Education and support needs of the older adult with congenital heart disease

Riley, Jillian; Habibi, Hajar; Banya, Winston; Lau-Walker, Margaret; Cowie, Martin R.

doi:10.1111/j.1365-2648.2011.05809.x

Cited by 27 publications

(18 citation statements)

References 31 publications

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“…15, 16 Interview studies showed that patients' unique psychosocial functioning is caused by parental overprotection, excessive physical restrictions, and uncertain prognoses. These factors may hinder independence and social skills development, and they could also lead to a lack of self-confidence and of self-control.…”

mentioning

confidence: 99%

Psychosocial Factors Influencing Mental Health in Adults With Congenital Heart Disease

Enomoto

Nakazawa

Mizuno

et al. 2013

Circ J

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mentioning

confidence: 99%

Psychosocial Factors Influencing Mental Health in Adults With Congenital Heart Disease

Enomoto

Nakazawa

Mizuno

et al. 2013

Circ J

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“…HADS) noted the following results: in both a British study 29 (patients' mean age was 37.2) and an Iranian study 10 (mean age was 33.2), 13% and 38.3% (26.3% in our study) of ACHD patients, respectively, were probable anxiety cases, and 5% and 17.9% (5.3% in our study), respectively, were probable cases of depression. An Australian study 30 focusing on adolescent patients with heart disease (mean age was 16; 90% diagnosed with CHD) showed that 10% were probable anxiety cases and 3% were probable cases of depression.…”

Section: Discussionmentioning

confidence: 73%

Negative Effect of Aging on Psychosocial Functioning of Adults With Congenital Heart Disease

Enomoto

Nakazawa

2014

Circ J

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Background: Improvements in life expectancy among adults with congenital heart disease (ACHD) provide them with unique challenges throughout their lives and age-related psychosocial tasks in this group might differ from those of healthy counterparts. This study aimed to clarify age-related differences in psychosocial functioning in ACHD patients and determine the factors influencing anxiety and depression. Methods and Results:A total of 133 ACHD patients (aged 20-46) and 117 reference participants (aged 20-43) were divided in 2 age groups (20 s and 30 s/40 s) and completed the Hospital Anxiety and Depression Scale, Independent-Consciousness Scale, and Problem-Solving Inventory. Only ACHD patients completed an illness perception inventory. ACHD patients over 30 showed a significantly greater percentage of probable anxiety cases than those in their 20 s and the reference group. Moreover, ACHD patients over 30 who had lower dependence on parents and friends, registered higher independence and problem-solving ability than those in their 20 s, whereas this element did not vary with age in the reference participants. Furthermore, ACHD patients may develop an increasingly negative perception of their illness as they age. The factors influencing anxiety and depression in patients were aging, independence, problem-solving ability, and NYHA functional class. Conclusions:Although healthy people are psychosocially stable after their 20 s, ACHD patients experience major differences and face unique challenges even after entering adulthood. (Circ J 2015; 79: 185 -192)

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“…Os estudos revisados, em sua grande parte, analisavam principalmente as Karademas, Zarogiannos, & Karamvakalis, 2010;MacInnes, 2013;MacInnes, 2014;McCabe, Barnason, & Houfek, 2011;Molloy et al, 2009;Mulligan et al, 2012;Riley et al, 2012;Schroeder et al, 2012;Steca et al, 2013a;2013b), um estudo foi realizado no continente Asiático (Yan et al, 2011) Mulligan et al, 2012;Schroeder et al, 2012;Steca et al, 2013b). Um outro estudo também utilizou uma escala (Self-Efficacy Scale) para medir os fatores de risco cardíaco (Steca et al, 2013a).…”

Section: Resultsunclassified

“…Quanto à dimensão duração da doença, houve associação entre as crenças na duração cíclica da doença com menor índice de funcionamento físico e mental e menor qualidade de vida (Riley et al, 2012). Em um outro estudo, maiores crenças na duração cíclica da doença se relacionaram com níveis mais elevados de incapacidade funcional e sintomas depressivos três meses após a cirurgia (Juergens et al, 2010).…”

