Effectively Supporting Youth with Chronic Illness in Schools

Bidirectional processes linking social determinants of health and pediatric sickle cell anemia management: A qualitative study

“…The Emergency Department Sickle Cell Care Coalition 50 created a point‐of‐care tool to guide sickle cell treatment (https://www.acep.org/patient-care/sickle-cell/). To support children within their immediate environments, hospital‐based SDoH programs and school partnerships could be expanded and delivered more equitably and empathically 51 . Finally, creation of a national surveillance system to inform healthcare resource allocation and research gaps may improve access to care (e.g., via coordinated care models) 4 …”

“…The effectiveness of strategies to mitigate SDoH may be limited programs and school partnerships could be expanded and delivered more equitably and empathically. 51 Finally, creation of a national surveillance system to inform healthcare resource allocation and research gaps may improve access to care (e.g., via coordinated care models). 4 Several methodological considerations are noteworthy.…”

Confronting racial inequity in health and education: Supporting students with sickle cell disease

“…While specific empirical evidence is lacking at this time as to how best to support students with SCD in schools, several conclusions can be drawn from a larger body of work addressing the needs of students with chronic health problems. Given the prevalence of students with chronic health problems in schools, school systems and school professionals require education and training in the needs of this special population and training in and implementation of collaborative models of school‐based health care service delivery (Daly et al, 2022). Improved communication between schools and health‐care providers is beneficial to students with chronic health conditions (e.g., Bradley‐Klug et al, 2013; Power & Blom‐Hoffman, 2004; Shaw & McCabe, 2008).…”

“…The school‐based evaluation of a student with SCD should be conducted in concert with the student's medical personnel, including the involvement of pediatric psychologists and neuropsychologists. This is especially true as school personnel often report being unprepared to meet the needs of children with chronic illnesses (Daly et al, 2022). If the child resides in a larger metropolitan area with access to a children's hospital, chances are greater that the student may have been the recipient of a comprehensive neuropsychological evaluation that can be used to inform team special service decision making and intervention planning.…”