Effect of Gastrostomy Tube Feeding Education on Parents of Children with Gastrostomy

Suluhan, Derya; YILDIZ, Dilek; Surer, Ilhami; Eren, Berna Fidanci; Balamtekin, Necati

doi:10.1002/ncp.10586

Cited by 7 publications

(4 citation statements)

References 31 publications

(65 reference statements)

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“…They showed that the QoL from these caregivers was below the average of the general population (moderate hopelessness in 20%, moderate and severe anxiety in 33.3% and moderate and severe depression in 46.7%); however, their results were very similar to those found in other studies that evaluated caregivers of paediatric patients with cerebral palsy that were not using gastrostomy tube feeding, suggesting that the presence of the gastrostomy did not negatively interfere with the caregiver's QoL (97). The importance of gastrostomy tube feeding education in mothers of children with a gastrostomy may increase positive and decrease negative outcomes for these caregivers during the first 3 months post gastrostomy placement using validated questionnaires (98).…”

Section: Quality Of Life Of Children With Gastrostomy and Jejunal Tubesmentioning

confidence: 99%

Percutaneous Endoscopic Gastrostomy in Children: An Update to the ESPGHAN Position Paper

Homan

Hauser²,

Romano

et al. 2021

Journal of Pediatric Gastroenterology &Amp; Nutrition

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Background: The European Society for Paediatric Gastroenterology, Hepatology, and Nutrition (ESPGHAN) position paper from 2015 on percutaneous endoscopic gastrostomy (PEG) required updating in the light of recent clinical knowledge and data published in medical journals since 2014. Methods: Asystematicreviewofmedicalliteraturefrom2014to2020wascarried out. Consensus on the content of the manuscript, including recommendations, was achievedbytheauthorsthroughelectronicandvirtualmeans.Theexpertopinionof the authors is also expressed in the manuscript when there was a lack of good scientific evidence regarding PEGs in children in the literature. Results: The authors recommend that the indication for a PEG be individualized, and that the decision for PEG insertion is arrived at by a multidisciplinary team (MDT) having considered all appropriate circumstances. Well timed enteral nutrition is optimal to treat faltering growth to avoid complications of malnutrition and body composition. Timing, device choice and method of insertion is dependent on the local expertise and after due consideration with the MDT and family. Major complications such as inadvertent bowel perforation should be avoided by attention to good technique and by ensuring the appropriate experience of the operating team. Feeding can be initiated as early as 3 hours after tube placement in a stable child with iso-osmolar feeds of standard polymeric formula. Low-profile devices can be inserted initially using the single-stage procedure or after 2-3 months by replacing a standard PEG tube, in those requiring longer-term feeding. Having had a period of non-use and reliance upon oral intake for growth and weight gain-typically 8-12 weeks-a PEG may then safely be removed after due consultation. In the event of non-closure of the fistula the most successful method for closing it, to date, has been a surgical procedure, but the Over-The-Scope-Clip (OTSC) has recently been used with considerable success in this scenario. Conclusions: A multidisciplinary approach is mandatory for the best possible treatment of children with PEGs. Morbidity and mortality are minimized through team decisions on indications for insertion, adequate planning and preparation before the procedure, subsequent monitoring of patients, timing of the change to low-profile devices, management of any complications, and optimal timing of removal of the PEG.

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Section: Quality Of Life Of Children With Gastrostomy and Jejunal Tubesmentioning

confidence: 99%

Percutaneous Endoscopic Gastrostomy in Children: An Update to the ESPGHAN Position Paper

Homan

Hauser²,

Romano

et al. 2021

Journal of Pediatric Gastroenterology &Amp; Nutrition

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“…Although CIC is widely recognized as the most effective method used by caregivers for patients who are unable to empty their bladder independently, there is a paucity of literature on the frequency of CIC use in both Turkey children's care can increase caregiver anxiety levels. [15][16][17] Based on this identified problem, the results of this study aimed to discuss the anxiety levels of caregivers who perform CIC on their children and the factors influencing these levels. According to the findings, all caregivers were women, mostly mothers of the children, and the children were mostly diagnosed with SB.…”

Section: Discussionmentioning

confidence: 99%

“…It is well‐established that caregivers' adequate knowledge and skills in performing CIC have a positive impact on the quality of life for children by preventing UTIs 7–9 . Conversely, the lack of sufficient knowledge and skills among caregivers involved in their children's care can increase caregiver anxiety levels 15–17 . Based on this identified problem, the results of this study aimed to discuss the anxiety levels of caregivers who perform CIC on their children and the factors influencing these levels.…”

