‘Draw your pelvis’ test for assessing pelvic schema in people with Parkinsonʼs disease: a validity and reliability study

Abraham, Amit; Wright, Gene N; Morrison, Margaret W; Hart, Ariel R.; Dickstein, Ruth; Hackney, Madeleine E.

doi:10.1080/08990220.2019.1632183

Cited by 1 publication

(1 citation statement)

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“…Drawing of an illness not only serves diagnostic purposes into the subjective response to an illness, but intervention studies have shown how changes in patient drawings can identify medical outcomes 40 . In persons with Parkinson’s disease, drawings have been applied in order to examine its lived experience 41 . Moreover, adjusting to living with Parkinson’s disease was reviewed in a meta-ethnography of qualitative research, emphasizing the contribution of qualitative methods for biopsychosocial research in people with Parkinson’s disease 42 .…”

Section: Discussionmentioning

confidence: 99%

Narrative medicine pinpoints loss of autonomy and stigma in Parkinson’s disease

Florijn,

Kloppenborg,

Kaptein

et al. 2023

npj Parkinsons Dis.

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Parkinson’s disease characteristics can create a self-perceived sense of stigmatization and disapproval by others, thereby affecting self-perceived autonomy. This study investigated the metaphors related to the loss of autonomy and stigma in stories and drawings of Parkinson’s disease. We compare a contemporary first-person illness narrative and -drawing from a person with Parkinson’s disease, with two novels (Jonathan Franzen’s The Corrections and Claudia Piñeiro’s Elena Knows), a graphic novel (Peter Dunlap-Shohl’s My Degeneration: A Journey Through Parkinson’s), a non-fiction book (Oliver Sacks’ Awakenings) and a first-person illness narrative (John Palfreman’s The Bright Side of Parkinson’s). Metaphors in the patient narrative, novels, and non-fiction work were reviewed and a list of themes or categorizations common to 2 of the metaphors was generated. Parkinson’s disease metaphors indicate a ‘Parkinson’s prism’ thereby depicting extreme experiences (24.4%) like a ‘fall by mischance’, a ‘tantrum of selfish misery’ or a ‘bottomless darkness and unreality’ (Table 1). Both novels signify a sense of ‘betrayal and disconnection’ in the Parkinson’s disease experience while non-fiction of Parkinsonism depicts a space in which one feels ‘caged and deprived’. This makes the Parkinson’s disease narrative a chaos story that could influence the decision to initiate treatment and treatment adherence. We conclude that narrative medicine can help to focus the medical consultations with affected individuals on issues that matter most to them, thereby improving self-perceived autonomy and stigma. As such, it is a critical component of the much-needed move towards personalized medicine in Parkinson’s disease, achieved through the reciprocity of thinking with stories.

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Section: Discussionmentioning

confidence: 99%