their condition which could be addressed in future interventions to improve patient outcomes, including quality of life.

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Section: Introductionmentioning

confidence: 89%

The Illness and Treatment Beliefs of Adults with Blepharospasm and Hemifacial Spasm Receiving Botulinum Toxin Injections: A Cross-Sectional Study

Lawes-Wickwar¹,

McBain

Hirani

et al. 2020

Preprint

View full text Add to dashboard Cite

show abstract

“…QoL and performance scores in numerous dimensions decrease with age. When people become older, they rely more on the support provided by their environment [42]. Therefore, the dimension of environment in WHOQOL-BREF includes eight indicators.…”

Section: Research Framework Based On Whoqol-brefmentioning

confidence: 99%

“…This indicator is used to measure freedom and safety of living spaces [43]. The other five criteria assess the degree to which the environment provides sufficient living function for residents [41,42,43,44]. First, the richness of medical resources is a crucial factor affecting the QoL of residents in the region.…”

Section: Research Framework Based On Whoqol-brefmentioning

confidence: 99%

Use of a Modified DANP-mV Model to Improve Quality of Life in Rural Residents: The Empirical Case of Xingshisi Village, China

Zhao

Zhu

et al. 2019

IJERPH

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Climate change-related anomalies have increased public concern regarding environmental protection. This has opened newer rural development avenues. In this regard, livability of villages is crucial; it can be evaluated based on the villagers’ quality of life (QoL). The WHOQOL-BREF, a comprehensive cross-cultural and cross-disciplinary scale proposed by the World Health Organization to assess QoL, has aided in assessing and improving QoL in different regions. However, the factors of this instrument are mutually influential, necessitating an improvement strategy considering the entire system. This problem may be resolved using the DANP-mV model. However, the traditional DANP-mV model includes many items and responding to all of them is difficult for experts. Therefore, by using the case of Xingshisi Village in China, this study proposed a modified DANP-mV model to provide additional suggestions for systematic improvement of the QoL and livability in the village. Xingshisi is a model village built according to an aspirational benchmark; however, different from the traditional definition of a benchmark, this village exhibits room for improvement. Although the modified model reduces the number of questions from 650 to 168, its effect remains similar to that of the traditional model. Moreover, in the modified model, physical capacity (D1) presented the largest dimensional gap. The interaction among the factors indicated that considering the effect of the environment (D4) and developing a systematic improvement strategy are necessary to improve the livability of villages facing limited resources.

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Which factors impact on quality of life for adults with blepharospasm and hemifacial spasm?

Lawes-Wickwar

McBain

Hirani

et al. 2020

Orbit

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Effects of botulinum toxin type a on quality of life assessed with the WHOQOL-BREF in hemifacial spasm and blepharospasm

Cited by 3 publications

References 41 publications

The Illness and Treatment Beliefs of Adults with Blepharospasm and Hemifacial Spasm Receiving Botulinum Toxin Injections: A Cross-Sectional Study

The Illness and Treatment Beliefs of Adults with Blepharospasm and Hemifacial Spasm Receiving Botulinum Toxin Injections: A Cross-Sectional Study

Use of a Modified DANP-mV Model to Improve Quality of Life in Rural Residents: The Empirical Case of Xingshisi Village, China

Which factors impact on quality of life for adults with blepharospasm and hemifacial spasm?

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