Dying to go to court: Demanding a legal remedy to end-of-life uncertainty

Richards, Naomi

doi:10.1017/cbo9781139923286.010

Cited by 7 publications

(4 citation statements)

References 19 publications

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“…Together, these factors result in a more engaged role for loved ones in shepherding death than many contemporary Americans will otherwise face. This emergent form of sociality reveals a fundamental paradox about AID as it is practiced in the United States: While public discourse characterizes AID as a mechanism for achieving an individually controlled, autonomous death, the medicolegal framework that organizes it practically enlists social support and cultivates dependencies (see also Richards ) . While it would be possible to complete most of the bureaucratic requirements on one's own, most people who pursue AID seek, and receive, assistance.…”

Section: The Sociality Of Assisted Dyingmentioning

confidence: 99%

Choreographing Death: A Social Phenomenology of Medical Aid‐in‐dying in the United States

Buchbinder

2018

Med Anthropol Q

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This article draws on ethnographic research on the implementation of Vermont's 2013 medical aid-in-dying (AID) law to explore a fundamental paradox: While public discourse characterizes AID as a mechanism for achieving an individually controlled autonomous death, the medico-legal framework that organizes it enlists social support and cultivates dependencies. Therefore, while patients pursuing AID may avoid certain types of dependency-such as those involved in bodily care-the process requires them to affirm and strengthen other bureaucratic, material, and affective forms. By tracing the social phenomenology of several AID deaths, I illustrate how AID results in distinctive forms of sociality and dependency that require terminally ill people and caregivers to embrace a collaborative stance toward choreographing death. I argue that assisted dying offers an opportunity to resist dominant U.S. cultural narratives that view dependency in purely negative terms and reimagine the relationships between disability, dependency, and care at the end of life.

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Section: The Sociality Of Assisted Dyingmentioning

confidence: 99%

Choreographing Death: A Social Phenomenology of Medical Aid‐in‐dying in the United States

Buchbinder

2018

Med Anthropol Q

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“…Casos icónicos como el de Karen Quinlan, cuyos padres reclamaron a la justicia el retiro de soporte vital que los médicos tratantes se negaban a realizar a mediados de los años 70 en los Estados Unidos, pusieron las decisiones acerca de cuándo prolongar o no la vida de una persona por medios tecnológicos por primera vez bajo el escrutinio público (Rothman 1991). Desde entonces otros casos resonantes continuaron enarbolando los derechos de los pacientes terminales a rechazar tratamiento o a recibir asistencia para finalizar su vida, en los que los medios de comunicación han tenido un gran protagonismo (McInerney 2000;Menezes, 2011;Richards 2014Richards , 2015.…”

Section: Introductionunclassified

Discusiones acerca de la toma de decisiones médicas en el final de la vida:

Marco

Villarejo

Alonso

2021

revista

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El objetivo de este artículo es analizar la cobertura periodística de los debates sobre “muerte digna” en la prensa escrita Argentina en el período 2011-2015, en ocasión de la discusión y aprobación de la llamada ley de “muerte digna” en el país. Se realizó un relevamiento de noticias en La Nación, Clarín y Página/12 y se conformó un corpus de 373 artículos periodísticos que fueron analizados a partir de un análisis cuantitativo y de análisis temático. En este artículo mostramos cómo la circulación de ideas en torno a la muerte digna se construye a partir de la preeminencia de tópicos legales y familiares, y el poco espacio de abordajes médicos y/o científicos; la centralidad de los estados vegetativos y de los daños neurológicos como condición de salud asociada a estas discusiones, motivada en parte por los casos que pusieron la temática en el ámbito público; el foco de la cobertura en casos emblemáticos y dramas particulares; y, por último, la casi nula referencia a temáticas como la eutanasia o el suicidio asistido en los debates, dominados por la limitación del esfuerzo terapéutico.