Section: Resultsunclassified

“…Em um outro estudo, maiores crenças na duração cíclica da doença se relacionaram com níveis mais elevados de incapacidade funcional e sintomas depressivos três meses após a cirurgia (Juergens et al, 2010). Já as crenças relacionadas à cronicidade da doença estiveram associadas a maiores crenças no controle do tratamento e controle pessoal (Riley et al, 2012) e com maior crença no autocuidado e autoeficácia (Steca et al, 2013b) Houve também a falta de disposição e interesse dos participantes em responderem os questionários (Mulligan et al, 2012;Schroeder et al, 2012). No estudo de Schroeder et al (2012), segundo os autores, esse aspecto deu-se pela forma de abordagem aos pacientes e pelas implicações do seu quadro clínico no momento da abordagem.…”

Section: Resultsunclassified

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Percepção da doença em pacientes cardíacos: Uma revisão sistemática

Castro

Altenhofen

Lima

2016

Estud. Interdiscip. Psicol.

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ResumoA presente revisão sistemática da literatura teve por objetivo investigar estudos publicados entre 2009 e 2015 que examinaram a percepção da doença em pacientes cardíacos a partir do Modelo do Senso Comum. As buscas foram feitas nas bases de dados PsycInfo, Medline e PubMed. Foram utilizados os descritores: cardiac disease, illness perception, illness representation e illness beliefs. Os resultados mostraram que a percepção da doença cardíaca é associada a consequências graves à vida do paciente, com causas atribuídas a fatores independentes dos comportamentos do indivíduo (causas psicológicas, hereditariedade, vírus, má sorte etc.). Além disso, os pacientes cardíacos acreditam mais no tratamento para o controle da doença do que no seu controle pessoal. Palavras-chave: Doença cardíaca; Percepção da doença; Representação da doença; Crenças. IILNESS PERCEPTION IN CARDIAC PATIENTS: A SYSTEMATIC REVIEW AbstractThis systematic review of literature aimed to investigate articles published between 2009 and 2015 about illness perception in cardiac patients, based on the Common Sense Model (CSM). Searches were performed at the databases PsycInfo, Medline e PubMed. The descriptors used were cardiac disease, illness perception, illness representation and illness beliefs. The results showed that cardiac disease is associated to serious consequences to patient's life, with causes attributed to factors regardless of the individual's behavior (psychological causes, hereditary, virus, bad luck, etc.). Furthermore, cardiac patients tend to believe more in treatment to control than in personal control. Keywords: Cardiac disease; Illness perception; Illness representation; Beliefs. PERCEPCIÓN DE LA ENFERMEDAD EN PACIENTES CARDÍACOS: UNA REVISIÓN SISTEMÁTICA ResumenLa presente revisión sistemática de la literatura tuvo el objetivo de analizar artículos publicados entre 2009 y 2015 que examinaron la percepción de la enfermedad en pacientes cardíacos a partir del Modelo del Sentido Común. Las búsquedas fueron realizadas en las bases de datos PsycInfo, Medline e PubMed. Fueron utilizados las palabras-clave: cardiac disease, illness perception, illness representation e illness beliefs. Los resultados mostraron que la percepción de la enfermedad cardíaca está asociada a consecuencias graves a la vida del paciente, con causas atribuidas a factores independientes de las conductas de la persona (causas psicológicas, hereditariedade, virus, mala suerte, etc). Además, los pacientes cardíacos creen más en el tratamiento para el control de la enfermedad que en su control personal.Palabras clave: enfermedad cardíaca; percepción de la enfermedad; representación de la enfermedad.

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Education and support needs of the older adult with congenital heart disease

Cited by 27 publications

References 31 publications

Psychosocial Factors Influencing Mental Health in Adults With Congenital Heart Disease

Psychosocial Factors Influencing Mental Health in Adults With Congenital Heart Disease

Negative Effect of Aging on Psychosocial Functioning of Adults With Congenital Heart Disease

Percepção da doença em pacientes cardíacos: Uma revisão sistemática

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