Domiciliary Noninvasive Ventilation: Strategies for Improving Adherence to Home Use

“The Devices Themselves Aren’t the Problem”—Views of Patients and Their Relatives on Medical Technical Aid Supply in Home Mechanical Ventilation: An Explorative Qualitative Study

“…Even though these devices are available on the market, patients and relatives may not always have access to them (e.g., due to decisions made by health insurers or by medical device and equipment suppliers). However, consistent with existing evidence [ 34 , 35 , 36 ] (including in the data collected here), the real challenges in technology-intensive home care are more likely caused by human factors, such as adjustment, maintenance, or handling problems.…”

“…Research on populations with complex needs in home care has revealed that information and educational support are important yet unmet needs [ 21 , 36 , 37 , 38 , 39 ], as was also found in the accounts of the interviewees in the present study. A pressing need exists for the proactive informing and counselling of patients and relatives; for flexible, targeted, and continuous instruction; for user involvement in care and decision-making, particularly in terms of the use of technology [ 34 , 36 , 39 ].…”

“…Research on populations with complex needs in home care has revealed that information and educational support are important yet unmet needs [ 21 , 36 , 37 , 38 , 39 ], as was also found in the accounts of the interviewees in the present study. A pressing need exists for the proactive informing and counselling of patients and relatives; for flexible, targeted, and continuous instruction; for user involvement in care and decision-making, particularly in terms of the use of technology [ 34 , 36 , 39 ]. During our analysis, it became evident that education should always be adapted to the actual situation of the patients and their relatives and should take into account their specific support and learning needs and their capabilities throughout the trajectory from hospital to home-based care to living with the dependency.…”

“…This finding draws attention to the role of external commercial medical device and equipment suppliers in HMV and to their legally mandated safety responsibilities in adjusting, maintaining, and applying these devices. Earlier European studies on the topic concluded that collaboration between external suppliers, prescribers, and users of medical technical aids in technology-intensive home care was low, as was participation in joint quality control initiatives [ 30 , 36 ]. This aspect was also evident in the research conducted here.…”