Early intervention in the Netherlands: The struggle of a syndrome specific organisation

Graaf, Erik de

doi:10.3104/practice.4

Cited by 3 publications

(1 citation statement)

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“…‘The Pediatric Association’ made the recommendations for physicians to inform parents about a diagnosis after birth . New parents can contact the Down Syndrome Foundation to receive an information packet and a video ‘Small Steps’ about the development and possible early intervention programs of children with DS (de Graaf ; Burgoyne et al . ).…”

Section: Discussionmentioning

confidence: 99%

Neonatal diagnosis of Down syndrome in the Netherlands: suspicion and communication with parents

Mooren

Gemke

Cornel

et al. 2014

J intellect Disabil Res

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DS is still often diagnosed after birth, usually on the first day of postnatal life. Most identified clinical features were upslanted palpebral fissures, epicanthic folds and hypotonia. Special attention for recognition of all present clinical features is needed for early diagnosis. Appropriate communication with the parents of the message that their child has DS can be difficult. Guidelines can help to make counselling easier and more effective, which in turn may increase parental satisfaction. Not all recommendations for the first conversation with parents were fully implemented in Dutch clinical practice.

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Section: Discussionmentioning

confidence: 99%

Neonatal diagnosis of Down syndrome in the Netherlands: suspicion and communication with parents

Mooren

Gemke

Cornel

et al. 2014

J intellect Disabil Res

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Literature Review on Universal and Residual Services of Early Family-Intervention: Implications for Korean Society

Yoon

2015

Journal of Korean Home Management Association

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The purpose of the study was to review literature on universal and residual services of early family∲intervention. The review was focused on early family-intervention cases proven effective in empowering children, parents and families, which, in turn, brought about positive synergy effects to the community at large. Literature review was presented in the following order: first, the universal needs for early family-intervention; second, critical components and strategies of early family-intervention for successful outcomes; third, on-going international projects of early family-intervention, both universal and residual services, proven effective on a long-term basis. In conclusion, findings of the study were summarized and the theoretical, practical and political implications for Korean society were further discussed.--

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Early Intervention Services for Young Children with Down Syndrome and Their Families: Recent Trends in the World and Turkey

Tomris¹

2020

INT-JECSE

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Early intervention in the Netherlands: The struggle of a syndrome specific organisation

Cited by 3 publications

References 0 publications

Neonatal diagnosis of Down syndrome in the Netherlands: suspicion and communication with parents

Neonatal diagnosis of Down syndrome in the Netherlands: suspicion and communication with parents

Literature Review on Universal and Residual Services of Early Family-Intervention: Implications for Korean Society

Early Intervention Services for Young Children with Down Syndrome and Their Families: Recent Trends in the World and Turkey

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