Does the Frequency of Participation Change After Stroke and Is This Change Associated With the Subjective Experience of Participation?

Blömer, Anne Marije V; Mierlo, Maria L. van; Visser-Meily, J. M. A.; Heugten, Caroline van; Post, Marcel W M

doi:10.1016/j.apmr.2014.09.003

Cited by 49 publications

(61 citation statements)

References 34 publications

(61 reference statements)

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“…Second, perhaps the fact that they participated in the programme made them feel more satisfied with their participation level, even though it did not help them decrease their perceived restrictions and, subsequently, did not help them to participate more in other activities outside the programme. Another explanation is that people with ABI had already adjusted to leisure and social activities in the years before participating in the programme, since it is probably easier to adjust to these types of activities in comparison with vocational activities (Blömer et al, 2015). It is therefore possible that, after the programme, the frequency of participation and the amount of participation restrictions experienced had improved in vocational activities, but not in leisure and social activities.…”

Section: Discussionmentioning

confidence: 99%

“…These problems often have a considerable impact on the lives of people with ABI and their families, as they interfere with many aspects of daily and social functioning (Wood & Rutterford, 2006). Even people with ABI who do not experience obvious physical consequences due to the brain injury, or those who are discharged from neurorehabilitation, may experience a range of psychosocial consequences once they return to their home environment and try to live an independent life within the full scope of societal participation (Blömer, van Mierlo, Visser-Meily, van Heugten, & Post, 2015;Scheenen et al, 2016;Tiersky et al, 2005;Visser-Meily, van Heugten, Schepers, & van den Bos, 2007).…”

Section: Introductionmentioning

confidence: 99%

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Outcomes of a community-based treatment programme for people with acquired brain injury in the chronic phase: a pilot study

Spanje¹,

Smeets

Haastregt

et al. 2017

Neuropsychological Rehabilitation

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The objective of the study was to evaluate the outcomes of Brainz, a low intensity community-based treatment programme for people with acquired brain injury (ABI). Participants were 62 people with sustained ABI (5.2 years post-injury, SD = 4.5) and 35 family caregivers. Participants attended two to five cognitive and physical group modules and received two hours of individual home treatment every two weeks. Primary outcomes for people with ABI were participation, perceived difficulties in daily life and need of care, level of goal attainment, and self-esteem. Primary family caregiver outcome was perceived burden of care. Attrition rate of people with ABI was 24% (n = 15), and of family caregivers was 31% (n = 11). People with ABI were more satisfied with the level of their participation after completing Brainz (p < .01), but showed no change in participation frequency or in restrictions (both ps > .01). They perceived fewer difficulties in daily life and less need of care (both ps < .01). Also, in two cognitive modules people improved on their goal achievement (p < .01). However, their self-esteem was reduced (p < .01). Caregiver burden was reduced (p < .01). This study has provided preliminary evidence of the effectiveness of a combined group-based clinical and individual home-based treatment programme, but more research is needed, preferably in larger controlled studies.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Outcomes of a community-based treatment programme for people with acquired brain injury in the chronic phase: a pilot study

Spanje¹,

Smeets

Haastregt

et al. 2017

Neuropsychological Rehabilitation

View full text Add to dashboard Cite

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“…Comparison of outcomes in volume, frequency and intensity of community-based ambulation is difficult. However, lower volume of community ambulation after stroke is implied by self-reported difficulty with returning to pre-stroke community ambulation (Robinson et al, 2011a;Lord and Rochester, 2008;van de Port et al, 2008;Lord et al, 2004) and reduced participation across all domains of life (Adamit et al, 2014;Blomer et al, 2014;van der Zee et al, 2013;Barclay-Goddard et al, 2012). Stroke survivors may reduce the frequency of community ambulation through a decrease in total trips into the community, as well as in the frequency of walking related activities during each community trip (Robinson et al, 2011a;Robinson et al, 2011b;Lord et al, 2004).…”

Section: Distancementioning

confidence: 99%

“…Both time spent out in the community and total trips per day were also considered a useful measure of engagement in community ambulation. It is known that frequency of participation behaviours and walking related activities in the community is reduced after stroke, and thus these measures were also included (Blomer et al, 2014;Robinson et al, 2011b).…”

Section: Measures Of Community Ambulationmentioning

confidence: 99%

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Ambulation recovery after stroke