Section: Discussionmentioning

confidence: 99%

Investigation of anxiety levels in caregivers who perform clean intermittent catheterization on their children and affecting factors

Sari,

Demirbağ

2024

Neurourology and Urodynamics

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PurposeThe study aimed to determine the anxiety levels of caregivers who performed clean intermittent catheterization (CIC) on their children and the factors affecting them.MethodsThis descriptive study was conducted between January 6, and May 29, 2023 with caregivers of 42 patients who were followed up by the pediatric nephrology outpatient clinic of a university for CIC. The study data were collected using the “Participant Information Form” and the “State and Trait Anxiety Scale.”ResultsAccording to the results, of the children included in the study, 73.8% were female, 64.3% were diagnosed with spina bifida (SB), and 76.2% received CIC applications 4–6 times a day. All the caregivers were mothers, and 76.2% received CIC training from a doctor. However, 78.6% of them found the training insufficient, leading them to rely on self‐experimentation when applying CIC to their own children. None of the caregivers received information or training on the CIC application from nurses, and there were no home visits or telephone counseling provided after the hospital discharge. The mean score for the state anxiety scale among the caregivers was 45.90 ± 10.57, while the mean score for the trait anxiety scale was 46.92 ± 8.43. Significantly higher mean trait anxiety scores were observed among caregivers with chronic diseases who did not receive training on the CIC application (p < 0.05). Additionally, caregivers of children who experienced 3–4 urinary tract infections (UTIs) within the last 3 months also had significantly higher mean trait anxiety scores (p < 0.05). The mean trait anxiety level scores of caregivers of children who had 3–4 UTIs in the last 3 months were significantly higher (p < 0.05).ConclusionsIt was concluded that caregivers' lack of training on CIC implementation, having chronic disease, and having frequent UTIs in their children were effective on anxiety levels.

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“…The following were inferred from the questions' contents and coded: relationship of the questioner with the ALS patient, gender of the patient with ALS, and question period. The main questions of the messages were coded and categorized according to the classification scheme developed in previous studies (Hucl & Spicak, 2016; Stavroulakis et al, 2016; Suluhan, Yildiz, Surer, Fidanci Eren, & Balamtekin, 2020).…”

Section: Methodsmentioning

confidence: 99%

Exploring Gastrostomy Care-Related Information Needs in Patients With Amyotrophic Lateral Sclerosis and Their Families

Chu

Tak

2022

Gastroenterology Nursing

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A myotrophic lateral sclerosis (ALS), also known as motor neuron disease (MND), is a representative neurodegenerative disease, which results from the death of motor neurons in the brain and spinal cord and is accompanied by systemic symptoms such as upper and lower extremity muscle loss, swallowing and speech disorders, and respiratory distress. The exact cause of ALS has not been identified, and no treatment has yet been established for a full recovery. According to a domestic epidemiological study based on data from the Korean National Health Insurance Service (June et al, 2019), the annual incidence of ALS in South Korea is 1.2 per 100,000 population, and the prevalence is reported to be 3.43 per 100,000 population.According to the site of onset, ALS is classified as either spinal or bulbar onset. For spinal, symptoms begin in the upper and lower extremities and bulbar begins with a speech or swallowing disorder (Brown & Al-Chalabi, 2017). However, over time, both spinalonset and bulbar-onset ALS lead to upper and lower extremity muscle loss and swallowing disorders (van Es et al., 2017). In particular, swallowing disorder is a common symptom in patients with ALS and is a major cause of disruption for the safe intake of adequate fluids and food. ALS patients with swallowing disorders experience various negative health consequences such as increased time and effort for eating, weight loss, and dehydration (Stavroulakis et al., 2014). Weight loss and malnutrition are important factors that negatively affect disease prognosis and are also known to affect survival time. Therefore, for patients with ALS who experience a severe swallowing disorder, gastrostomy

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Effect of Gastrostomy Tube Feeding Education on Parents of Children with Gastrostomy

Cited by 7 publications

References 31 publications

Percutaneous Endoscopic Gastrostomy in Children: An Update to the ESPGHAN Position Paper

Percutaneous Endoscopic Gastrostomy in Children: An Update to the ESPGHAN Position Paper

Investigation of anxiety levels in caregivers who perform clean intermittent catheterization on their children and affecting factors

Exploring Gastrostomy Care-Related Information Needs in Patients With Amyotrophic Lateral Sclerosis and Their Families

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