Effects of a family intervention on the quality of life of women with recurrent breast cancer and their family caregivers

Northouse, Laurel; Kershaw, Trace; Mood, Darlene; Schafenacker, Ann

doi:10.1002/pon.871

Cited by 281 publications

(331 citation statements)

References 55 publications

Supporting

Mentioning

313

Contrasting

Unclassified

Order By: Relevance

“…More sessions may have allowed a greater number of concerns to be addressed. Northouse et al (2005) came to similar conclusions with their trial of a psycho-educational family intervention program that was also based on the FOCUS framework. However, this may create issues for adoption in routine practice as more sessions would be more resource intensive (Schofield et al, in press) and patients may not be prepared to attend many more sessions, particularly because fatigue was a major problem .…”

Section: Discussionmentioning

confidence: 54%

“…Family members were included in the intervention because the involvement of others in psychosocial interventions for cancer patients reduces significantly patient anxiety and distress (Newell et al, 2002). An intensive five-session intervention using this framework and delivered by a specialist nurse has been found to be effective for women with advanced breast cancer in terms of reducing feelings of hopelessness (Northouse et al, 2005). In this study, cognitivebehavioural techniques were used to improve coping, levels of optimism and self-care management.…”

Section: The Present Studymentioning

confidence: 99%

See 1 more Smart Citation

Meeting the support and information needs of women with advanced breast cancer: a randomised controlled trial

et al. 2006

View full text Add to dashboard Cite

Addressing psychosocial and quality of life needs is central to provision of excellent care for people with advanced cancer. This study tested a brief nurse-delivered intervention to address the needs of urban women with advanced breast cancer. This study was conducted at four large urban hospitals in Australia. One hundred and five women with advanced breast cancer were recruited and randomised to receive the intervention or usual care, then asked to complete the European Organisation of Research and Treatment of Quality of life Q-C30 version (2.0) (EORTC Q-C30) (version 2) and Supportive Care Needs Survey (SCNS) at 1 month and 3 months postrecruitment. No significant differences were detected between intervention and usual care groups in the SCNS or the EORTC Q-C30 subscale scores. However, when the groups were divided into high needs (score of above 50) and low baseline needs (score of 50 or below) for each SCNS subscale, a significant difference between intervention and usual care groups was found in the psychological/emotional subscale among women with high baseline needs. In conclusions, this study demonstrated that a faceto-face session and follow-up phone call with a breast care nurse significantly reduced the psychological and emotional needs of those with high initial needs. There was no evidence of the intervention influencing the quality of life; or perceived needs of women with low initial psychological/emotional needs or perceived needs in other domains. Possibly, the intervention was not sufficiently intense to achieve an effect. British Journal of Cancer (2006) Advanced breast cancer is the most common cause of cancer death in women from developed countries (Stewart and Kleihues, 2003). When a person has incurable disease, optimising quality of life and meeting the woman's psychosocial and information needs must be central to excellent care . Extending survival time with aggressive treatments without considering these issues may do more harm than good. It is critical to address the substantial psychosocial and informational needs of people with advanced cancer Aranda et al, 2005). This study reports a trial of a brief, structured, nurse-delivered intervention designed to meet the psychosocial, informational and self-care needs of women with advanced breast cancer. Previous research on psycho-educational interventions with people with cancerIn a systematic review (Newell et al, 2002) of psychological interventions for cancer patients, it was concluded that a range of interventions including group-based and individual therapies, informational and educational interventions, guided imagery and cognitive behavioural therapies showed promise for improving patient outcomes and warranted further rigorous research.Many studies involving psycho-educational interventions for women with breast cancer have demonstrated positive results; however, the majority of them were delivered by a trained psychologist or psychiatrist (Newell et al, 2002). Another recent systematic review of psychological group intervent...

show abstract

Section: Discussionmentioning

confidence: 54%

Section: The Present Studymentioning

confidence: 99%

Meeting the support and information needs of women with advanced breast cancer: a randomised controlled trial

et al. 2006

View full text Add to dashboard Cite

show abstract

“…With these data, a new finding was the negative contribution of symptomsparticularly vaginal changes and fatigue-to women's worries and stress regarding body changes. Some quality of life studies have used the KPS or patient symptom reports (Dodd, 1988;Northouse, Kershaw, Mood, & Schafenacker, 2005;Scheier et al, 2005), but the use of the symptom-atology and toxicity listing is novel. These measures are costly, as medical expertise is required of the rater (e.g., a nurse specialist), yet they provide the benefit of objective, symptom-specific scales, unlike patient self reported health which is prone to reporting biases, including co-variation with negative affect (e.g., Denollet, 1991;Geisser, Roth, Theisen, Robinson, & Riley, 2000).…”

