Dyspnoea and self‐management strategies in patients admitted to the emergency department: A study of patients’ experiences

Larsen, Kasper Bro; Petersen, Annemette Krintel; Lisby, Marianne; Knudsen, Marie Veje

doi:10.1111/jocn.14560

Cited by 5 publications

(4 citation statements)

References 18 publications

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“…The experiences of breathlessness, the strategies around managing the situation and the awareness of when it was necessary to call for help were different for the patients in this study. This is consistent with other authors (Hutchinson et al, 2020;Karasouli et al, 2016;Larsen et al, 2018), who found that it was difficult for patients to know when their condition was serious enough to require medical attention. Some people who had previous experience with breathlessness (Karasouli et al, 2016;Larsen et al, 2018) found it easier to determine when this was necessary, while others (Karasouli et al, 2016) tried to avoid going to the hospital as long as possible, despite their deteriorating clinical situation.…”

Section: Discussionsupporting

confidence: 92%

“…This is consistent with other authors (Hutchinson et al, 2020;Karasouli et al, 2016;Larsen et al, 2018), who found that it was difficult for patients to know when their condition was serious enough to require medical attention. Some people who had previous experience with breathlessness (Karasouli et al, 2016;Larsen et al, 2018) found it easier to determine when this was necessary, while others (Karasouli et al, 2016) tried to avoid going to the hospital as long as possible, despite their deteriorating clinical situation. In the latter study, none of the patients wanted to be admitted to the hospital, but they were eventually forced to accept the situation because all other options had been exhausted.…”

Section: Discussionsupporting

confidence: 92%

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Patients' lived experiences of breathlessness prior to prehospital care – A phenomenological study

et al. 2022

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Aims and objectives The study aimed to describe how breathlessness is experienced by patients prior to prehospital care. Design A qualitative phenomenological design. Methods Lifeworld interviews were conducted with 14 participants. The analysis was carried out within the descriptive phenomenological framework. Results The essential meaning of the breathlessness phenomenon is described as an existential fear in terms of losing control over one’s body and dying, which involves a battle to try to regain control. This is further described by four constituents: being in an unknown body, striving to handle the situation, the ambiguity of having loved ones close and reaching the utmost border. Conclusions Patients describe a battling for survival. It is at the extreme limit of endurance that patients finally choose to call the emergency number. It is a challenge for the ambulance clinician (AC) to support these patients in the most optimal fashion.

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Section: Discussionsupporting

confidence: 92%

Section: Discussionsupporting

confidence: 92%

Patients' lived experiences of breathlessness prior to prehospital care – A phenomenological study

et al. 2022

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“…As a COA, functioning has been used in several health fields, e.g. in the health care of people with schizophrenia 8 ; migraine 9 ; cancer 10 ; arthrogryposis 11 ; dyspnea 12 ; stroke 13 ; chronic musculoskeletal pain 14 ; congenital heart disease 15 ; and prior to hematopoietic stem cell transplantation 16 .…”

Section: Introductionmentioning

confidence: 99%

The World Health Organization Disability Assessment Schedule 2 (WHODAS 2.0): remarks on the need to revise the WHODAS

et al. 2019

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Functioning and disability are concepts in increasing use in clinical settings and in public health. From the public health perspective, the use of functioning as a third health indicator could show more than the frequency of a disease and its death rates, offering information on how the population performs its activities and participation. Clinically, the functioning assessment can provide information for patient-centered health care and specific clinical interventions according to their functioning profile. WHODAS 2.0 is a generic tool to assess health and functioning according to the ICF functioning model. It is an alternative to assess functioning in a less time-consuming way, whereas the duration of the application is one of the main ICF critiques. This paper aims to present some of WHODAS 2.0 inconsistencies and weaknesses as well as strategies to cope with them. In this paper, we present some weaknesses related to the WHODAS layout; wording and scoring process. Some suggestions for strategies to correct these weaknesses are presented, as well.

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“…A Danish study, which conducted interviews 2 weeks after the patients had contacted the Emergency department due to dyspnea, found that patients, regardless of familiarity with dyspnea, worked out self-management strategies and stayed home for as long as possible, seemingly postponing seeking medical care [ 24 ]. Another qualitative study exploring the experience of patients with advanced COPD after a life-threatening event found that participants expressed confidence in the hospital to reduce their physical symptoms and related anxiety.…”

Section: Discussionmentioning

confidence: 99%

How Patients Who Are Transported by Ambulance Experience Dyspnea and the Use of a Dyspnea Scale: A Qualitative Study

et al. 2022

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Approximately 7% of all dispatched ambulances in Denmark are for patients for whom breathing difficulties are the main cause for using ambulance services. Objective measurements are routinely carried out in the ambulances, but little is known of the patients’ subjective experience of dyspnea. The purpose of this study was to investigate how patients with acute dyspnea, transported to hospital by ambulance, experience their situation, along with their experience of the use of a dyspnea scale. The study was carried out in the North Denmark Region. Transcribed patient interviews and field notes were analyzed and interpreted with inspiration from Paul Ricoeur. For interviews, we included 12 patients with dyspnea who were transported to the hospital by ambulance: six women and six men all aged 60 years or above. Observations were made over six ambulance transports related to dyspnea. Three themes emerged: “anxiety”, “reassurance in the ambulance” and “acceptance of the dyspnea measurements in the ambulance”. Several patients expressed anxiety due to their dyspnea, which was substantiated by observations in the ambulance. The patients expressed different perspectives on what improved the situation (treatment, reassurance by ambulance professionals). The patients and the ambulance personnel were, in general, in favor of the dyspnea scale.

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Dyspnoea and self‐management strategies in patients admitted to the emergency department: A study of patients’ experiences

Abstract: It would be relevant to further investigate whether prehospital interventions may remedy acute dyspnoea among chronically ill patients, and whether such interventions are cost-effective.

Cited by 5 publications

References 18 publications

Patients' lived experiences of breathlessness prior to prehospital care – A phenomenological study

Patients' lived experiences of breathlessness prior to prehospital care – A phenomenological study

The World Health Organization Disability Assessment Schedule 2 (WHODAS 2.0): remarks on the need to revise the WHODAS

How Patients Who Are Transported by Ambulance Experience Dyspnea and the Use of a Dyspnea Scale: A Qualitative Study

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