Efectividad de un programa educativo de rehabilitación respiratoria en atención primaria para mejorar la calidad de vida, la sintomatología y el riesgo clínico de los pacientes con enfermedad pulmonar obstructiva crónica

Moreno, Cristina Blánquez; Francia, Cristina Colungo; Balada, Mónica; Kostov, Belchin; Paz, Luís González-de; Sisó‐Almirall, Antoni

doi:10.1016/j.aprim.2017.03.019

Cited by 10 publications

(21 citation statements)

References 37 publications

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“…Nevertheless, this finding has not been widely supported by previous studies on quality of life in COPD, partly because results were not stratified by gender. 9 Therefore, it is necessary to conduct further studies considering the gender perspective to establish whether there are differences in patients’ quality of life and in the process of living with a chronic condition.…”

Section: Discussionmentioning

confidence: 99%

“… 3 5 This chronic illness progressively worsens over time leading patients to experience an intensiﬁcation of symptoms, such as dyspnoea and cough, and limitations to the performance of activities of daily living. 9 This exacerbation could affect patients’ daily living, quality of life and satisfaction with life. 9 10 …”

Section: Introductionmentioning

confidence: 99%

“… 9 This exacerbation could affect patients’ daily living, quality of life and satisfaction with life. 9 10 …”

Section: Introductionmentioning

confidence: 99%

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International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease

et al. 2021

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ObjectivesTo validate the Living with Chronic Illness (LW-CI) Scale in patients with chronic obstructive pulmonary disease (COPD).DesignObservational, cross-sectional validation study with retest. Acceptability, reliability, precision and construct validity were tested.SettingThe study took place in primary and secondary specialised units of public and private hospitals of Spain and Colombia.ParticipantsThe study included 612 patients with COPD assessed from May 2018 to May 2019. A consecutive cases sampling was done. Inclusion criteria included: (A) patients with a diagnosis of COPD; (B) native Spanish speaking; (C) able to read and understand questionnaires; and (D) able to provide informed consent. Exclusion criteria included: (A) cognitive deterioration and (B) pharmacological effect or disorder that could disrupt the assessment.ResultsThe LW-CI-COPD presented satisfactory data quality, with no missing data or floor/ceiling effects, showing high internal consistency for all the domains (Cronbach’s alpha for the total score 0.92). Test–retest reliability was satisfactory (intraclass correlation coefficient=0.92). The LW-CI-COPD correlated 0.52–0.64 with quality of life and social support measures. The scale demonstrated satisfactory known-groups validity, yielding signiﬁcantly different scores in patients grouped according to COPD severity levels.ConclusionsThis has been the first validation study of the LW-CI-COPD. It is a feasible, reliable, valid and precise self-reported scale to measure living with COPD in the Spanish-speaking population. Therefore, it could be recommended for research and clinical practice to measure this concept and evaluate the impact of centred-care interdisciplinary interventions based on the patients’ perspective, focused on providing holistic and comprehensive care to patients with COPD.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease

et al. 2021

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“…Una revisión realizada por Cochrane, donde se examinaron 26 ensayos clínicos con 2997 pacientes con seguimientos entre 3 a 24 meses en programas de manejo integrado para EPOC demostró cambios significativos en el dominio actividad, hallazgo similar al encontrado en nuestro estudio, al igual que alcanzó la diferencia clínicamente relevante de cuatro unidades solo para el dominio de impacto [25][26][27][28] . La rehabilitación pulmonar ha reflejado a través de diferentes estudios, impactos significativos sobre la calidad de vida de los pacientes con patologías pulmonares crónicas [13][14][15][16] , de tal forma que se sugiere la rehabilitación pulmonar como un complemento al tratamiento médico a partir de un manejo integral de los pacientes 17,29,30 . Karapolat, et al publicaron en el 2007 un ensayo clínico controlado donde se incluyeron 54 pacientes, los cuales fueron divididos en dos grupos; aquellos que recibieron rehabilitación pulmonar y el grupo control.…”