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Section: Introductionmentioning

confidence: 99%

“…The legal ruling that granted Karen Quinlan's parents' request to disconnect her from the respirator that was keeping her in a vegetative state brought the topic to public attention for the first time in 1976 (Rothman, 1991). Cases such as those of Nancy Cruzan (Dworkin, 1994) and Terri Schiavo in the USA, Vincent Humbert (Pereira, 2007) and Chantal Sébire (Menezes, 2011) in France, and Dianne Terry and Tony Nicklinson in the UK (Richards, 2014(Richards, , 2015, to name but a few, continued to fan debates about the rights of terminal patients (McInerney, 2000).While attempts to regulate such rights go back to the 1930s, when the first societies seeking to legalize euthanasia were founded in the UK and the USA (Emmanuel, 1994), it was not until the 1990s that the first advances were made in this area. The first law authorizing euthanasia was passed in that decade by the Northern Territory of Australia (McInerney, 2000) and there were various similar initiatives by various states in the USA (Hillyard, Dombrink, 2001).…”

mentioning

confidence: 99%

Debates parlamentarios sobre la muerte digna en Argentina: los derechos de los pacientes terminales en la agenda legislativa, 1996-2012

Alonso

Villarejo

Brage³

2017

Hist. cienc. saude-Manguinhos

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This article examines the regulation on terminal patients' rights in Argentina at two points in time: the first attempts to regulate end-of-life rights (1996), and the "death with dignity" law passed by the National Congress (2011)(2012). Comparative analysis allows us to observe variations among the individuals and situations included in the legislation, as well as in the conceptualization of autonomy and the interventions that is considered lawful refuse. The political context and the differential way that "death with dignity" entered the legislative agenda in each period determined the public's construction of the problem and thus the extent and result of the debates.Keywords: death with dignity; medicalization; euthanasia; bioethics; Argentina.Juan Pedro Alonso, Agustina Villarejo, Eugenia Brage 2 História, Ciências, Saúde -Manguinhos, Rio de Janeiro 2 História, Ciências, Saúde -Manguinhos, Rio de Janeiro T his article reviews the regulation of terminal patients' rights in Argentina, examining the conditions under which the issue emerged in legislative arena, and the way that medical management of end-of-life care (an expression which covers medical practices related to processes of dying) was constructed as a topic for public discussion at different periods.Debates and references to "death with dignity" and a "good death," which have been around for a long time (Ariès, 2000;Kellehear, 2007), gained new significance and relevance with the medicalization and technification of the end of life in the West, a process influenced by the professionalization of the medical field, as well as by cultural, demographic and epidemiological changes (Illich, 1978; Ariès, 2000; Walter, 1997;Seale, 2000). Technical innovations such as pulmonary ventilation, cardiopulmonary resuscitation techniques and artificial nutrition, which led in the 1950s and 1960s to the possibility of offering intensive therapy, substantially altered end-of-life management in medical settings (Lock, 2002; Kind, 2009). The ability to keep vital organs functioning by technical means, which resulted in liminal states between life and death (Kaufman, 2000), gave a new status to medical decisionmaking in end-of-life care, and opened debates about the potential of these technologies and the limits to their use.Within the framework of the emergence of bioethics as a discipline (Rothman, 1991;Irrazábal, 2015) and critiques of the medicalization of death and dying, such as the hospice movement (Clark, Seymour, 1999;Castra, 2003; Menezes, 2004; Floriani, Schraam, 2010), end-of-life care soon came to be seen as a "public problem." Decisions about when to prolong the life of a patient by artificial means and the criteria for withholding or withdrawing lifesupport measures had not been scrutinized until the mid-1970s, but they began to be discussed by different actors when doctors' authority to make these decisions came into question as a result of some controversial cases (Rothman, 1991). The legal ruling that granted Karen Quinlan's parents' request t...

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Dying to go to court: Demanding a legal remedy to end-of-life uncertainty

Cited by 7 publications

References 19 publications

Choreographing Death: A Social Phenomenology of Medical Aid‐in‐dying in the United States

Choreographing Death: A Social Phenomenology of Medical Aid‐in‐dying in the United States

Discusiones acerca de la toma de decisiones médicas en el final de la vida:

Debates parlamentarios sobre la muerte digna en Argentina: los derechos de los pacientes terminales en la agenda legislativa, 1996-2012

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