Education for patients with rheumatoid arthritis in Latin America and the Caribbean

Khoury, Vianna; Kourilovitch, María; Massardo, Loreto

doi:10.1007/s10067-015-3014-y

Cited by 14 publications

(11 citation statements)

References 23 publications

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“…Several studies have reported that patient education and provision of accurate information improve treatment outcomes [ 27 , 28 , 29 ]. The Internet represents a cost-effective medium through which patients can be educated.…”

Section: Discussionmentioning

confidence: 99%

Evaluation of the Quality of Information Available on the Internet Regarding Chronic Ankle Instability

et al. 2022

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Background and objectives: Most Koreans obtain medical information from the Internet. Despite the vast amount of information available, there is a possibility that patients acquire false information or are dissatisfied. Chronic ankle instability (CAI) is one of the most common sports injuries that develops after an ankle sprain. Although the information available on the Internet related to CAI has been evaluated in other countries, such studies have not been conducted in Korea. Materials and Methods: The key term “chronic ankle instability” was searched on the three most commonly used search engines in Korea. The top 150 website results were classified into university hospital, private hospital, commercial, non-commercial, and unspecified websites by a single investigator. The websites were rated according to the quality of information using the DISCERN instrument, accuracy score, and exhaustivity score. Results: Of the 150 websites, 96 were included in the analysis. University and private hospital websites had significantly higher DISCERN, accuracy, and exhaustivity scores compared to the other websites. Conclusions: Accurate medical information is essential for improving patient satisfaction and treatment outcomes. The quality of websites should be improved to provide high-quality medical information to patients, which can be facilitated by doctors.

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Section: Discussionmentioning

confidence: 99%

Evaluation of the Quality of Information Available on the Internet Regarding Chronic Ankle Instability

et al. 2022

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“… 9 , 10 Additionally, implementing educational programs to improve overall patients’ health through accompaniment and empowerment has helped reduce the effects of the disease when used as an additional intervention to conventional health care. 10 A study conducted in 2005 with Colombian patients showed how an educational intervention could improve knowledge and physical function in patients with RA. 11 The Pan American League of Associations of Rheumatology (PANLAR) recommends the existence of educational programs for people with RA from the initial diagnosis and on an ongoing basis, based on a formal, regular assessment of needs.…”

Section: Introductionmentioning

confidence: 99%

“…11 The Pan American League of Associations of Rheumatology (PANLAR) recommends the existence of educational programs for people with RA from the initial diagnosis and on an ongoing basis, based on a formal, regular assessment of needs. 10 Despite the call for educational intervention for RA patients in countries such as Colombia, there are few programs for patients and caregivers. Regular assessment of needs includes exploring the expectations of patients on RA.…”

Section: Introductionmentioning

confidence: 99%

Expectations and Experiences of a Group of Patients Enrolled in an Educational Program for Rheumatoid Arthritis at a Specialized Care Center in Colombia

Montañez¹,

Buitrago-Garcia²,

Velandia³

et al. 2023

JMDH

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Introduction Rheumatoid arthritis is a chronic inflammatory disease diagnosed in a productive stage of life. Patients with RA experience changes in their musculoskeletal system, overall health and quality of life. It has been identified that patients with RA do not have appropriate knowledge about their condition. Educational programs can provide new knowledge, accompaniment, and closer follow-up to improve empowerment and quality of life in patients with RA. Purpose To describe rheumatoid arthritis patients’ experiences, perceptions, and expectations when enrolling on a multicomponent educational program in a specialized RA setting. Patients and Methods A qualitative study was done. Patients with RA who attended a specialized center and enrolled in an educational program participated in two focus groups. The focus group discussions and the interviews were recorded, transcribed verbatim, analyzed, and emerging themes were constructed. Results Thirty-one participants were included in the focus groups. The median age was 60 years IQR (54–67), 92% were female. Two relevant categories emerged: first, the experience of being diagnosed with RA. Second, the program’s ability to empower participants with knowledge and the possibility of transferring knowledge to other patients with the same condition. In addition, patients gave a high score to the expectations regarding the educational program. Conclusion Understanding patients’ expectations when enrolling in an educational program allows educators and clinicians to understand their motivations to create tailored programs that can contribute to acquiring empowerment in the educational process and managing their disease. Stakeholders should consider patients’ expectations when implementing these interventions for patients with RA to adapt the intervention according to the patient’s context and needs, which will directly affect the patient’s adherence and lead to better use and allocation of resources for educational activities.

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“…7 Furthermore, in Latin American countries exists inequalities in health care, for example few rheumatologists are available and, consequently, a high workload and short time per visit ensue, which negatively affects patient's education during their medical visits. 8 For this reason, individuals interested in their health consult topics such as self-monitoring, lifestyle changes, quality of life and disease course.…”

Section: Introductionmentioning

confidence: 99%

Interest on the internet for systemic lupus erythematosus: Analysis of Google Trends in Latin American countries

Tejada-Llacsa

Villacorta-Landeo

Aguilar-Buitrón

et al. 2021

Lupus

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Background/Objective Information available on the internet about Systemic Lupus Erythematosus (SLE) can influence the doctor-patient relationship. Therefore, the aim of this study was to identify the terms used for SLE on the internet. Methods We analyzed the data downloaded from Google Trends, considering the term “Lupus” in a six-year web-based research. The frequency of the terms for each Pan-American country was obtained automatically from Google Trends, which reports relative search volumes or RSV (on a scale from 0 to 100) across regions. Results We obtained a total of 67 registered terms in 18 countries. The terms were distributed into five categories. The categories with interest in all countries were “definition” and “symptoms”. Conclusions Google Trends allows us to find useful information about SLE on the internet; once the accuracy of this information is validated, it can be used by patients, health institutions, rheumatologists and other health professionals.

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Education for patients with rheumatoid arthritis in Latin America and the Caribbean

Cited by 14 publications

References 23 publications

Evaluation of the Quality of Information Available on the Internet Regarding Chronic Ankle Instability

Evaluation of the Quality of Information Available on the Internet Regarding Chronic Ankle Instability

Expectations and Experiences of a Group of Patients Enrolled in an Educational Program for Rheumatoid Arthritis at a Specialized Care Center in Colombia

Interest on the internet for systemic lupus erythematosus: Analysis of Google Trends in Latin American countries

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