Effect of Stanford Youth Diabetes Coaches' Program on Youth and Adults in Diverse Communities

Patil, Sachin S.; Tallon, Erin M.; Wang, Yan; Nayyar, Manav; Hodges, Kelvin L.; Phad, Allison; Rodríguez, Eduardo; Gefter, Liana

doi:10.1097/fch.0000000000000323

Cited by 2 publications

(3 citation statements)

References 31 publications

(65 reference statements)

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“…The PROMIS Numeric Rating Scale v1.0–Pain Intensity 1a, for example, is an NRS that can be used as a standalone measure or as part of the commonly used PROMIS Global Health [ 69 ], PROMIS-29, PROMIS-43 and PROMIS-57 [ 108 ]. The PROMIS Global Health, PROMIS-29 and PROMIS-57 have been used (but not validated) in people with diabetes in clinical practice and research [ 65 , 115 – 117 , 120 , 121 ]. The SF-36 is perhaps the most commonly used generic PROM in the world.…”

Section: Best Proms For Use In People With Diabetesmentioning

confidence: 99%

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Patient-reported outcomes for people with diabetes: what and how to measure? A narrative review

Terwee

Elders

Blom³

et al. 2023

Diabetologia

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Patient-reported outcomes (PROs) are valuable for shared decision making and research. Patient-reported outcome measures (PROMs) are questionnaires used to measure PROs, such as health-related quality of life (HRQL). Although core outcome sets for trials and clinical practice have been developed separately, they, as well as other initiatives, recommend different PROs and PROMs. In research and clinical practice, different PROMs are used (some generic, some disease-specific), which measure many different things. This is a threat to the validity of research and clinical findings in the field of diabetes. In this narrative review, we aim to provide recommendations for the selection of relevant PROs and psychometrically sound PROMs for people with diabetes for use in clinical practice and research. Based on a general conceptual framework of PROs, we suggest that relevant PROs to measure in people with diabetes are: disease-specific symptoms (e.g. worries about hypoglycaemia and diabetes distress), general symptoms (e.g. fatigue and depression), functional status, general health perceptions and overall quality of life. Generic PROMs such as the 36-Item Short Form Health Survey (SF-36), WHO Disability Assessment Schedule (WHODAS 2.0), or Patient-Reported Outcomes Measurement Information System (PROMIS) measures could be considered to measure commonly relevant PROs, supplemented with disease-specific PROMs where needed. However, none of the existing diabetes-specific PROM scales has been sufficiently validated, although the Diabetes Symptom Self-Care Inventory (DSSCI) for measuring diabetes-specific symptoms and the Diabetes Distress Scale (DDS) and Problem Areas in Diabetes (PAID) for measuring distress showed sufficient content validity. Standardisation and use of relevant PROs and psychometrically sound PROMs can help inform people with diabetes about the expected course of disease and treatment, for shared decision making, to monitor outcomes and to improve healthcare. We recommend further validation studies of diabetes-specific PROMs that have sufficient content validity for measuring disease-specific symptoms and consider generic item banks developed based on item response theory for measuring commonly relevant PROs. Graphical Abstract

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Section: Best Proms For Use In People With Diabetesmentioning

confidence: 99%

“…This item was adopted by PROMIS (PROMIS Global01) as part of the PROMIS Global Health [ 69 ]. The PROMIS Global Health has been used (but not validated) in people with diabetes [ 115 , 120 , 121 ].…”

Section: Best Proms For Use In People With Diabetesmentioning

confidence: 99%

Patient-reported outcomes for people with diabetes: what and how to measure? A narrative review

Terwee

Elders

Blom³

et al. 2023

Diabetologia

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“…7 In a more recent study, improvements in adult’s self-care behaviors were mediated by the adult-student relationship. 8 However, in many rural low-income communities health professionals such as medical students, medical residents or nursing students are not readily available to serve as instructors for the student participants.…”

Section: Introductionmentioning

confidence: 99%

Community Health Worker-led Implementation of the Stanford Youth Diabetes Coaching Program in Underserved Latinx Communities

Ponce-Gonzalez

Jimenez

Rodríguez

et al. 2023

J Prim Care Community Health

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Background: The Stanford Youth Diabetes Coaching Program (SYDCP) is an evidence-based program led by health care professionals to teach healthy youth who then coach family members with diabetes or other chronic conditions. This purpose of this study is to evaluate a Community Health Worker (CHW)-led implementation of the SYDCP for low-income Latinx students from underserved agricultural communities. Method: CHWs were trained and virtually led 10 training sessions virtually during the COVID-19 for Latinx students who were recruited from high schools in agricultural regions of Washington state. Feasibility measures include recruitment, retention, class attendance, and successful coaching of a family member or friend. Acceptability was measured by responses on the post-training survey. Effectiveness was evaluated by pre-post changes in measures used in prior studies of the SYDCP such as level of activation and diabetes knowledge. Results: Thirty-four students were recruited, 28 completed the training and 23 returned both pre- and post-surveys. Over 80% of students attended 7 or more classes. All met with a family or friend and 74% met with them weekly. Approximately 80% of the students rated the program’s usefulness as “very good” or “excellent.” Pre-post increases in diabetes knowledge, nutrition-related behaviors, resilience, and activation were significant and similar to those observed in prior published studies of the SYDCP. Conclusions: Findings support the feasibility, acceptability, and effectiveness of a CHW-led implementation of the SYDCP in underserved Latinx communities using a virtual remote model.

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Effect of Stanford Youth Diabetes Coaches' Program on Youth and Adults in Diverse Communities

Cited by 2 publications

References 31 publications

Patient-reported outcomes for people with diabetes: what and how to measure? A narrative review

Patient-reported outcomes for people with diabetes: what and how to measure? A narrative review

Community Health Worker-led Implementation of the Stanford Youth Diabetes Coaching Program in Underserved Latinx Communities

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