Dreaming Disability Justice in HCI

Sum, Cella M; Alharbi, Rahaf; Spektor, Franchesca; Bennett, Cynthia L.; Harrington, Christina; Spiel, Katta; Williams, Anna

doi:10.1145/3491101.3503731

Cited by 17 publications

(1 citation statement)

References 20 publications

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“…The case study of the Death Panel podcast and its surrounding community underscores how information is integral to the cultivation of radical politics and solidarity‐driven activism. The project departs from existing research within information science that examines disabled people's isolation through one‐dimensional, single‐axis frameworks of identity (Sum et al, 2022; Trevisan, 2020), and instead embraces a political interpretation of disability that challenges racist conceptions of deviance and normality.…”

Section: Introductionmentioning

confidence: 99%

Solidarity and Care: Information Activism in the Death Panel Podcast Community

May

2023

Proceedings of the Association for Information Science and Tech

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This poster highlights the connections between independent media, information activism, and disability through a case study of the podcast Death Panel and its listeners. Death Panel is a leftist podcast that explores issues of affordability in medical care and the dearth of public health resources. The ongoing project explores the independent media created by disabled people that concern their frustrations with societal and governmental neglect, and their desires to build community and a collective political movement for social change. Since the COVID‐19 pandemic, the podcast's listenership has grown substantially. Similarly, the number of members in the Death Panel Discord group has increased to over 2,000 members over the past two years. As of February 21st, 2023, there are 2,954 members in the Discord server. For many members, especially those who are disabled and chronically ill, the podcast's Discord has served as a significant site of politicization and community‐building during the COVID‐19 pandemic. Through semi‐structured interviews, this project will explore the political and activist implications of information for marginalized people.

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Section: Introductionmentioning

confidence: 99%