Education Preferences of People With Gout: Exploring Differences Between Indigenous and Nonindigenous Peoples from Rural and Urban Locations

Treharne, Gareth J.; Richardson, Aimee C.; Neha, Tia; Fanning, Niamh; Janes, R. D.; Hudson, Ben; Judd, Andrea; Pitama, Suzanne; Stamp, Lisa K.

doi:10.1002/acr.23272

Cited by 8 publications

(12 citation statements)

References 36 publications

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“…18 Findings from this overall study previously revealed commonalities in Māori and Pākehā gout patients' desire for information about diet and medication, but also showed differences in preferred communication channels, with Māori being less likely to prioritise information about gout from a doctor and preferring spoken over written information about gout. 19 In our previous paper, we documented quantitative ranking data on gout educational preferences made during a focus group ranking exercise. 19 The present paper describes data from the discussions arising during the focus group study reported in the previous paper.…”

Section: Introductionmentioning

confidence: 99%

“…19 In our previous paper, we documented quantitative ranking data on gout educational preferences made during a focus group ranking exercise. 19 The present paper describes data from the discussions arising during the focus group study reported in the previous paper. 19 The aim of the present analysis was to explore experiences of gout education in primary health care from the perspectives of Māori and Pākehā people with gout.…”

Section: Introductionmentioning

confidence: 99%

“…19 The present paper describes data from the discussions arising during the focus group study reported in the previous paper. 19 The aim of the present analysis was to explore experiences of gout education in primary health care from the perspectives of Māori and Pākehā people with gout.…”

Section: Introductionmentioning

confidence: 99%

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Improving gout education from patients’ perspectives: a focus group study of Māori and Pākehā people with gout

et al. 2018

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INTRODUCTION Gout is a common form of arthritis that is typically managed in primary care. Gout management guidelines emphasise patient education for successful treatment outcomes, but there is limited literature about the educational experiences of people living with gout in New Zealand, particularly for Māori, who have higher gout prevalence and worse gout outcomes than Pākehā. AIM To explore gout patient education in primary care from the perspectives of Māori and Pākehā people with gout. METHODS In total, 69 people with gout were recruited through primary care providers in three locations across New Zealand. Nine semi-structured focus groups were run with Māori and Pākehā participants in separate groups. RESULTS Thematic analysis yielded two themes in relation to gout education: (i) ‘Multiple sources of gout education’; and (ii) ‘Gaps in gout knowledge’. Participants received education from general practitioners, educational resources, family and friends, and their own experiences. Māori participants preferred information to be kanohi-ki-te-kanohi (face-to-face) and with significant others present where necessary. Participants disclosed gaps in gout’s epidemiology and management. Pākehā and Māori participants reported limited understanding of the genetic basis of gout or the biological underpinnings of the condition and its treatments, but learned treatment adherence through experience. DISCUSSION Despite improved gout patient education, knowledge gaps remain and may contribute to poor medication adherence. Gout patient education interventions need to be tailored to culture and incorporate suitable methods of disseminating information about gout management.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Improving gout education from patients’ perspectives: a focus group study of Māori and Pākehā people with gout

et al. 2018

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“…While the degree of education was not significantly associated with gout development, patients with tertiary level of education displayed a lower tendency to develop gout (OR = 0.32). Possibly, individuals with a lower level of education are less aware of risk factors for diseases and have a poorer understanding about the importance of preventive measures against gout (Treharne et al, 2018). Education preferences in gout patients were identified in some New Zealand populations (Treharne et al, 2018).…”

Section: Discussionmentioning

confidence: 99%

“…Possibly, individuals with a lower level of education are less aware of risk factors for diseases and have a poorer understanding about the importance of preventive measures against gout (Treharne et al, 2018). Education preferences in gout patients were identified in some New Zealand populations (Treharne et al, 2018). In the literature, a well-known co-factor of gout is alcohol usage (Lieber, 1965;Teng et al, 2013;Seki et al, 2016), corresponding to increased serum uric acid concentration.…”

Section: Discussionmentioning

confidence: 99%

Risk Factor Analysis for Gout in the Latvian Population

Nagle

Luksa

Moisejevs

et al. 2020

Proceedings of the Latvian Academy of Sciences. Section B. Natural, Exact, and Applied Sciences.

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Communicated by Aivars LejnieksGout (Gr. podagra) is a multifactorial pathology, which means that both genetic and environmental factors play a role in the aetiology of the disease. For these reasons, revealing risk factors could be of very high importance in prevention and treatment of gout. In the present study, we found that a major role in gout predisposition is played by specific alleles in the ABCG2 gene. The study used survey data for 43 gout patients and 99 healthy control individuals who were genotyped for rs2231142. It was found that allelic variant rs2231142 in the ABCG2 gene had the strongest association with gout. Among other co-factors studied, sex, and increased body mass index were associated with gout.

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Impact of Television Depictions of Gout on Perceptions of Illness: A Randomized Controlled Trial

Murdoch

Mihov

Horne

et al. 2023

Arthritis Care & Research

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ObjectiveGout is a chronic disease that can be effectively managed with long‐term urate‐lowering therapy. However, it is frequently portrayed on screen as an acute disease caused by a poor diet that should be managed with lifestyle changes. This study was undertaken to investigate the impact of a fictional television depiction of gout on perceptions of the disease and its management.MethodsIn a randomized controlled single‐blind study, 200 members of the public watched either a 19‐minute commercial television comedy episode that depicted gout as an acute disease caused by poor diet and managed with lifestyle changes, or a control episode from the same television series that did not mention gout or other diseases. Participants completed a survey regarding their perceptions of gout, its likely causes, and management strategies.ResultsParticipants randomized to watch the gout‐related episode believed gout had greater consequences (mean score of 7.1 versus 6.2 on an 11‐point Likert scale; P < 0.001) and were more likely to rank the most important cause as poor eating habits compared to the control group (70% versus 38%; P < 0.001). They were also less likely to believe it is caused by genetic factors or chance. Participants watching the gout‐related episode believed a change in diet would be a more effective management strategy (9.0 versus 8.4; P = 0.004) and long‐term medication use would be less effective (6.9 versus 7.6; P = 0.007) compared to participants in the control group.ConclusionTelevision depictions of gout can perpetuate inaccurate beliefs regarding causes of the disease and underemphasize effective medical strategies required in chronic disease management.

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Education Preferences of People With Gout: Exploring Differences Between Indigenous and Nonindigenous Peoples from Rural and Urban Locations

Cited by 8 publications

References 36 publications

Improving gout education from patients’ perspectives: a focus group study of Māori and Pākehā people with gout

Improving gout education from patients’ perspectives: a focus group study of Māori and Pākehā people with gout

Risk Factor Analysis for Gout in the Latvian Population

Impact of Television Depictions of Gout on Perceptions of Illness: A Randomized Controlled Trial

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