Dying in the hospital setting: A meta-synthesis identifying the elements of end-of-life care that patients and their families describe as being important

Virdun, Claudia; Luckett, Tim; Lorenz, Karl; Davidson, Patricia M.; Phillips, Jane

doi:10.1177/0269216316673547

Cited by 98 publications

(133 citation statements)

References 49 publications

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“…Virdun et al (2017) argue that many family members’ needs are still not met in acute-care settings, and how to achieve optimal EoL care remains a challenge. One relevant future research question is; how can expertise, ideas and insights from patients, family and staff be used in participatory processes to achieve more supportive environments in acute care?…”

Section: Discussionmentioning

confidence: 99%

“…Acute-care hospitals are thus a common place of death internationally; however they are generally fast-paced, high-tech environments, with care of the dying neither a primary focus nor prioritized (Bloomer, Endacott, O’Connor, & Cross, 2013; Chan, Macdonald, Carnevale, & Cohen, 2017). Several researchers point to deficits in quality end-of-life (EoL) care in acute-care hospitals (Al-Qurainy, Collis, & Feuer, 2009; Oliver & O’Connor, 2015; Reyniers, Houttekier, Cohen, Pasman, & Deliens, 2014), with both organizational and environmental factors contributing to a lack of support for dying persons and their family members (Sheward, Clark, Marshall, & Allan, 2011; Virdun, Luckett, Lorenz, Davidson, & Phillips, 2017). …”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Family members´ experiences of the end-of-life care environments in acute care settings – a photo-elicitation study

Hajradinovic

Tishelman

Lindqvist

et al. 2018

International Journal of Qualitative Studies on Health and Well

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Purpose: This article explores experiences of the acute-care environment as a setting for end-of-life (EoL) care from the perspective of family members of a dying person. Method: We used participant-produced photographs in conjunction with follow-up interviews with nine family members to persons at the EoL, cared for in two acute-care settings. Results: The interpretive description analysis process resulted in three constructed themes—Aesthetic and un-aesthetic impressions, Space for privacy and social relationships, and Need for guidance in crucial times. Aspects of importance in the physical setting related to aesthetics, particularly in regard to sensory experience, and to a need for enough privacy to facilitate the maintenance of social relationships. Interactions between the world of family members and that of professionals were described as intrinsically related to guidance about both the material and immaterial environment at crucial times. Conclusion: The care environment, already recognized to have an impact in relation to patients, is concluded to also affect the participating family members in this study in a variety of ways.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Family members´ experiences of the end-of-life care environments in acute care settings – a photo-elicitation study

Hajradinovic

Tishelman

Lindqvist

et al. 2018

International Journal of Qualitative Studies on Health and Well

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“…The need for privacy, cleanliness and quiet; and 3. Space is required to support cultural practices (Virdun et al, 2016) This example shows the importance of working closely with two datasets to fully answer a research question, but with important distinctions in the approach taken in each case. Whereas a synthesis of quantitative data is usually summative, a synthesis of qualitative data assumes that 'the whole is greater than the sum of the parts' and seeks to expand interpretation beyond the primary studies themselves.…”

Section: Methods For Synthesismentioning

confidence: 99%

“…Dying in the hospital setting: A systematic review of quantitative studies identifying the elements of end-of-life care that patients and their families rank as being most important (Virdun et al, 2015); and 2. Dying in the hospital setting: A metasynthesis identifying the elements of end-of-life care that patients and their families describe as being important (Virdun, Luckett, Lorenz, Davidson, & Phillips, 2016).…”

Section: Methods For Synthesismentioning

confidence: 99%

Analyzing Consumer Priorities for Hospital End-of-Life Care Using a Systematic Review to Inform Policy and Practice

Virdun¹,

Luckett²,

Lorenz³

et al. 2017

Self Cite

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4 A systematic review is a useful method to answer a research question where prior studies have been conducted. A well-designed and executed systematic review can inform policy and/or practice change. It can also identify gaps and generate new research questions. While the requirements considered essential for conducting a rigorous systematic review are well defined in the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) Statement, the approaches taken to synthesise the data vary. This case study describes the narrative synthesis of heterogeneous quantitative studies and the meta-synthesis of qualitative studies used to answer a complex research question from the consumer perspective. The study design focused on the analysis of consumer data only. As a result, the synthesis of both quantitative data and qualitative data have provided a detailed insight into consumers' unique perspectives and needs. The synthesis approach for both datasets is described, and linkages to key tools and resources to help facilitate this approach are provided. Processes used by the research team to enable effective research governance and collaboration throughout are also detailed. Learning OutcomesBy the end of this case students should be able to: Define a systematic review and outline the key elements required to ensure a review is rigorous; Outline practical suggestions on how to systematically source and manage data to answer a defined research question;  Consider how to design a study to represent the appropriate population through careful data extraction and synthesis techniques; Therefore, our team discussed how we might answer our research question with a specific focus on whether we would conduct another primary study or look to research already completed.On discussion, the team agreed that given significant work had already been completed on this question, a rigorous review of such work would be the most effective method to inform our next steps. Therefore, we chose to conduct a systematic review of published peer-reviewed literature to extract the relevant data, synthesise these data and present our findings in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) Statement. The PRISMA statement outlines an evidence-based minimum set of items for reporting within a systematic review to enable a quality review (Moher, Liberati, Tetzlaff, & Altman, 2009). Importantly, our review was designed to rely on consumer data only with this design evident within eligibility criteria, data extraction and synthesis."A systematic review is a review of a clearly formulated question that uses systematic and explicit methods to identify, select, and critically appraise relevant research, and to collect and analyze data from the studies that are included in the review." (Moher et al., 2009, p. 334) In the era of evidence-based medicine, systematic reviews are required to adhere to the same rigorous methodological standards as primary studies. The subjective n...

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“…Recent research suggests that feeling powerful reduces our death anxiety, whereas disempowerment increases death anxiety 13 . Therefore, the therapeutic relationship in end‐of‐life care should aim to minimise the power differential between clinician and patient, empower the patient and their family in their care, and provide expertise with respectful and compassionate care via effective communication 7 , 14 …”

mentioning

confidence: 99%

Medical assistance in dying: a disruption of therapeutic relationships

William

2018

Medical Journal of Australia

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Dying in the hospital setting: A meta-synthesis identifying the elements of end-of-life care that patients and their families describe as being important

Abstract: Consumer narratives help to provide a clearer direction as to what is important for hospital end-of-life care. Systems are needed to enable optimal end-of-life care, in accordance with consumer priorities, and embedded into routine hospital care.

Cited by 98 publications

References 49 publications

Family members´ experiences of the end-of-life care environments in acute care settings – a photo-elicitation study

Family members´ experiences of the end-of-life care environments in acute care settings – a photo-elicitation study

Analyzing Consumer Priorities for Hospital End-of-Life Care Using a Systematic Review to Inform Policy and Practice

Medical assistance in dying: a disruption of therapeutic relationships

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