Section: Limitations and Strengthsmentioning

confidence: 99%

Sexual Self Schema as a Moderator of Sexual and Psychological Outcomes for Gynecologic Cancer Survivors

et al. 2008

View full text Add to dashboard Cite

Gynecologic cancer patients are at high risk for emotional distress and sexual dysfunction. The present study tested sexual self schema as an individual difference variable that might be useful in identifying those at risk for unfavorable outcomes. First, we tested schema as a predictor of sexual outcomes,including bodychangestress. Second,we examined schema as a contributor to broader quality of life outcomes, specifically as a moderator of the relationship between sexual satisfaction and psychological statue (depressive symptoms and quality of life). A cross-sectional design was used. Gynecologic cancer survivors (N = 175) 2−10 years post treatment were assessed during routine follow up. In regression analyses controlling for sociodemographic variables, patients' physical symptoms/signs as evaluated by nurses, health status, and extent of partner sexual difficulties, sexual self schema accounted for significant variance in the prediction of current sexual behavior, responsiveness, and satisfaction. Moreover, schema moderated the relationship between sexual satisfaction and psychological outcomes, suggesting that a positive sexual self schema might "buffer" patients from depressive symptoms when their sexual satisfaction is low. Furthermore, the combination of a negative sexual self schema and low sexual satisfaction might heighten survivors' risk for psychological distress, including depressive symptomatology. These data support the consideration of sexual self schema as a predictor of sexual morbidity among gynecologic cancer survivors.

show abstract

“…These numbers imply that more and more families in Turkey have to live with and care for a relative suffering from cancer. Family caregivers play a central role in managing all aspects of the patient's care (Northouse, 2005). Family structure has an extremely important place in traditional Turkish culture, and caregivers are affected by this structure.…”

Section: Introductionmentioning

confidence: 99%

Effects of Care Burdens of Caregivers of Cancer Patients on their Quality of Life

Türkoğlu¹,

Kılıç²

2012

Asian Pacific Journal of Cancer Prevention

View full text Add to dashboard Cite

In this study, the aim was to examine the effects of caring burdens of family caregivers of cancer patients on their quality of life in the east of Turkey. Data were collected at the Chemotherapy unit of Yakutiye Research Hospital of Ataturk University. Participants were 18 years old and older. The sample included 190 family caregivers who were living in the same flats with the patients during caregiving. Data were collected using a questionnaire that included socio-demographic questions for family caregivers and the Burden Interview, and the Caregiver Quality of Life Index-Cancer (CQOLC) Scale. SPSS version 14.0 was used to analyse the data. Descriptive statistics were computed for demographic variables of family caregivers. Pearson correlation analysis was used to analyze the relationship between the care burden and quality of life, linear logistic regression analysis was applied to determine the effect care burdens have on the quality of life, and logistic regression analysis was employed to determine the effect descriptive characteristics and care-related properties have on the quality of life. The score mean of the burden interview of caregivers was 36.6±11.2; and their score mean of CQOLC was 81.4±17.3. This study concluded that there was a negative relationship between caring burdens and the quality of life (p<0.001); descriptive characteristics, caring-related properties, and caring burden variables were all significant predictors of the quality of life. It is recommended that caregivers are given support by being offered training about providing care.

show abstract

Effects of a family intervention on the quality of life of women with recurrent breast cancer and their family caregivers

Abstract: Although the family intervention had positive effects initially, these effects were not sustained over time. Future studies need to consider program dose and duration of effect, outcome measures that are more sensitive to change, and realistic end-points for patients with advanced cancer.

Cited by 281 publications

References 55 publications

Meeting the support and information needs of women with advanced breast cancer: a randomised controlled trial

Meeting the support and information needs of women with advanced breast cancer: a randomised controlled trial

Sexual Self Schema as a Moderator of Sexual and Psychological Outcomes for Gynecologic Cancer Survivors

Effects of Care Burdens of Caregivers of Cancer Patients on their Quality of Life

Contact Info

Product

Resources

About