Economic costs of informal care for people with chronic diseases in the community: Lost income, extra welfare payments, and reduced taxes in Australia in 2015-2030

Schofield, Deborah; Shrestha, Rupendra; Zeppel, Melanie; Cunich, Michelle; Tanton, Robert; Veerman, Lennert; Kelly, Simon; Passey, Megan

doi:10.1111/hsc.12670

Cited by 25 publications

(19 citation statements)

References 16 publications

(27 reference statements)

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“…Traditional gender roles often dictate that mothers are responsible for primary caregiving duties, and this may be one driving force behind the gender divide 33 . This has important implications for mothers’ long‐term savings and retirement funds 34 . Parents’ ability to return to work and not rely on casual or lower‐paid employment is vital to avoiding long‐term inequalities between families with and without childhood cancer.…”

Section: Discussionmentioning

confidence: 99%

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Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion

Kelada

Wakefield

Vetsch

et al. 2020

Pediatric Blood & Cancer

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Objective: Childhood cancer can have short-and long-term impacts on parents' finances and employment. It is important to understand how families adjust to the financial and employment changes caused by childhood cancer, the ongoing impacts after treatment completion, and which families need more targeted support. Qualitative research is necessary to facilitate an in-depth understanding of the employment and financial impacts on families and to capture parents' complex and nuanced experiences and perspectives. Methods:We interviewed 56 parents of childhood cancer survivors (M = 2.13 years after treatment completion; 89% mothers) using the vocational and financial impact section of the Psychosocial Adjustment to Illness Scale-Carer Interview Form. We analyzed interviews using content analysis.

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Section: Discussionmentioning

confidence: 99%

“…33 This has important implications for mothers' longterm savings and retirement funds. 34 Parents' ability to return to work and not rely on casual or lower-paid employment is vital to avoiding long-term inequalities between families with and without childhood cancer.…”

Section: Discussionmentioning

confidence: 99%

Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion

Kelada

Wakefield

Vetsch

et al. 2020

Pediatric Blood & Cancer

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“…The proportion of women among informal carers for individuals with intellectual disability and/or ASD (85% women, 15% men) was much higher than the proportion among informal carers of individuals with back pain (68% women, 32% men), another common condition with informal carers out of the workforce. 24 This is likely due to the earlier age at onset of intellectual disability and/or ASD. Similar to the present study, the proportion of mothers out of the workforce was higher than the proportion fathers out of the workforce in a US study on effects of autism on parental employment.…”

Section: Discussionmentioning

confidence: 99%

Intellectual disability and autism: socioeconomic impacts of informal caring, projected to 2030

et al. 2019

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BackgroundIntellectual disability and autism spectrum disorder (ASD) influence the interactions of a person with their environment and generate economic and socioeconomic costs for the person, their family and society.AimsTo estimate costs of lost workforce participation due to informal caring for people with intellectual disability or autism spectrum disorders by estimating lost income to individuals, lost taxation payments to federal government and increased welfare payments.MethodWe used a microsimulation model based on the Australian Bureau of Statistics' Surveys of Disability, Ageing and Carers (population surveys of people aged 15–64), and projected costs of caring from 2015 in 5-year intervals to 2030.ResultsThe model estimated that informal carers of people with intellectual disability and/or ASD in Australia had aggregated lost income of AU$310 million, lost taxation of AU$100 million and increased welfare payments of AU$204 million in 2015. These are projected to increase to AU$432 million, AU$129 million and AU$254 million for income, taxation, and welfare respectively by 2030. The income gap of carers for people with intellectual disability and/or ASD is estimated to increase by 2030, meaning more financial stress for carers.ConclusionsInformal carers of people with intellectual disability and/or ASD experience significant loss of income, leading to increased welfare payments and reduced taxation revenue for governments; these are all projected to increase. Strategic policies supporting informal carers wishing to return to work could improve the financial and psychological impact of having a family member with intellectual disability and/or ASD.Declaration of interestNone.

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“…The economic consequences of health-related employment inactivity of people with chronic conditions can also extend to the government due to increased spending on support programs and lost tax revenues (2,3). Fewer people working, earning income and paying taxes generates lost tax revenue for the government and increasing dependency on public benefits support (4). The externalities of poor health can further extend to family members or friends who may reduce or discontinue their work in order to provide informal care (5)(6)(7)(8).…”

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confidence: 99%

Major Cost Drivers in Assessing the Economic Burden of Alzheimer’s Disease: A Structured, Rapid Review

Kließ¹,

Martins²,

Connolly

2021

J Prev Alz Dis

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Background: Alzheimer’s Disease is the most common cause of dementia, affecting memory, thinking and behavior. Symptoms eventually grow severe enough to interfere with daily tasks. AD is predicted to increase healthcare spending and costs associated with formal and informal caregiving. The aim of this study was to identify and quantify the contribution of the different cost components associated with AD. Methods: A structured literature review was conducted to identify studies reporting the economic burden of Alzheimer`s Disease beyond the healthcare setting. The search was conducted in Medline, Embase and EconLit and limited to studies published in the last 10 years. For each identified cost component, frequency weighted mean costs were calculated across countries to estimate the percentage contribution of each component by care setting and disease severity. Results obtained by each costing approach were also compared. Results: For community-dwelling adults, the percentage of healthcare, social care and indirect costs to total costs were 13.9%, 17.4% and 68.7%, respectively. The percentage of costs varied by disease severity with 26.0% and 10.4% of costs spent on healthcare for mild and severe disease, respectively. The proportion of total spending on indirect costs changed from 60.7% to 72.5% as disease progressed. For those in residential care, the contribution of each cost component was similar between moderate and severe disease. Social care accounted on average for 85.9% of total costs. Conclusion: The contribution of healthcare costs to the overall burden was not negligible; but was generally exceeded by social and informal care costs.

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Economic costs of informal care for people with chronic diseases in the community: Lost income, extra welfare payments, and reduced taxes in Australia in 2015-2030

Cited by 25 publications

References 16 publications

Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion

Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion

Intellectual disability and autism: socioeconomic impacts of informal caring, projected to 2030

Major Cost Drivers in Assessing the Economic Burden of Alzheimer’s Disease: A Structured, Rapid Review

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