Does writing a list help cancer patients ask relevant questions?

Jones, Ray; Pearson, Janne; McGregor, Sandra; Barrett, Ann; Gilmour, W. Harper; Atkinson, Jacqueline M.; Cawsey, Alison; McEwen, James

doi:10.1016/s0738-3991(02)00011-3

Cited by 16 publications

(18 citation statements)

References 9 publications

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“…One possible explanation for the different result between this and our previous study is that in the previous study all patients were encouraged to write a list of questions to ask their oncolo-gist one week after the intervention 14. Other researchers have shown the possible beneficial effect of prompt sheets and written lists on anxiety 15.…”

Section: Discussioncontrasting

confidence: 56%

Effect of different forms of information produced for cancer patients on their use of the information, social support, and anxiety: randomised trial

Jones

Pearson

Cawsey

et al. 2006

BMJ

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Objective To explore the hypothesis that different methods of selecting and printing information for cancer patients could improve emotional support by affecting interaction with others, and so lead to improved psychological wellbeing. Design Randomised trial with eight groups (three factors, 2×2×2). Data collected at recruitment and three month follow-up. Participants 400 patients starting radiotherapy, of whom 325 with breast or prostate cancer and complete anxiety and depression data were included in the analysis. Interventions Printed booklets: half had only general information from CancerBACUP about each patient's cancer and half had personalised information from the patient's medical record plus selected general information; half were composed of information chosen interactively by the patient and half were produced automatically with a larger volume of material; and half had additional advice on anxiety management and half did not. Main outcome measures Patients' views of the information, use of their booklets with others; change in reported social support; change in anxiety and depression. Results The larger booklets produced automatically were more likely to be found useful and to tell patients something new and less likely to be seen as too limited than the booklets produced interactively, but they were also more likely to overwhelm some patients. Personalised booklets were more likely than general booklets to tell patients something new. There was no difference in patients' perceived understanding of their cancer by any of the intervention factors. Patients with personalised information were more likely to show their booklets to others and to think it helped in discussing their cancer or its treatment. There were no major differences in social support, anxiety, or depression by any intervention factors. Conclusions Patients were more likely to show personalised information to their confidants than general information. Further research is needed into the effects of sharing information on patients' social support and anxiety.

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Section: Discussioncontrasting

confidence: 56%

Effect of different forms of information produced for cancer patients on their use of the information, social support, and anxiety: randomised trial

Jones

Pearson

Cawsey

et al. 2006

BMJ

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“…This finding suggests that counselees need to be motivated to write down their own questions, and this advice should be more accessible and might best be placed at the homepage of future websites that include a QPS. Only half of the counselees wrote down questions, which is comparable to the findings of Jones et al with a blank QPS for cancer patients undergoing radiotherapy [54]. A study of oncology outpatients found higher QPS use, three fourths of all patients [30], and the advice about why to use the QPS might explain this higher uptake.…”

Section: Discussionsupporting

confidence: 68%

Use and Evaluation of an Individually Tailored Website for Counselees Prior to Breast Cancer Genetic Counseling

et al. 2011

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This article explores the use and evaluation of a pre-visit website which aims to prepare counselees who are the first in their family to request breast cancer genetic counseling. This website E-info gene(ca) provides computer-tailored information and a blank question prompt sheet (QPS) on which counselees can formulate their questions for the consultation. The objectives of this study are: first, to assess which factors influence the use of E-info gene(ca), including the duration of site and page views, the influence of topic sequence in the menu bar on the sequence of page views, and the relation between website use and the use of the QPS; second, to explore counselees' evaluations of E-info gene(ca) and relations with counselee characteristics. User statistics were analyzed to describe duration of site and page views. Multivariate analyses were used to predict duration of web and page views, sequence of page views, QPS use, and site evaluations. Independent variables were sociodemographic background, disease status, psychological functioning, and information needs. All 101 counselees who were provided with a login accessed the website and spent, on average, 21 min viewing the website. Counselees affected with breast cancer spent more time on the website than unaffected counselees. Half of all page views were within the sequence of topics in the menu and older counselees, and those who made less use of the internet more often navigated according to the menu sequence than others. Having viewed information about why it is important to ask questions increased QPS use. Counselees who had higher information needs considered the information more helpful. This hospital-provided website for breast cancer genetic counselees was accessible and was evaluated positively, even concerning older counselees and those who had not searched the internet for information about hereditary cancer. Counselees might navigate hospital-provided websites more in line with the sequence of topics in the menu bar, than generally accessible health websites.

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“…• To remind patient to make notes of questions to ask or instructions to follow 41 Contain contact details for health care services • To ensure reader can contact ward or department in case of questions or emergency 17 …”

mentioning

confidence: 99%

Ensuring Quality Information for Patients: development and preliminary validation of a new instrument to improve the quality of written health care information

Moult

Franck

Brady

2004

Health Expectations

177

176

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Does writing a list help cancer patients ask relevant questions?

Cited by 16 publications

References 9 publications

Effect of different forms of information produced for cancer patients on their use of the information, social support, and anxiety: randomised trial

Effect of different forms of information produced for cancer patients on their use of the information, social support, and anxiety: randomised trial

Use and Evaluation of an Individually Tailored Website for Counselees Prior to Breast Cancer Genetic Counseling

Ensuring Quality Information for Patients: development and preliminary validation of a new instrument to improve the quality of written health care information

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