Doing research inclusively: bridges to multiple possibilities in inclusive research

Abstract

Accessible summary This article is about the ways people do research together. We talked with people doing inclusive research about their views and experiences. We found out about different ways people work together and how power is important. People talked about how inclusive research can change people's lives. We discuss why we think research can be performed inclusively in a variety of ways and why keeping this variety is important. Summary This article reports on a study of how people do research that matters to people with learning disabilities and that involves them and their views and experiences. The study was an attempt to bring together people doing inclusive research so that, collectively, we could take stock of our practices. This would add to the individual reports and reflections on approaches that are already available. In particular, we wanted to explore what quality means in inclusive research and how we might best achieve this. We used focus groups to share and generate knowledge, and we recorded, transcribed and analysed the dialogue, looking for themes and answers to core questions. We found that there are many different ways of doing research inclusively, and we propose a model to describe this. Reflecting on the findings, we argue that it is important to keep a flexible vision of inclusive research and to keep learning and talking together.

Reflections on the role of the ‘users’: challenges in a multi-disciplinary context of learner-centred design for children on the autism spectrum

“…Notably, then, in HCI research there has been a continuum of children's participation along which researchers have travelled that closely mirrors discussion and examples in other fields (e.g. Beresford and Evans, 1999;Thomson and Gunter;Kellett et al, 2004;Fleming., 2012;Lewis et al, 2008;Porter et al, 2006;Nind and Vinha, in press). The thread that weaves through such accounts, whether explicitly or implicitly, is the extent to which empowerment of the 'users' takes place in relation to decision-making, contributions, confidence and relationships.…”

Challenges facing online research: Experiences from research concerning cyber-victimisation of people with disabilities

“…Participatory action research makes no definite discrimination between the researchers and researched (Meyer, 2000). It was adopted with people having disabilities due to its values of empowerment and contribution to social change (Nind & Vinha, 2014). It challenges exclusion in the research process by involving people with disabilities to develop the research project, conduct and analyse data in a continuous cycle of learning (Buettgen et al, 2012).…”

Apoyando la participación real de las personas con discapacidad intelectual: una experiencia de investigación inclusiva sobre vida independiente

“…A menudo tampoco se detallan cuáles han sido las responsabilidades de las personas con discapacidad a lo largo de la investigación. La transparencia de los procesos de investigación inclusiva es necesaria no solo para facilitar su evaluación, sino también para aportar conocimientos, aprendizajes y orientaciones a la comunidad científica (Nind y Vinha, 2014). Por ello, algunos investigadores insisten en la necesidad de que en este tipo de investigaciones se concrete "quién ha hecho qué" (Walmsley, 2004;Nind et al, 2015); es decir, explicar cuál ha sido la aportación de investigadores con y sin discapacidad a lo largo del proceso de investigación.…”

“…Sin embargo, se trata de una cuestión fundamental puesto que la cohesión del equipo es condición necesaria para el éxito del proceso y de los propios resultados de la investigación (Strnadová et al, 2014). De hecho, algunas de las investigaciones centradas en las perspectivas y opiniones de los investigadores con discapacidad resaltan la importancia que tiene para ellos sentir que forman parte de un grupo que trabaja con un objetivo común y en el que sus voces son importantes (The Money, Friends and Making Ends Meet Research Group y Tilly, 2012;Nind y Vinha, 2014;Puyalto et al 2016). Ello implica la necesidad de tener en cuenta, en las decisiones sobre el tipo de reuniones, su duración, la temporalización y la propia dinámica de las reuniones, que los integrantes del grupo se sientan progresivamente miembros de un equipo de personas que trabajan conjuntamente para conseguir un objetivo común (Pallisera et al, 2015).…”