Donor type and parental disclosure following oocyte donation

Stephenson, John; Blyth, Eric; Kramer, Wendy; Schneider, Jennifer

doi:10.1016/s2305-0500(13)60046-9

Cited by 5 publications

(14 citation statements)

References 34 publications

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“…One study (reported in two articles) included a small number (4/108, i.e. 3.7%) of participants who conceived via a combination of surrogacy and donation ( Stephenson et al , 2012 ; Blyth et al , 2013 ) and two others included 9.1% and 9.7%, respectively, of intending parents ( de Melo-Martín et al , 2018 ; Indekeu and Lampic, 2021 ); but as more than 90% of participants fit the inclusion criteria these studies were included. Some studies were included because they referenced disclosure decisions, or factors affecting disclosure decisions, as part of the study (e.g.…”

Section: Resultsmentioning

confidence: 99%

“…Thus, 37 articles were initially included in this review. After reviewing the articles gathered from the same umbrella study, six were identified that use the same data as another article based on participant numbers and demographics ( Stephenson et al , 2012 ; Blyth et al , 2013 ; Nordqvist, 2014 , 2021 ; Jociles et al , 2017 , 2021 ). After combining the data from these six articles into three pairs, 34 studies were identified for inclusion.…”

Section: Resultsmentioning

confidence: 99%

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Parents’ disclosure to their donor-conceived children in the last 10 years and factors affecting disclosure: a narrative review

Duff,

Goedeke

2024

Human Reproduction Update

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BACKGROUND Disclosure of donor conception has been advocated in several jurisdictions in recent years, especially in those that practice identity-release donation. However, research on disclosure decisions has not been consolidated systematically in the last 10 years to review if parents are telling and what factors may be impacting their decisions. OBJECTIVE AND RATIONALE Are parents disclosing to their donor-conceived children, and what factors have influenced their disclosure decisions across different contexts and family forms in the last 10 years? SEARCH METHODS A bibliographic search of English-language, peer-reviewed journal articles published between 2012 and 2022 from seven databases was undertaken. References cited in included articles were manually scrutinized to identify additional references and references that cited the included articles were also manually searched. Inclusion criteria were articles focused on parents (including heterosexual, single mothers by choice, same-sex couples, and transsexual) of donor-conceived persons in both jurisdictions with or without identity-release provisions. Studies focused solely on surrogacy, donors, donor-conceived persons, or medical/fertility staff were excluded as were studies where it was not possible to extract donor-recipient parents’ data separately. Both quantitative and qualitative studies were included. Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines were followed and Joanna Briggs Institute Critical Appraisal Tools for Systematic Reviews were used to assess article quality and bias. OUTCOMES Thirty-seven articles met the inclusion criteria representing 34 studies and 4248 parents (including heterosexual, single, same-sex, and transsexual parents although the majority were heterosexual) from countries with anonymous donation and those with identity-release provisions or who had subsequently enacted these provisions (Australia, Belgium, Finland, France, Hong Kong, Middle East, Spain, Sweden, the UK, and the USA) A general trend towards disclosure was noted across these groups of parents with most disclosing to their donor-conceived children before the age of 10 years. Further, the majority of those who had not yet told, reported planning to disclose, although delayed decisions were also associated with lower disclosure overall. Same-sex and single parents were more likely to disclose than heterosexual parents. There was recognition of disclosure as a process involving ongoing conversations and that decisions were impacted by multiple interacting intrapersonal, interpersonal, and external contextual and social factors. Methodological limitations, such as the different population groups and contexts from which participants were drawn (including that those parents who choose not to disclose may be less likely to participate in research), are acknowledged in integrating findings. WIDER IMPLICATIONS This review has reinforced the need for a theoretical model to explain parents’ disclosure decisions and research exploring the role of legislative provisions, culture, and donor/family type in decision-making. Greater ongoing access to psychological support around disclosure may be important to promote parent and family well-being.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Parents’ disclosure to their donor-conceived children in the last 10 years and factors affecting disclosure: a narrative review

Duff,

Goedeke

2024

Human Reproduction Update

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“…While it is likely that some of these parents may disclose at a later date, it is also possible that some will never disclose. The analysis of the data that we were able to undertake, and which has been reported separately (Stephenson et al, 2012), indicates that parental use of an anonymous or openidentity donor makes very little difference to the timing of parental disclosure to children.…”

Section: Choosing An Anonymous or Open-identity Donormentioning

confidence: 89%

Perspectives, experiences, and choices of parents of children conceived following oocyte donation

Blyth

Kramer²,

Schneider

2013

Reproductive BioMedicine Online

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“…Members come from many different countries, the majority being from the USA. This large number of members has provided a unique opportunity for researchers, in collaboration with the DSR, to ascertain the views of offspring [16][17][18] parents [19][20][21], sperm donors [14], oocyte donors [12] and sperm and oocyte donors [22]. As a result, information is now available from these stakeholder groups in larger numbers than previously.…”

Section: Methodsmentioning

confidence: 99%

Genetic and health issues emerging from sperm donation—The experiences and views of donors

Daniels¹,

Kramer²

2013

ARSci

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164 previous sperm donors completed an online survey regarding health and genetic experiences and views. Results highlight that donors desire to act responsibly with recruiting facilities is not always possible. Objective: Obtaining the views and experiences of sperm donors regarding health and genetic matters. Design: Online survey. Setting: Not applicable. Participants: 164 previous sperm donors. Interventions: Not applicable. Main outcome measures: Views and experiences on health and genetic issues. Results: A variety of approaches are adopted by recruiting facilities in regard to selection and postdonation factors. The vast majority of donors said they had not been contacted by the facility they donated at to update their medical information, while almost one quarter of donors indicated that a health or genetic risk factor had occurred. A great majority of donors felt that they had not received any education or counselling on the potential curiosities of donor conceived people. Donors sought to be honest and open with staff but often found there were difficulties in doing so. Conclusions: Overall, donors indicate that they see donating as involving responsibilities to the offspring and families. The study highlights however that their ability to act responsibly is limited by some of the interactions or lack of them with the facilities where they donated. Implications for recruiting facilities need to be considered.

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Donor type and parental disclosure following oocyte donation

Cited by 5 publications

References 34 publications

Parents’ disclosure to their donor-conceived children in the last 10 years and factors affecting disclosure: a narrative review

Parents’ disclosure to their donor-conceived children in the last 10 years and factors affecting disclosure: a narrative review

Perspectives, experiences, and choices of parents of children conceived following oocyte donation

Genetic and health issues emerging from sperm donation—The experiences and views of donors

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