Section: Discussionunclassified

Calidad de vida de pacientes con enfermedad pulmonar obstructiva crónica, participantes en un programa educativo integral

Grimaldos¹,

Rosales²,

Sandoval³

et al. 2019

revsal

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ntroducción: La Enfermedad Pulmonar Obstructiva Crónica (EPOC) es una enfermedad altamente prevalente que se caracteriza principalmente por la disnea, la cual genera un impacto sobre la calidad de vida del individuo. El programa de cuidado respiratorio integral ofrece una intervención esencialmente educativa, individualizada y multidisciplinaria enfocada en las necesidades del paciente y su familia, buscando mejorar la calidad de vida. Objetivo: Describir el efecto de un programa educativo de cuidado integral en la calidad de vida de pacientes con enfermedad pulmonar obstructiva crónica. Materiales y métodos: Se realizó un estudio descriptivo transversal incluyendo pacientes con diagnóstico de EPOC en quienes se aplicó el cuestionario para medición de calidad de vida Saint George al ingreso y a los seis meses de estar vinculado al programa. Se realizaron pruebas estadísticas no paramétricas debido al comportamiento no gaussiano de las variables. Resultados: Se incluyeron un total de 31 pacientes con promedio de edad 82,7 años, 43,3% tenían antecedente de tabaquismo, de las variaciones en la encuesta Saint George se observó un cambio significativo en el dominio de actividad y en el puntaje global de la encuesta al ser aplicada a los seis meses de seguimiento. Conclusiones: La implementación del programa educativo integral parece apoyar la mejoría en la calidad de vida de los participantes con diagnóstico de EPOC. Futuros estudios prospectivos podrán validar esta hipótesis

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“…In addition to this, it is important to consider that these conditions progressively worsen over time [ 2 , 6 ]. This leads people to experience an intensification of symptoms and limitations, which, in turn, affects their daily living, quality of life, and satisfaction with life [ 9 , 10 ]. When living with LTCs such as COPD, HF, and T2DM, people must adapt their daily routines and implement multiple adjustment behaviours [ 11 , 12 , 13 ].…”

Section: Introductionmentioning

confidence: 99%

The Determinants of Living with Long-Term Conditions: An International Cross-Sectional Study

Corchon

Rodríguez‐Blázquez

Meneses

et al. 2021

IJERPH

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It is essential that healthcare and social professionals understand the daily lives of people with chronic diseases, and the variables that influence them. The aim of this study was to identify the determinants influencing the process of living with long-term conditions. To investigate this, an observational, international, cross-sectional study was carried out. A consecutive sample of 1788 Spanish-speaking population living with chronic obstructive pulmonary disease, chronic heart failure and type 2 diabetes mellitus were included. Descriptive statistics and multiple linear regression models were performed. The linear regression models identified that social support (β = 0.39, p < 0.001) and the satisfaction with life (β = 0.37, p < 0.001) were the main determinants in the process of living with a long-term condition (49% of the variance). Age (β = −0.08, p = 0.01) and disease duration (β = 0.07, p = 0.01) were determinants only in the chronic heart failure subgroup, and country was significant in the chronic obstructive pulmonary disease subgroup (β = −0.15, p = 0.002). Satisfaction with life and social support were key determinants influencing the process of living with long-term conditions. As such, those aspects should be included in the design of interventions focused on the achievement of a positive living in people with long-term conditions.

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Efectividad de un programa educativo de rehabilitación respiratoria en atención primaria para mejorar la calidad de vida, la sintomatología y el riesgo clínico de los pacientes con enfermedad pulmonar obstructiva crónica

Abstract: The educational program shows a statistically significant and clinically relevant improvement in the quality of life, fatigue, symptomatology, exercise capacity, level of dyspnoea, and clinical risk. The program is adaptable to the health care routine of healthcare centres.

Cited by 10 publications

References 37 publications

International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease

International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease

Calidad de vida de pacientes con enfermedad pulmonar obstructiva crónica, participantes en un programa educativo integral

The Determinants of Living with Long-Term Conditions: An International Cross-Sectional Study

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