Effectiveness of Interventions to Decrease the Physical and Mental Burden and Strain of Informal Caregivers of Stroke Patients: A Systematic Review

Rubbens, E.; Clerck, L. De; Swinnen, Eva

doi:10.1007/978-3-319-46669-9_51

Cited by 5 publications

(4 citation statements)

References 17 publications

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“…Similarly, we found in this review that while providing care at home spousal caregivers were more dissatisfied with life than the stroke patients. Therefore, interventions are needed to provide support to help spousal caregivers to cope and prepare to provide care at home (Rubbens, Clerck, & Swinnen, ). Li, Xu, Zhou and Loke () systematically developed the Caring for Couples Coping with Cancer (4Cs) intervention programme to support couples in coping with cancer.…”

Section: Discussionmentioning

confidence: 99%

“…Similarly, we found in this review that while providing care at home spousal caregivers were more dissatisfied with life than the stroke patients. Therefore, interventions are needed to provide support to help spousal caregivers to cope and prepare to provide care at home (Rubbens, Clerck, & Swinnen, 2016 (Li, Xu, Zhou, & Loke, 2015). Another study examined the effects of a couple-oriented intervention on patients with osteoarthritis (OA) and their spousal caregivers (Martire, Schulz, Keefe, Rudy, & Starz, 2007).…”

Section: Discussionmentioning

confidence: 99%

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Couples coping in the community after the stroke of a spouse: A scoping review

2019

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Aim To summarize evidence on the poststroke coping experiences of stroke patients and spousal caregivers living at home in the community. Design A scoping review. Methods Extensive searches were conducted in credible databases. Articles published in the English language were retrieved. Data were extracted based on study location, aims, study design, sample size, time after stroke and key findings. Results Out of 53 identified articles, 17 studies were included in the review. Five key themes were as follows: (a) emotional challenges; (b) role conflicts; (c) lack of strategies in coping; (d) decreased life satisfaction of the couples; and (e) marriage relationship: at a point of change. Couples were not sufficiently prepared to cope and manage with stroke at home on discharge from the hospital. This review emphasized the need for hospitals to implement policies to address the inadequate preparation of couples in coping with stroke.

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Section: Discussionmentioning

confidence: 99%

“…Similarly, we found in this review that while providing care at home spousal caregivers were more dissatisfied with life than the stroke patients. Therefore, interventions are needed to provide support to help spousal caregivers to cope and prepare to provide care at home (Rubbens, Clerck, & Swinnen, 2016 (Li, Xu, Zhou, & Loke, 2015). Another study examined the effects of a couple-oriented intervention on patients with osteoarthritis (OA) and their spousal caregivers (Martire, Schulz, Keefe, Rudy, & Starz, 2007).…”

Section: Discussionmentioning

confidence: 99%

Couples coping in the community after the stroke of a spouse: A scoping review

2019

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“…Researchers have tried different ways to reduce these negative impacts, but the results have been critiqued as less than satisfactory. 10 However, a high level of burden or anxiety and depression not only contributes to inadequacies in the physical and mental health of caregivers but also reduces the quality of the care provided to stroke survivors and the quality of life of both stroke survivors and caregivers. 11–13 Focusing only on the negative part of caregiving may limit researchers and practitioners from understanding the holistic experience of caregivers.…”

Section: Introductionmentioning

confidence: 99%

Benefits finding among Chinese family caregivers of stroke survivors: a qualitative descriptive study

et al. 2020

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ObjectivesThe caregiving experience includes both caregiver burdens and benefits finding. However, the benefits obtained by family caregivers of stroke survivors in Chinese community dwellings are unknown. The objective of this study was to explore the benefits experienced by family caregivers of stroke survivors in Chinese community dwellings.DesignA qualitative descriptive design was used, fulfilling the consolidated criteria for the Standards for Reporting Qualitative Research reporting guidelines. Semi-structured interviews were conducted with 20 family caregivers of stroke survivors. The interviews were audiotaped, transcribed and analysed. Thematic analysis was performed to analyse the interview transcripts.Setting and participantsHome interviews were conducted with family caregivers of stroke survivors in two communities in Zhengzhou, China.ResultsThe family caregivers of stroke survivors experienced various benefits from caregiving. There were both internal benefits (increases in knowledge and skills, the development of positive attitudes, and the development of a sense of worthiness and achievement) and external benefits (family growth and gains in social support), which interact to create a healthy lifestyle.ConclusionOur findings provide a comprehensive perspective in understanding the benefits perceived by family caregivers of stroke survivors. This study provides insights into interventions focused on identifying benefits finding in six domains that may help reduce negative emotions and promote the mental health of caregivers.

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“…Both factors of increased burden for next-of-kin are highly prevalent in stroke patients. Although informal care giver burden is of great significance for both the individual ( 60 ) and society ( 61 , 62 ), screening tools and instruments to assess informal caregiver burden in stroke are needed ( 63 ) as well as systematic research into suitable interventions ( 64 ).…”

Section: Introductionmentioning

confidence: 99%

Palliative Care for Stroke Patients and Their Families: Barriers for Implementation

2019

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Stroke is a leading cause of death, disability and is a symptom burden worldwide. It impacts patients and their families in various ways, including physical, emotional, social, and spiritual aspects. As stroke is potentially lethal and causes severe symptom burden, a palliative care (PC) approach is indicated in accordance with the definition of PC published by the WHO in 2002. Stroke patients can benefit from a structured approach to palliative care needs (PCN) and the amelioration of symptom burden. Stroke outcome is uncertain and outlook may change rapidly. Regarding these challenges, core competencies of PC include the critical appraisal of various treatment options, and openly and respectfully discussing therapeutic goals with patients, families, and caregivers. Nevertheless, PC in stroke has to date mainly been restricted to short care periods for dying patients after life-limiting complications. There is currently no integrated concept for PC in stroke care addressing the appropriate moment to initiate PC for stroke patients, and the question of how to screen for symptoms remains unanswered. Therefore, PC for stroke patients is often perceived as a stopgap in cases of unfavorable prognosis and very short survival times. In contrast, PC can provide much more for stroke patients and support a holistic approach, improve quality of life and ensure treatment according to the patient's wishes and values. In this short review we identify key aspects of PC in stroke care and current barriers to implementation. Additionally, we provide insights into our approach to PC in stroke care.

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Effectiveness of Interventions to Decrease the Physical and Mental Burden and Strain of Informal Caregivers of Stroke Patients: A Systematic Review

Cited by 5 publications

References 17 publications

Couples coping in the community after the stroke of a spouse: A scoping review

Couples coping in the community after the stroke of a spouse: A scoping review

Benefits finding among Chinese family caregivers of stroke survivors: a qualitative descriptive study

Palliative Care for Stroke Patients and Their Families: Barriers for Implementation

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