Effective Life Management in Parents of Children with Disabilities: A Cross-National Extension

Wilgosh, Lorraine; Nota, Laura; Scorgie, Kate; Soresi, Salvatore

doi:10.1023/b:adco.0000035532.45759.fe

Cited by 16 publications

(11 citation statements)

References 9 publications

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Section: Effective Family Life Managementmentioning

confidence: 99%

“…Our research over the past decade, on parent effective life management strategies across disability groups and across a broad age range of children, has examined life management of parents identified as effective life managers (Scorgie et al., 1996; Scorgie, Wilgosh, & McDonald, 1997), as well as parents not so identified (Wilgosh, Scorgie, & Fleming, 2000). We have examined effective life management strategies cross‐nationally (Nota, Soresi, Ferrarai, Wilgosh, & Scorgie, 2003; Wilgosh, Nota, Scorgie, & Soresi, 2004), as well as cross‐culturally, among families of Hispanic and African‐American descent; and longitudinally, with the families of our original qualitative study (Scorgie et al., 1996). Consistently, across our qualitative and quantitative studies, parents have reported positive life management strategies (e.g., positive reframing of one’s thoughts and circumstances; maintaining a workable balance with respect to personal roles and responsibilities), important parent qualities and characteristics (e.g., constructive decision‐making and problem‐solving ability; strong personal convictions); and strong positive personal, relational, and perspectival transformational outcomes (e.g., a revised understanding of what is important in life).…”

Section: Effective Family Life Managementmentioning

confidence: 99%

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Theoretical Model for Conceptualizing Cross‐Cultural Applications and Intervention Strategies for Parents of Children With Disabilities

Wilgosh

Scorgie

2006

Policy Practice Intel Disabi

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Theoretical models should provide a framework to facilitate parents’ developing effective life management strategies. This paper provides a brief overview of the research on parent effective life management and cross‐cultural issues for families with a child who has disabilities. The authors note that the ability of image‐making, meaning‐making, and choice‐making to facilitate outcome is clearly substantiated by research in the stress and coping literature. Using the parent transformational process model, the authors examined responses from 18 multicultural families to demonstrate how this model may go beyond description of relevant cross‐cultural family variables in making sense of research findings and conceptualizing meaningful, and appropriate intervention strategies for families of children with disabilities. The authors conclude that rather than a linear process, it is quite likely that the critical questions that parents deal with at the diagnosis of their child reappear at other child and family markers, requiring a reworking of images and meanings and provision of a new range of choices. Professionals should be aware that parental adjustments to disability are not always linear, and thus use this awareness to not judge parents and to serve as catalysts for continued positive life management and transformation throughout the family life cycle.

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Section: Effective Family Life Managementmentioning

confidence: 99%

Section: Effective Family Life Managementmentioning

confidence: 99%

Theoretical Model for Conceptualizing Cross‐Cultural Applications and Intervention Strategies for Parents of Children With Disabilities

Wilgosh

Scorgie

2006

Policy Practice Intel Disabi

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“…There are now several empirical studies describing relevant factors in the coping process of mothers of handicapped children. The recent metanalyses of Scorgie, Wilgosh, and McDonald (1998) and Yau and Li-Tsang (1999) have extracted the essential variables that help or hinder coping for families with handicapped children (see also Li-Tsang, Yau, & Yuen, 2001;Wilgosh, Scorgie, & Fleming., 2000). Even though coming to terms with a child's handicap is always a highly individualized process, with various factors coming into play in varying intensity (Yau & Li Tsang, 1999, p. 41), certain aspects appear to be universal.…”

mentioning

confidence: 99%

Sense of Coherence: A Relevant Resource in the Coping Process of Mothers of Deaf and Hard-of-Hearing Children?

Hintermair

2004

Journal of Deaf Studies and Deaf Education

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This study examined the importance of reported sense of coherence (Antonovsky, 1987) in mothers of children with hearing impairment. Sense of coherence was explored as a factor in relation to the experience of stress and subjective life satisfaction and in the context of other relevant variables in coping (e.g., social support, additional handicaps of the child, child's hearing status, means of communication). Two hundred thirty-five mothers completed a questionnaire, and path analysis corroborated a theoretical model in which sense of coherence was delineated as a factor contributing directly to stress perception. Both sense of coherence and the experience of social support were identified as resources that reduced reported stress and improved quality of life, with sense of coherence especially important in reducing stress. Child variables, including additional handicaps and extent of hearing impairment, intensified reported stress for the mothers, but mode of communication with the deaf child did not affect stress experience. The findings are discussed within the context of socialization theory. Recommendations for further research (e.g., longitudinal data, control designs, socio-economic status, applicability to fathers) are made.

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“…There is a growing body of literature that suggests families of children with disabilities are able to cope with and positively adjust to the added demands associated with caring for their children (Agnetti, 1997;Kellegrew, 2000;Olsson & Hwang, 2002;Wilgosh, Nota, Scorgie, & Soresi, 2004). However, evidence suggests this is not the case for families who have a child with autism (Crespo et al, 2013;Ekas & Whitman, 2011;Jarbrink, Fombonne, & Knapp, 2003;Rivers & Stoneman, 2003).…”

Section: Abstract: Grounded Theory Family Health Occupational Engagmentioning

confidence: 99%

Families' Experiences and Occupations Following the Diagnosis of Autism

DeGrace

Hoffman

Hutson

et al. 2014

Journal of Occupational Science

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Effective Life Management in Parents of Children with Disabilities: A Cross-National Extension

Cited by 16 publications

References 9 publications

Theoretical Model for Conceptualizing Cross‐Cultural Applications and Intervention Strategies for Parents of Children With Disabilities

Theoretical Model for Conceptualizing Cross‐Cultural Applications and Intervention Strategies for Parents of Children With Disabilities

Sense of Coherence: A Relevant Resource in the Coping Process of Mothers of Deaf and Hard-of-Hearing Children?

Families' Experiences and Occupations Following the Diagnosis of Autism

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