Early Development of Infants with Untreated Metopic Craniosynostosis

Warschausky, Seth; Angobaldo, Jeff; Kewman, Donald G.; Buchman, Steven R.; Muraszko, Karin M.; Azengart, Alexander

doi:10.1097/01.prs.0000160270.27558.64

Cited by 61 publications

(34 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Because patients usually present in infancy and surgical correction is typically performed by one year of age, most of the research in this area has focused on neurodevelopment in preschool-age children (1)(2)(3)(4)(5)(6). There is a relative paucity of data regarding the performance of these children in later school years.…”

mentioning

confidence: 99%

Analysis of individualized education programs to quantify long-term educational needs following surgical intervention for single-suture craniosynostosis

Doshier¹,

Muzaffar²,

Deidrick³

et al. 2015

CAN J PLAST SURG

View full text Add to dashboard Cite

S ingle-suture craniosynostosis (SSC) is a common craniofacial condition with potential neurocognitive sequelae. Because patients usually present in infancy and surgical correction is typically performed by one year of age, most of the research in this area has focused on neurodevelopment in preschool-age children (1-6). There is a relative paucity of data regarding the performance of these children in later school years. Such information would be valuable in anticipating potential educational difficulties in this population and in implementing the appropriate educational resources. Analyzing individualized education programs (IEPs) is one way to track what special education services these students are requiring because each IEP is "a written, legal document that describes all of the special education and related services that an eligible [United State's] student receives" (7). We hypothesized that elementary and secondary school-age children with a history of SSC require special education services as indicated by the need for IEPs in higher proportion than the general United States student population, despite having previously undergone surgical treatment. Another aim of the present study was to describe which specific educational areas were targeted most frequently by the educational goals defined in the IEPs of these children. METHODSAfter obtaining approval from the University Health Sciences Institutional Review Board, the Division of Plastic Surgery's Craniofacial patient database was reviewed from May 1992 through December 2011. A total of 283 patients met the study inclusion criteria at the time of study commencement: school-age (≥5 years of age), previous diagnosis of SSC and history of surgical intervention for craniosynostosis at the University Hospital. The patients' legal guardians were contacted by telephone and read a standardized script asking for their verbal consent to be mailed the standardized study questionnaire. The process of obtaining a waiver of documentation of consent had been completed through the university institutional review board. The study questionnaire asked the legal guardian about demographic BACKgROUND: Single-suture craniosynostosis (SSC) is a common craniofacial condition with potential neurocognitive sequelae. OBJECTIVE: To quantify any long-term functional academic and behavioural difficulties of children with SSC as indicated by the need for individualized education programs (IEPs), despite having undergone surgical treatment. METHODS:Records of all school-age patients from 1992 to 2011 who underwent operative intervention for SSC were identified. Fifty-nine patients' guardians were contacted by telephone to provide informed consent for completion of a mailed standardized questionnaire querying demographic information as well as information regarding the patient's health, family and educational history; specifically whether the patient had ever been provided educational support as delineated in an IEP. The primary outcome measure was the history of the patient being ass...

show abstract

mentioning

confidence: 99%

Analysis of individualized education programs to quantify long-term educational needs following surgical intervention for single-suture craniosynostosis

Doshier¹,

Muzaffar²,

Deidrick³

et al. 2015

CAN J PLAST SURG

View full text Add to dashboard Cite

show abstract

“…However, the results of recent studies suggest that the cranial release and reconstruction do not impact mental abilities during infancy 5,10,16,19,24,29,31) . Actually, the test of infant can also be problematic because instruments may not be sensitive to subtle changes in cognitive functions.…”

Section: Correlation Of Developmental Quotientsmentioning

confidence: 71%

Immediate Spontaneous Shape Correction Using Expantile Zigzag Craniectomy in Infantile Scaphocephaly -Is There an Improvement in the Developmental Quotient Following Surgery?-

Kim

2011

J Korean Neurosurg Soc

View full text Add to dashboard Cite

“…Los resultados de estos estudios son inconsistentes. Algunos autores refieren índices normales en el desarrollo cognoscitivo [21][22][23] y de forma más específica Toth et al 22 encontraron que la memoria de trabajo y la inhibición no se ven afectadas en niños que ya fueron sometidos a cirugía en comparación con niños sanos.…”

Section: Del Nacimiento a Los 3 Años De Edadunclassified

“…Otras investigaciones reportan deficiencias entre las que se encuentran: retraso psicomotor 21,24-30 , cognoscitivo 25-31 y de lenguaje 23,[28][29][30] . Es relevante mencionar que la mayoría de los estudios que mencionan deficiencias en niños con craneosinostosis carecen de grupo control (e.g [25][26][27][28][29] ), sólo son referidos a normas, por lo que sería importante conocer si los déficits encontrados persisten cuando se compara el desempeño con un grupo control pareado.…”

Section: Del Nacimiento a Los 3 Años De Edadunclassified

“…Específicamente en evaluaciones realizadas prequirúrgicamente, en lo que respecta al lenguaje, Warschausky et al 23 encontraron que el 43% de la muestra evaluada tenían una calificación de una desviación estándar por debajo de la población normativa, una cifra similar a la que reportan Kapp-Simons et al 28 (45%). Por su parte, Da Costa et al 26 mencionan que los índices mental y motor de niños con craneosinostosis son más bajos que lo esperado por el grupo normativo, aunque las puntuaciones aún caen dentro de los rangos normales; en sentido opuesto, Kapp-Simons et al 28 encontraron que el 16% y el 38% de su muestra obtuvo puntuaciones por debajo de una desviación estándar en el índice mental y psicomotor.…”

Section: Del Nacimiento a Los 3 Años De Edadunclassified

See 1 more Smart Citation

Una revisión de la literatura acerca de las características neuropsicológicas de niños con craneosinostosis simple en diferentes edades

Moreno

et al. 2017

Rev. chil. neuro-psiquiatr.

View full text Add to dashboard Cite

Early Development of Infants with Untreated Metopic Craniosynostosis

Cited by 61 publications

References 0 publications

Analysis of individualized education programs to quantify long-term educational needs following surgical intervention for single-suture craniosynostosis

Analysis of individualized education programs to quantify long-term educational needs following surgical intervention for single-suture craniosynostosis

Immediate Spontaneous Shape Correction Using Expantile Zigzag Craniectomy in Infantile Scaphocephaly -Is There an Improvement in the Developmental Quotient Following Surgery?-

Una revisión de la literatura acerca de las características neuropsicológicas de niños con craneosinostosis simple en diferentes edades

Contact Info

Product

Resources

About