Economic Impact on Families Caring for Children with Special Health Care Needs in New Hampshire: The Effect of Socioeconomic and Health-Related Factors

Bumbalo, Judith A.; Ustinich, Lee; Ramcharran, Darmendra; Schwalberg, Renee

doi:10.1007/s10995-005-4350-3

Cited by 26 publications

(18 citation statements)

References 14 publications

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“…This is important because researchers have found that insurance status and type of insurance, as well as type and severity of the condition, all impact the extent of financial out-of-pocket expenses (Newacheck, Inkelas, & Kim, 2004). For example, children with more severe conditions had higher out of pocket expenses (Bumbalo, Ustinch, Ramcharran, & Schwalber, 2005), and children with mental health needs had greater expenses than children with other specialty service needs (Busch & Barry, 2009). Children with autism had the highest out-of-pocket expenses compared to those with mental health conditions (Busch & Barry, 2009).…”

Section: Insurance Statusmentioning

confidence: 99%

Material hardship in families with children with health conditions: Implications for practice

Stoddard-Dare

DeRigne

Quinn

et al. 2015

Children and Youth Services Review

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Cross-sectional data from the third wave of a ten-year data collection initiative were used to assess the odds of experiencing four material hardships between families who have a child member with a limiting health condition, and families with children who do not have a child member with a limiting health condition. The odds of experiencing material hardship in families with more than one child with a limiting health condition were also assessed. In the multivariable models, having a child in the household with a limiting health condition increases the odds the household will be unable to pay bills, and have their phone service disconnected. Also, having more than one child in a household with a limiting health condition increases the odds of being unable to pay bills, having a phone disconnected, and receiving food stamps. Interventions to assist these vulnerable families are presented.

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Section: Insurance Statusmentioning

confidence: 99%

Material hardship in families with children with health conditions: Implications for practice

Stoddard-Dare

DeRigne

Quinn

et al. 2015

Children and Youth Services Review

View full text Add to dashboard Cite

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“…They were also more likely to report a need for professional care coordination. This study showed that the child's activity limitations had a greater degree of influence on the families' burden of care (Bumbalo et al, 2005). were positive, the family was classified as "with impact"; if all the responses were negative, the family was classified as "without impact".…”

Section: Cost Of Care Burdenmentioning

confidence: 84%

“…However, families with public insurance were more likely to have spent less than $250. The condition of the CSHCN was associated with the effect on the family; the type of insurance was associated with out-of-pocket expenses, and income was associated with all the effects on the family (Bumbalo et al, 2005).…”

Section: Cost Of Care Burdenmentioning

confidence: 98%

“…Families caring for children with more severe conditions at home were more likely to report financial and employment problems (Kuhlthau et al, 2005;Rupp & Ressler, 2009;Okumura, Van Cleave, Gnanasekaran & Houtrow, 2009). The greater the impact of a child's condition on his/ her functional ability, the more time the family spends on the child's care (Bumbalo, Ustinich, Ramcharran & Schwalberg, 2005;Nageswaran, Silver & Stein, 2008).…”

Section: Families With Children With Special Health Care Needsmentioning

confidence: 99%

“…This amount of out-ofpocket money in each setting was unexpected. According to Bumbalo et al (2005), families with public insurance or Medicaid were more likely to spend $250.00 or less per month. Medicaid was the primary payer except for 12 (14.2%) families; 8 (9.5%) who had private insurance, 2 (2.3%) who had both public and private insurance, and 2 (2.3%) who were uninsured during the study period.…”

Section: Differences In Cost Of Care Burden Across Settingsmentioning

confidence: 99%

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Children with Special Health Care Needs: Comparison of the Effects of Home Care Setting, Prescribed Pediatric Extended Care Setting, and Long-Term Care Setting on Child and Family Health Outcomes and Health Care Service Use

Caicedo¹

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Survey of financial burden of families in the U.S. with children using home mechanical ventilation

Edwards

Panitch

Constantinescu

et al. 2017

Pediatric Pulmonology

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Aim: To describe and quantify the out-of-pocket expenses, employment loss, and other financial impact related to caring for a child using home mechanical ventilation (HMV).Method: We conducted a cross-sectional survey of U.S. families with children who used HMV. Eligible participants were invited to complete a questionnaire addressing household and child characteristics, out-of-pocket expenses, employment loss/ reduction, and financial stress. Participants were recruited with the help of three national patient registries.Results: Two hundred twenty-six participants from 32 states (152 with children who used invasive ventilation and 74 with children who used noninvasive ventilation) completed the questionnaire. Participants' median reported yearly household income was $90 000 (IQR 70 000-150 000). The median amount paid in out-of-pocket expenses in the previous 3 months to care for their child using HMV totaled $3899 (IQR $2900-4550). Reported levels of financial stress decreased as income increased; 37-60% of participants, depending on income quintile, reported moderate financial stress with "some" of that stress due to their out-of-pocket expenses. A substantial majority reported one or more household members stopped or reduced work and took unpaid weeks off of work to care for their child. Conclusion:The financial impact of caring for a child using HMV is considerable for some families. Providers need to understand these financial burdens and should inform families of them to help families anticipate and plan for them. Therefore, we conducted a cross-sectional survey of U.S. families with children who use HMV in order to better understand their out-ofpocket expenses and employment loss related to their children's care and the financial stress related to those expenses and losses. These data can be used to provide better anticipatory guidance to families and to inform a full societal perspective cost-of-illness analysis. | MATERIALS AND METHODS | Participants and recruitmentEligible participants were parents or primary caregivers of a child who used HMV and who were residents of the U.S. Their child had to be less | QuestionnaireA questionnaire was developed based on what has been included in previous studies of direct non-medical and indirect costs of caring for children with chronic conditions 5,[8][9][10][11][12] and what is known about caring for children using HMV at home. Closed-ended questions addressed the following areas:1) The demographic characteristics of the participants and their households, including the household's gross annual income and other caregivers of the child (paid and unpaid).2) The children's characteristics, including age, underlying condition, modality and frequency of use of HMV, and insurance coverage.We also asked participants about home medical equipment for the child and if it was paid for out-of-pocket.3) Out-of-pocket expenses for medical supplies, medications, nutrition, professional home care, rehabilitation/complementary services, and other items related to the ch...

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Economic Impact on Families Caring for Children with Special Health Care Needs in New Hampshire: The Effect of Socioeconomic and Health-Related Factors

Abstract: A family's need for support services, and particularly for care coordination, may depend less on the family's means than on the impact of their child's condition.

Cited by 26 publications

References 14 publications

Material hardship in families with children with health conditions: Implications for practice

Material hardship in families with children with health conditions: Implications for practice

Children with Special Health Care Needs: Comparison of the Effects of Home Care Setting, Prescribed Pediatric Extended Care Setting, and Long-Term Care Setting on Child and Family Health Outcomes and Health Care Service Use

Survey of financial burden of families in the U.S. with children using home mechanical ventilation

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