Economic cost and quality of life of family caregivers of schizophrenic patients attending psychiatric hospitals in Ghana

Opoku-Boateng, Y. N.; Kretchy, Irene A.; Aryeetey, Genevieve Cecilia; Dwomoh, Duah; Decker, Sybil; Agyemang, Samuel Agyei; Tozan, Yeşim; Aikins, Moses; Nonvignon, Justice

doi:10.1186/s12913-017-2642-0

Cited by 61 publications

(69 citation statements)

References 20 publications

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“…The economic burden for the caregivers interviewed was high, representing approximately a quarter of their monthly income. This economic burden is likely to contribute to lowered quality of life for the caregiver [45][46][47] as funds for other important family expenditure and investment may become scarce. The highest burden was associated with travel costs to attend clinic appointments and then followed by costs of purchasing drugs largely for opportunistic infections and other health conditions.…”

Section: Discussionmentioning

confidence: 99%

Economic burden and mental health of primary caregivers of perinatally HIV infected adolescents from Kilifi, Kenya

et al. 2020

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Background: Eighty per cent of perinatally HIV infected (PHI) adolescents live in sub-Saharan Africa (sSA), a setting also characterized by huge economic disparities. Caregiving is crucial to the management of chronic illness such as HIV/AIDS, but the economic costs and mental disorders borne by caregivers of PHI adolescents often go unnoticed. In this study, we evaluated economic costs, coping strategies and association between economic cost and mental health functioning of caregivers of perinatally HIV infected adolescents in Kilifi, Kenya. Methods: We used a cost of illness descriptive analysis approach to determine the economic burden and Patient Health Questionnaire (PHQ-9) to assess the caregivers' mental health. Cross-sectional data were collected from 121 primary caregivers of PHI adolescents in Kilifi using a structured cost questionnaire. Economic costs (direct and indirect costs) were measured from primary caregivers' perspective. We used descriptive statistics in reporting the results of this study. Results: Average monthly direct and indirect costs per primary caregiver was Ksh 2784.51 (USD 27.85). Key drivers of direct costs were transportation (66.5%) and medications (13.8%). Total monthly costs represented 28.8% of the reported caregiver monthly earnings. Majority of the caregivers borrowed resources to cope with high economic burden. About 10.7% of primary caregivers reported depressive symptoms. Caregivers with positive depression screen (PHQ-9 score ≥ 10) had high average monthly direct and indirect costs. However, this was not statistically different compared to costs incurred by caregivers who screened negative for depressive symptoms. Conclusion: Our study indicates that HIV/AIDS is associated with a significant economic burden for caregivers of adolescents living with HIV. Results underscore the need for developing economic empowerment and social support programmes that reduce the economic burden of caring for perinatally infected adolescent. These efforts may improve the mental health and quality of life of caregivers of adolescents living with HIV.

show abstract

Section: Discussionmentioning

confidence: 99%

Economic burden and mental health of primary caregivers of perinatally HIV infected adolescents from Kilifi, Kenya

et al. 2020

View full text Add to dashboard Cite

show abstract

“…The economic burden for the caregivers interviewed was high, representing approximately a quarter of their monthly income. This economic burden is likely to contribute to lowered quality of life for the caregiver [46][47][48] as funds for other important family expenditure and investment may become scarce. The highest burden was associated with travel costs to attend clinic appointments and then followed by costs of purchasing drugs largely for opportunistic infections and other health conditions.…”

Section: Discussionmentioning

confidence: 99%

Economic burden and mental health of primary caregivers of perinatally HIV infected adolescents from Kilifi, Kenya

Katana¹,

Abubakar²,

Nyongesa³

et al. 2020

Preprint

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show abstract

“…The economic burden for the caregivers interviewed was high, representing approximately a quarter of their monthly income. This economic burden is likely to contribute to lowered quality of life for the caregiver [41][42][43] as funds for other important family expenditure and investment may become scarce. The highest burden was associated with travel costs to attend clinic and then followed by costs of purchasing drugs largely for opportunistic infections and other health conditions.…”

Section: Discussionmentioning

confidence: 99%

Economic burden and mental health of primary caregivers of perinatally HIV infected adolescents from Kilifi, Kenya

Katana¹,

Abubakar²,

Nyongesa³

et al. 2019

Preprint

View full text Add to dashboard Cite

Background: Eighty per cent of perinatally HIV infected (PHI) adolescents live in sub-Saharan Africa (SSA), a setting also characterized by huge economic disparities. Caregiving is crucial to the management of chronic illness such as HIV/AIDS, but the economic costs and mental disorders borne by caregivers of PHI adolescents often go unnoticed. In this study, we evaluated economic costs, coping strategies and association between economic cost and mental health functioning of caregivers of perinatally HIV infected adolescents in Kilifi, Kenya. Methods: We used a cost of illness descriptive analysis approach and mental health was assessed using the Patient Health Questionnaire (PHQ-9). Cross-sectional data were collected from 121 primary caregivers of PHI adolescents in Kilifi using a structured cost questionnaire. Economic costs (direct costs and indirect costs) were measured from primary caregivers’ perspective. We used descriptive statistics in reporting the results of this study. Results: Average monthly direct and indirect costs per primary caregiver was Ksh 2,784.51 (USD 27.85). Key drivers of direct costs were transportation (66.5%) and medications (13.8%). Total monthly costs represented 28.8% of the reported caregiver monthly earnings. Majority of the caregivers borrowed resources to cope with high economic burden. About 10.7% of primary caregivers reported depressive symptoms. Caregivers with positive depression screen (PHQ-9 score ≥10) had high average monthly direct and indirect costs. However, this was not statistically different compared to costs incurred by caregivers who screened negative for depressive symptoms. Conclusion: Our study indicates that HIV/AIDS is associated with a significant economic burden for caregivers of adolescents living with HIV. These high economic burdens seem to negatively influence the mental health of caregivers of adolescents living with HIV. Results underscore the need for developing economic empowerment and social support programmes that reduce the economic burden of caring for perinatally infected adolescent. These efforts may improve the mental health and quality of life of caregivers of adolescents living with HIV.

show abstract

Economic cost and quality of life of family caregivers of schizophrenic patients attending psychiatric hospitals in Ghana

Cited by 61 publications

References 20 publications

Economic burden and mental health of primary caregivers of perinatally HIV infected adolescents from Kilifi, Kenya

Economic burden and mental health of primary caregivers of perinatally HIV infected adolescents from Kilifi, Kenya

Economic burden and mental health of primary caregivers of perinatally HIV infected adolescents from Kilifi, Kenya

Economic burden and mental health of primary caregivers of perinatally HIV infected adolescents from Kilifi, Kenya

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