Editorial: the most commonly used IBD indices still fail to represent real life and subjective patient experience

Creemers, Rob H.; Bloem, Sjaak; Bodegraven, Adriaan A. van

doi:10.1111/apt.15720

Cited by 3 publications

(4 citation statements)

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“…The study relied on subjective, rather than objective, measures of symptomology. Patient reports are becoming important outcome measures for clinical research ( 64 ), however, some studies have found subjective measures of patient functioning do not always correlate with objective measures of disease activity ( 65 , 66 ). Future studies exploring the relationship between endoscopy or biomarkers and SWB would provide a fuller picture.…”

Section: Discussionmentioning

confidence: 99%

Mindfulness Practice Is Associated With Subjective Wellbeing Homeostasis Resilience in People With Crohn's Disease but Not Ulcerative Colitis

et al. 2022

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ObjectivesPeople with Crohn's disease and ulcerative colitis (inflammatory bowel disease: IBD), commonly experience high levels of depressive symptoms and stress and low levels of subjective wellbeing (SWB). Mindfulness is increasingly considered an adjuvant IBD treatment. The relationships between depression, disease symptoms and mindfulness have not previously been considered within the theory of SWB homeostasis. This theory states that SWB is normally maintained by a homeostatic system around a setpoint range but can fail when psychological challenges dominate consciousness. This study explored the relationship among SWB and patient-reported psychological and IBD symptoms and investigated whether mindfulness practice is independently associated with SWB homeostatic resilience.DesignThis cross-sectional study recruited participants through online IBD support groups.MethodsParticipants (n = 739; 62% Crohn's disease) detailed symptoms of depression and stress, patient-reported disease symptoms, and regularity of mindfulness practice.ResultsThe sample had significantly lower SWB (hedges g = −0.98) than normative data. A logistic regression found mindfulness practice doubled the Crohn's disease participants' odds of reporting SWB within the normal homeostatic range, after controlling for psychological, physical, and demographic variables (OR 2.15, 95% CI: 1.27, 3.66). A one-point increase of patient-reported bowel symptoms reduced the participant's odds of reporting SWB in the normal homeostatic range by about a third (OR 0.66, 95% CI: 0.50, 0.85). However, the influence of mindfulness or disease symptoms on SWB was not observed for people with ulcerative colitis.ConclusionThese findings provide initial evidence for an association between mindfulness and SWB homeostatic resilience in a clinical population.

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Section: Discussionmentioning

confidence: 99%

Mindfulness Practice Is Associated With Subjective Wellbeing Homeostasis Resilience in People With Crohn's Disease but Not Ulcerative Colitis

et al. 2022

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“…Healthcare providers play an important role in educating patients and enabling them to participate actively in their treatment through shared decision‐making. Such participatory models that integrate quantity and quality using, for example, quality‐adjusted life years and subjective patient scores as metrics of therapeutic effectiveness, minimise the risk of unnecessary costs arising from solely objective, ineffective or poorly managed treatments 8 …”

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confidence: 99%

“…Such participatory models that integrate quantity and quality using, for example, quality-adjusted life years and subjective patient scores as metrics of therapeutic effectiveness, minimise the risk of unnecessary costs arising from solely objective, ineffective or poorly managed treatments. 8 The transformation of IBD healthcare costs, as elegantly documented and illustrated by the Swedish experience, calls for a reassessment of priorities and judicious decisions on the use of, and indications for, innovative therapies to ensure more equal access to IBD healthcare in the next decades. The pursuit of a sustainable path forward demands embrace of qualitative and quantitative value-based healthcare principles to support decisions on treatment strategies.…”

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confidence: 99%

Editorial: IBD cost evolution – transitioning from compensating lost productivity to escalating medication expenses

Rezazadeh Ardabili,

Van Bodegraven

2023

Aliment Pharmacol Ther

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“…I would like to thank Drs Creemers, Bloem and Bodegraven for their editorial which underlined the importance of objective and subjective parameters for the evaluation of Crohn's disease (CD) patients 1 . Indeed, the tools used in CD at present (clinical, biological and endoscopic) only assess inflammatory activity and cannot evaluate the progressive characteristics or the patient's subjective perception of the disease.…”

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confidence: 99%