Early Intervention Issues in Autism Spectrum Disorders

Copeland, Linda

doi:10.4172/2165-7890.1000109

Cited by 14 publications

(18 citation statements)

References 34 publications

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“…The most commonly available treatments primarily target behaviors and focus on improving daily functioning, communication, and social skills. [5][6][7] Although early behavioral intervention can improve outcomes for some children with ASD, response to treatment varies widely, and it is not yet known which children benefit from which treatments. 8 Medications prescribed for ASD often have minimal empirical support, 9 and there are no US Food and Drug Administrationapproved drugs for treatment of ASD's core symptoms.…”

Section: Introductionmentioning

confidence: 99%

A Survey of Parents with Children on the Autism Spectrum: Experience with Services and Treatments

Becerra

Massolo²,

Yau³

et al. 2017

TPJ

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Introduction: Autism spectrum disorders (ASD) are lifelong neurodevelopmental disorders, and little is known about how parents address the health and psychosocial consequences of ASD. Few studies have examined use of various treatments and services in a large, diverse sample of children with ASD and their families.Objective: This paper presents methods to create an autism research resource across multiple large health delivery systems and describes services and treatments used by children with ASD and their families.Methods: Four study sites conducted a Web survey of parents of children and adolescents with ASD who were members of Kaiser Permanente. We tabulated data distributions of survey responses and calculated c 2 statistics for differences between responders and nonresponders.Results: The children of the 1155 respondents were racially and ethnically diverse (55% white, 6% black, 5% Asian, 9% multiracial, 24% Hispanic) and representative of the total population invited to participate with respect to child sex (83% male), child age (57% < 10 years), and ASD diagnosis (64% autistic disorder). The most frequently used services and treatments were Individualized Education Programs (85%), family physician visits (78%), and occupational and speech therapy (55% and 60%, respectively). Home-based programs frequently included implementation of social skills training (44%) and behavior management (42%). Prescription medication use was high (48%). Caregivers reported disruption of personal and family routines because of problem behaviors.Conclusion: These survey data help to elucidate parents' experiences with health services for their children with ASD and serve as a potential resource for future research.

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Section: Introductionmentioning

confidence: 99%

A Survey of Parents with Children on the Autism Spectrum: Experience with Services and Treatments

Becerra

Massolo²,

Yau³

et al. 2017

TPJ

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“…The mainstay of treatment for ASD is behavioral intervention, which focuses on improving daily functioning, communication and social skills (Copeland & Buch, 2013; Dawson et al, 2010; Shattuck & Grosse, 2007). Although behavioral interventions can improve outcomes in some children with ASD, there is a great deal of variability with respect to treatment response and it is difficult to predict which children will respond (Howlin, Magiati, & Charman, 2009).…”

Section: Introductionmentioning

confidence: 99%

Prevalence and predictors of complementary and alternative medicine use in a large insured sample of children with Autism Spectrum Disorders

Owen-Smith

Bent

Lynch

et al. 2015

Research in Autism Spectrum Disorders

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Purpose The purpose of the present study was to examine the prevalence and predictors of complementary and alternative medicine (CAM) use as well as parental perceptions of CAM efficacy in a large, geographically diverse sample of children with Autism Spectrum Disorders (ASD). Methodology Data were obtained from a web-based survey administered to parents of children with ASD at four sites participating in the Mental Health Research Network (MHRN). The web survey obtained information about services and treatments received by children with ASD as well as the caregivers’ experiences with having a child with ASD. Results Approximately 88% of the sample had either used CAM in the past or had recently used some type of CAM. The following characteristics were associated with CAM use: greater parental education, younger child age, a mix of regular and special classroom settings and prescription drug use in the past three months. Conclusions The use of CAM was very prevalent in this large, geographically diverse sample of children with ASD. It is critical that providers be prepared to discuss the advantages and potential side effects with families to help them make well-informed health care decisions and prevent possible CAM-drug interactions.

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“…The prevalence of autism spectrum disorders (ASD) among children in the United States has risen rapidly in recent years (Centers for Disease Control and Prevention, 2007a; 2007b). The associated pattern of earlier identification and more proactive treatment has implications for systems that serve children with autism (Copeland & Buch, ; Reichow, ). Prevalence is lower for children from minority families and for low‐income groups, apparently reflecting differences in likelihood of diagnosis, which may reflect differential use of educational and health systems (Grindle, Kovshoff, Hastings, & Remington, ; Liptak et al., ).…”

Section: Introductionmentioning

confidence: 99%

Infrastructure of Participant Direction for Medicaid‐Funded In‐Home Autism Services for Children in Massachusetts

Leutz

Warfield

Timberlake

et al. 2015

Policy Practice Intel Disabi

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Although the prevalence of autism spectrum disorders (ASDs) among young children has grown, it has been noted that affected low-income children and children from ethnic and racial minority families are less likely to be diagnosed with ASD and to receive services. To help address such disparities, the Autism Division of the Massachusetts Department of Developmental Services instituted an Autism Waiver Program funded jointly by the Commonwealth of Massachusetts and the U.S. federal government. The program was designed to help low-income children with autism under age nine from diverse cultural backgrounds gain access to therapeutic supports. The program used a participant (parent)-directed model to help families to choose and manage services, staff, and their own budget. The authors detail a study that was designed to evaluate the costs and factors contributing to "successful operations." The authors gathered data from a focus group, reviewed cost data, and conducted individual qualitative interviews with staff involved in the coordination, delivery, and reimbursement of the program's services. They found that factors that contributed to successful operations included educated/trained families, skilled in-home therapists, clear communication with families and among staff, good information systems, and participation of families in "carryover" of interventions. Families varied in their capacities and time to choose and manage services, but staff adjusted their levels of assistance to compensate. Of the total program budget, individual budgets comprised 82% and administrative costs comprised 18% of the expenses. Program staff were generally satisfied with the structure and operation of the program. Areas for improvement included simplifying record keeping, payments with online systems, and developing approaches to strengthen carryover.

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Early Intervention Issues in Autism Spectrum Disorders

Cited by 14 publications

References 34 publications

A Survey of Parents with Children on the Autism Spectrum: Experience with Services and Treatments

A Survey of Parents with Children on the Autism Spectrum: Experience with Services and Treatments

Prevalence and predictors of complementary and alternative medicine use in a large insured sample of children with Autism Spectrum Disorders

Infrastructure of Participant Direction for Medicaid‐Funded In‐Home Autism Services for Children in Massachusetts

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