Mahendran¹

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Most stroke survivors regard successful independent ambulation important. However, ambulation recovery is limited following stroke. Historically, limited availability of objective tools and measures to characterise free-living ambulation recovery has restricted investigation of this outcome after survivors return home. However, commercially available devices, including accelerometers and portable global positioning systems, are now available. Thus, this thesis aimed to characterise free-living ambulation recovery over the first six months after stroke survivors returned home from hospital and determine what factors at discharge contributed to ambulation recovery across this time.The first study of this thesis investigated the concurrent validity and retest reliability of accelerometers (ActivPAL TM and Sensewear Pro 2 Armband) and global positioning systems (GPS) (Garmin forerunner 405CX) to measure free-living ambulation after stroke. Measures of step counts, time spent walking, energy expenditure, distance and location were taken during walking tasks that impose demands similar to those encountered when walking in the community as well as free-living community ambulation over four days. This study determined that the ActivPAL TM was valid and reliable for measuring ambulation after stroke. The GPS was valid and reliable for all measures except distance, whereas the Sensewear Pro 2 Armband recorded with high error during all walking tests.The second study aimed to characterise ambulation activity after stroke across the first six months following discharge from hospital and investigate how ambulation activity changed across this time period. Free-living ambulation activity was measured over four days using the ActivPAL TM accelerometer at one, three and six months after stroke survivors left hospital. Measures of volume (daily step counts and time spent walking, sitting/lying, standing and upright), frequency (total number of ambulation bouts; number of bouts and total time spent in short, medium and long duration ambulation bouts) and intensity (number of bouts and total time per day spent in low, moderate and high intensity ambulation bouts) of ambulation activity were collected. This study highlighted that volume of ambulation activity was low across the first six months following hospital discharge, with a majority of ambulation bouts short and low in intensity. Stroke survivors rarely engaged in long duration and high intensity ambulation bouts across the first six months.Daily volume of ambulation activity increased from one month to both three and six months after iv discharge from hospital through an increase in medium duration and moderate intensity ambulation only.The third study aimed to determine what factors at discharge were related to and predicted ambulation activity outcomes over the first six months following hospital discharge in stroke.Factors including age, fatigue, mood, executive function, gait speed, gait endurance, perceived stroke recovery, pre-stroke physical activity, ambulat...

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De onzichtbare gevolgen van hersenletsel

et al. 2020

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Veel mensen met niet-aangeboren hersenletsel ondervinden nog jaren later problemen in het dagelijks functioneren en in het maatschappelijk leven. Er is voldoende goede zorg beschikbaar, maar lang niet iedereen krijgt die op het juiste moment. Zorgverleners herkennen de (chronische) gevolgen vaak niet of zijn niet bekend met de regionale zorg-en ondersteuningsmogelijkheden. Meestal is de huisarts degene van wie de patiënt afhankelijk is voor het herkennen en gericht doorverwijzen bij problemen door hersenletsel. Deze nascholing biedt praktische handvatten.Niet-aangeboren hersenletsel kan ontstaan door trauma (hersenschudding, hersenkneuzing) of door een beroerte, hersenontsteking of zuurstoftekort. De twee voornaamste oorzaken zijn beroerte en trauma door een ongeval. De acute medische zorg is sterk verbeterd en patiënten worden ook steeds sneller ontslagen na ziekenhuisopname en revalidatie. Na een jaar woont 95% weer thuis, maar voor sommigen heeft het hersenletsel langetermijngevolgen die de kwaliteit van leven, de dagelijkse activiteiten en zelfs de deelname aan het maatschappelijk verkeer ernstige schade toebrengen. [1][2][3][4][5] Het blijft vaak Erken, herken en verwijs De onzichtbare gevolgen van hersenletselCaroline van Heugten, Nicole Sillekens, Job Metsemakers en Marjan van den Akker CASUS: MENEER AALBERS KLAAGT OVER SPANNINGMeneer Aalbers (30 jaar) komt bij de huisarts en klaagt over spanning op zijn werk. Hij lijkt zijn taken niet meer aan te kunnen en wordt gehinderd door hoofdpijn, vermoeidheid en drukte als er meer mensen tegelijk in de kamer zijn. Hij is niet bekend met dit soort klachten. Hij maakt zich zorgen over wat er aan de hand zou kunnen zijn. Bij doorvragen blijkt dat meneer Aalbers drie maanden geleden op de fiets is aangereden. Hij is op zijn hoofd gevallen en twintig minuten buiten bewustzijn geweest. In het dossier vindt de huisarts de brief van zijn bezoek aan de Spoedeisende Hulp, waar hoofdletsel werd vastgesteld zonder aanwijzingen voor hersenletsel op de scan. Advies was 'het even rustig aan te doen'. Na enkele dagen is hij weer aan het werk gegaan, maar vorige week heeft hij zich ziekgemeld.Niet-aangeboren hersenletsel is geen medische diagnose en kan betrekking hebben op zeer verschillende ICPCdiagnoses.

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Does the Frequency of Participation Change After Stroke and Is This Change Associated With the Subjective Experience of Participation?

Cited by 49 publications

References 34 publications

Outcomes of a community-based treatment programme for people with acquired brain injury in the chronic phase: a pilot study

Outcomes of a community-based treatment programme for people with acquired brain injury in the chronic phase: a pilot study

Ambulation recovery after stroke

De onzichtbare gevolgen van hersenletsel

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