Editorial

Harris, Phyllis Braudy; Keady, John

doi:10.1177/1471301204039321

Cited by 3 publications

(3 citation statements)

References 7 publications

(5 reference statements)

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“…Caring for someone with YOD often leads to reduced working hours (Fujihara et al, 2019) or academic productivity (Sikes & Hall, 2018). For some families, caregiving can cause "untold hardship and resentment" as individuals face the loss of income or having to give up their career (Bayly et al, 2021;Harris & Keady, 2004). There is limited information provided to families caring for YOD across the illness trajectory regarding long-term interventions or services that could support them.…”

Section: Introductionmentioning

confidence: 99%

The impact on employment and education of caregiving for a family member with young onset dementia: A scoping review

Kokorelias,

Nadesar,

Bak

et al. 2024

Dementia

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Young-onset dementia (YOD) affects individuals under 65 years of age, often leading to loss of employment and independence. Families provide increasing levels of care to family members with YOD, resulting in changes to their daily lives, including their occupational pursuits. This review examines evidence of the occupational implications for family members who provide care to a family with YOD to identify: (i) the influence and impact caregiving tasks and responsibilities have on employment, volunteering, and education, and (ii) caregiver, and caregiving situation factors associated with changes in employment, volunteering, and education. A scoping review was performed using eight electronic databases. Included articles were narratively synthesized using a thematic analysis. Sixteen studies met the inclusion criteria and were included for review. The over-arching (main) theme of ‘decision-making’ was identified, with family members required to make choices about their own occupational goals and roles to be able to provide care to family living with YOD. The outcomes of these decisions are dynamic and changeable across the caregiving trajectory. Three caregiving factors influence decision-making: (1) Implications of Combining Caregiving and Occupations, (2) Altered Identity (3) Strategies to Support Caregivers of Individuals Living with YOD. A fourth theme was also identified ‘Guidance for Researchers To Support Caregivers’. There is a scarce body of literature examining the influence caregiving has on occupational outcomes for the YOD caregiver population. Much of this work is descriptive and lacks focus on the implications, particularly long-term impacts. This review provides a foundational guide for future research and practices to support YOD family caregivers to obtain and sustain occupations.

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Section: Introductionmentioning

confidence: 99%

The impact on employment and education of caregiving for a family member with young onset dementia: A scoping review

Kokorelias,

Nadesar,

Bak

et al. 2024

Dementia

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“…This issue marks the start of the 13th year of the Dementia journal, affectionately called by some people in the dementia care field, as “the purple journal.” That choice of color was selected with much thought, for not only is purple the color associated with Alzheimer’s disease (as pink is with breast cancer), we wanted to select a color that would stand out on book shelves in offices, libraries, and homes. For the journal’s guiding mission, since its conception, has been to provide a major international forum for social-behavioral research and practice that has direct relevance in improving the quality of life and quality of care for people with dementia and their families, and provide a venue for people living with dementia to express their concerns and thoughts (Harris & Keady, 2004, 2011).…”

mentioning

confidence: 99%

A time for thank you and welcome

Harris

Keady

2013

Dementia

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This issue marks the start of the 13th year of the Dementia journal, affectionately called by some people in the dementia care field, as ''the purple journal.'' That choice of color was selected with much thought, for not only is purple the color associated with Alzheimer's disease (as pink is with breast cancer), we wanted to select a color that would stand out on book shelves in offices, libraries, and homes. For the journal's guiding mission, since its conception, has been to provide a major international forum for social-behavioral research and practice that has direct relevance in improving the quality of life and quality of care for people with dementia and their families, and provide a venue for people living with dementia to express their concerns and thoughts (Harris & Keady, 2004, 2011). Keeping this goal in mind, we are always looking for new ways to refresh and add different voices and perspectives to assist in the continuing development of the purple journal. Thus starting with this issue, we have made some structural and personnel changes to our editorial board. The journal will now no longer have an editorial board and a board of associate editors, there will be one editorial board of 40 members, representing 11 countries. This change allows some members of our dedicated editorial board, who have been with us from the beginning, the opportunity to bow out, and for us to invite colleagues, who have been actively involved as contributors and reviewers, to join the board. We especially want to thank our editorial board members who are leaving the board:

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“…Geralmente, os participantes idosos preferem a música popular da época de sua juventude (entre 18 e 25 anos), bem como música patriótica e religiosa (BARTLETT; SNELUS, 1980;GIBBONS, 1977;JONAS, 1991;LATHOM, PETERSEN, HAVELICEK, 1982;MOORE et al, 1992 SANDERSON, 1999;FARMER et al, 1996;HAWTHORNE, 2006;RUBERMAN et al, 1984). No caso da demência, é muito comum que os amigos se afastem e cortem laços de amizade com os indivíduos diagnosticados, aumentando os sentimentos de depressão, abandono e alteridade da pessoa diagnosticada (HARRIS, 2004;KEADY, 2004;LAUER, 2007;OSTWALD;HEPBURN, 2002;SNYDER, 1999;STERIN, 2002;TAYLOR, 2007 MITCHELL, 2009;STERIN, 1999;SABAT, 2001).…”

Section: A Musicoterapia Como Intervenção Não Farmacológicaunclassified

Musicoterapia e doença de Alzheimer: um estudo com cônjuges cuidadores

Junior¹,

Amoroso²

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Dementia is a syndrome that affects memory, behavior and activities of daily living, and is one of the major causes of dependence among the elderly. Often the primary caregiver of the elderly with dementia is the spouse, which can carry a significant burden, also compromising the quality of their relationship. This study aimed to evaluate the effects of singing in music therapy on the marital relationship of four couples, in which one of the spouses is diagnosed with early or moderate Alzheimer's disease. The work was carried out as a multiple case study, being an unexplored topic, allowing for a more detailed survey of the process. Anamnesis and the Music Therapy data were applied to collect initial information, followed by 12 sessions of music therapy. Before and after the process, interviews with a semistructured script were applied and its content was interpreted through Bardin's content analysis. From the perspective of the caregiver, the satisfaction with family and friendship relationships and the quality of the conjugal relationship before and after the illness were also evaluated. The results suggest that the interventions allowed pleasant moments, with benefits mainly for the caregiver. Some testimonials indicated that the interventions offered tools so that the caregiver could better deal with the behavioral symptoms of the spouse with dementia, benefiting the quality of the conjugal relationship. Despite the limited number of participants, it is expected to contribute to the reflection about the possibilities of care, with guidelines for the more assertive application of strategies within the context studied.

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Editorial

Cited by 3 publications

References 7 publications

The impact on employment and education of caregiving for a family member with young onset dementia: A scoping review

The impact on employment and education of caregiving for a family member with young onset dementia: A scoping review

A time for thank you and welcome

Musicoterapia e doença de Alzheimer: um estudo com cônjuges cuidadores

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